Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Miss The Convenience


The Glutenator

Recommended Posts

The Glutenator Contributor

I just went for a follow-up biopsy yesterday to see if the gluten-free diet is working at fixing up any damage (since my Ab levels are still through the roof after diligently being gluten-free). I had a very early appointment and, in my groggy state on the way home from the hospital, all I wanted was to stop at a coffee shop or bakery for a fresh muffin. Most of the time I am perfectly content with the gluten-free lifestyle, but sometimes I just REALLY REALLY wish I could pick up something fresh (usually sweet) easily. The feeling is worse when I am grumpy or sick and crave a fresh bun, or sometimes just want...for example...a muffin.

Needed a bit of a rant to those who understand.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



crimsonviolet Apprentice

I totally get you. Yesterday I was grocery shopping and I was just so worn out by the whole reading labels, checking for hidden gluten, etc. I caved 2 days ago and ate some fast food that I knew had gluten, and sure enough I reacted. Both my kids and hubby are currently reacting to hidden cross contamination from eating Snickers (mfg in a plant that uses malt.)

It's hard, but it's so worth it when we feel good instead of crappy.

srall Contributor

Totally understand.

missy'smom Collaborator

I get it. I honestly don't miss the individual foods most of the time. Most of the time it's the convenience and not having to think about everything I put in my mouth. I had a rare melt down in the car and cried on the way home from the grocery store tonight because I was feeling that there's so little I can eat and so tired of the same things and tired of seeing label after label that has ingredients in it that I can't have. I've been to 3 stores in 2 days, while out running errands and couldn't even find a plain iced tea that didn't have sugar! DH ran to the store afterwards today and bought me individual bottles in bulk and put them in the extra fridge so that I can take my own along next time I'm out and about on a hot day!

Food Allergy Therapist Newbie

I think it's totally normal to have moments where you just wish things were different and you could just have whatever you wanted, whenever you wanted. Changing your diet so drastically and giving up once beloved foods is really challenging and there really is a grieving process you have to go through. After awhile, you may feel like you have it all down, but there may still be moments when it gets the best of you. Important to ackowledge this and not fight it...it's just part of the grieving process. What gets me are Starbucks muffins...I don't know why...but I used to love their muffins and pastries...and when I get a craving, it's often for that. Then I remember how much better it feels not to get glutened.

The Glutenator Contributor

Yeah, I agree. I think for the rest of my life there will sometimes be moments when I say "damn!", but unfortunately that is just how life is. At least celiac disease is manageable and it could be a lot worse!

SaraKat Contributor

Going out to eat is a real nightmare so far. No one knows what celiac or gluten is unless I am in NYC.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BcG3987 Rookie

Comepletely understand!! I am at work right now and am staring down at a huge delicious looking pizza from my favorite place with all of my favorite toppings and honestly considered just taking a bite. I have only been doing this a month this time and this past weekend i have tried to convice myself i would be ok with just a bite, but luckily have had the willpower to talk myself out of it. I miss easy food too!!

Aphreal Contributor

yea, sometimes I really want a sandwhich on some soft bread or have rye toast with apple butter. Alas, we refrain.

Aphreal Contributor

Going out to eat is a real nightmare so far. No one knows what celiac or gluten is unless I am in NYC.

Do some research and find out what places have gluten-free items. There are maybe 3 places I go that I have their gluten-free menu memorized. Pretty much gave up on eating out other than that.

bridgetm Enthusiast

The only "fast-food" I'll eat is Noodles & Company (Pad thai's the only safe thing on their menu for me) or a bowl from Chipotle. It sucks because you can't find those off every freeway exit like McDonald's or Subway. I really miss impulse shopping. I could wander around Walmart with friends, not really needing anything, and walk out with $10 worth of junk food. Now I might grab some dark chocolate just because my friends are grabbing Pop Tarts and donuts to eat in the parking lot. In some cruel irony, the gluten-free aisle in the Mankato Walmart is located right next to the Pop Tarts :angry::o

Look at it this way... Not only are we more healthy than them, but we are also saving money. Those dollar menu stops add up.

mbrookes Community Regular

I understand!!! My idea of State Fair (starts here next week) is walking around with a lemonade and a corn dog. This year I'm making corn dogs and smuggling them in in my purse. I even have the little packets of mustard. Not like the real thing, but I can pretend!

Last year I cried all the way home because I couldn't have a corn dog. This time I'm ready!

lucia Enthusiast

I feel genuinely disabled sometimes, I feel so freakishly different than everybody else. The things they take for granted would make me sick for a week. :angry:

But other times, it's ok. I just remember to bring an avocado with me, or some nuts, whatever.

cap6 Enthusiast

We rv'd for 3 months this summer (just got home) and I got so tired of restaurants saying they had a gluten free menu only to get there and find out that their idea of gluten free was a choice of 3 different salads. I was really really tired of salads. lol Guess you have to call ahead and ask what is on the menu! What a learning precess.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    2. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,900
    • Most Online (within 30 mins)
      7,748

    sai4a
    Newest Member
    sai4a
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.