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Aphreal

By Aphreal
in Coping with Celiac Disease

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Aphreal Contributor
Aphreal
Posted

For me, today, I would LOVE some good ole cheese n crackers! Ritz roasted veggie and colby/montereyjack.

Cheese by itself (which is how I now eat it) just isn't the same.

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  • Replies 53
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jerseyangel Proficient
jerseyangel
Posted

For me, today, I would LOVE some good ole cheese n crackers! Ritz roasted veggie and colby/montereyjack.

Cheese by itself (which is how I now eat it) just isn't the same.

I don't normally crave anything but lately for some reason I would love a big coffee roll from Dunkin Donuts! They're huge--like a glazed donut/cinnamon roll combination. <drool>

Aphreal, have you tried the Glutino Crackers? Not identical to Ritz, but very good with cheese. :)

mommyto3 Contributor
mommyto3
Posted

Blueberry Fritter from Tim Hortons!! Ummmmmmmmmmmmmm.

TiffersAnn Apprentice
TiffersAnn
Posted

That's easy... Cheese-stuffed Crust Pizza Hut Pizza. Darn you for making me drool about this. Now I have to go make my own pizza for dinner. :rolleyes:

mbrookes Community Regular
mbrookes
Posted

Ah, to be able to order a beer in a restaurant or bar. I can have gluten-free beer at home, but no bars carry it. I can have a mixed drink or wine, but I love beer!

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

There's really not much I miss, but the one thing I have yet to find a gluten free replacement for is Triscuits.

heatherjane Contributor
heatherjane
Posted

I agree that Glutino is a pretty close substitute for Ritz. They're pretty good crumbled over broccoli casserole too. :)

Lately I've been craving a big fat restaurant cheeseburger with a toasted (wheat) bun and steak fries. :P

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WheatChef Apprentice
WheatChef
Posted

A soft pretzel the size of a small car with some mustard.

The Glutenator Contributor
The Glutenator
Posted

A bun...a simple, soft, fluffy, fresh bakery bun!

lynnelise Apprentice
lynnelise
Posted

Anything with phyllo dough.

Also my mother in law made apple dumplings the other day and sat beside me and proceeded to ooooh and ahhhh over them. <_< The smell was killing me and I wanted to snap her neck! lol!

SGWhiskers Collaborator
SGWhiskers
Posted

The ease of walking into a restaraunt and ordering ANYTHING without having to worry about getting sick. I don't miss much in the way of food (pizza excluded), but the convenience is what gets me. OK, but if I had to pick, Pizza Hut deep dish pizza.

mushroom Proficient
mushroom
Posted

A whole loaf of Sonoma sourdough french :D

i-geek Rookie
i-geek
Posted

The ease of walking into a restaraunt and ordering ANYTHING without having to worry about getting sick. I don't miss much in the way of food (pizza excluded), but the convenience is what gets me.

This, exactly. Oh- and I'd love a slice of pepperoni pizza from the little pizzeria down the street from my house. They always managed to brown the cheese just right.

K8ling Enthusiast
K8ling
Posted

The ease of walking into a restaraunt and ordering ANYTHING without having to worry about getting sick.

THIS THIS THIS

Also:

A huge italian sub on crispy cuban bread

A Cuban (sandwich, not the person)

BEER!

Redvines

rice crispies

rice crispy treats

hush puppies

Chick Fil A

Moe's

crusty fresh sourdough

a turkey bacon artichoke panini from Panera

a huge gooey awesome cinnamon bun

Goodness I could go on all day! :P

jackay Enthusiast
jackay
Posted

Absolutely everything that contains gluten. Don't even know where I start and probably would never stop.

wheeleezdryver Community Regular
wheeleezdryver
Posted

What's left of the Suddenly Salad (ranch & Bacon flavor) I had to make my hubby for lunch today... that stuff just smells so yummy when it's all mixed together.

And since I have to go to a meeeting this evening, along the lines of what others have said, I wouldn't mind being able to stop at ANY fast food place & know I could pick up something that was safe for me to eat. HAve to get DH Taco Bell on the way there...

cctaylor01 Newbie
cctaylor01
Posted

i second the craving for a delicious cheeseburger and fries. it hurts to even say that out loud.

sb2178 Enthusiast
sb2178
Posted

Thin crust crispy-chewy NY-style pizza. or seriously good german rye bread.

i-geek Rookie
i-geek
Posted

i second the craving for a delicious cheeseburger and fries. it hurts to even say that out loud.

Are you anywhere near a Five Guys restaurant? They only do fries in their fryers so those are safe, and you could bring your own bun and have them make you a bunless cheeseburger. In fact, now I'm wanting a burger and fries and a Five Guys trip is sounding like a good idea. :D

sherrylynn Contributor
sherrylynn
Posted
:) I would have to have a foot long subway club on parmesan bread with chipotle sauce, or taco bells burrito supreme. maybe even both. can you say bottomless pit? :lol:
Lisa Mentor
Lisa
Posted

Crusty/seedy french bread and carrot cake cup cakes w/ cream cheese frosting from Gluten Free Galley. I can't wait! B)

BUT it's gluten free!

sahm-i-am Apprentice
sahm-i-am
Posted

Cinnabon, baby!

And then a big juicy cheeseburger with a sourdough bun.

And what about... nah, better not go there! B)

Aphreal Contributor
Aphreal
Posted
  • Author

Kindred spirits I see!!! I have not tried glutino crackers (have tried others) but now that I have a word on that brand I am gunna.

Ok back to reality my non-glutard friends. I made gluten-free chicken afredo tonight and all is right with the world. Heartland pasta is very good and SO much cheaper than the other gluten-free brands.

xox

GFinDC Veteran
GFinDC
Posted

My mom's home made whole wheat bread. I could eat a whole loaf as fast she could get it out of the oven. She always made several at once.

Or her home made cinnamon rolls.

Or her chicken noodle soup, hand rolled noodles of course.

Or her tuna cassarole.

Or her lemon meringue or butterscotch pies Wow, she could have won contests with them.

Nobody cooks like my mom did.

Except her mom, (Millie) she was a hot cook too.

If you all tasted my mom's cooking, you would have all been saying that was your favorite food. I feel sorry for ya'll.

Course, with 8 of us to grab the food you had to be pretty quick on the draw too.

dilettantesteph Collaborator
dilettantesteph
Posted

Chocolate!! I am very sensitive and haven't found one I can tolerate yet, though I can tolerate cocoa nibs, washed and roasted. It is just not the same.

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    • cococo
      11 yo waiting for diagnosis

      By cococo · Posted

      Thanks @trents I'll keep that in mind.
    • trents
      11 yo waiting for diagnosis

      By trents · Posted

      One thing to be aware of is that reactions to gluten can sometimes be more severe after having been gluten free for a significant period of time. Something to think about in connection with a gluten challenge.
    • cococo
      11 yo waiting for diagnosis

      By cococo · Posted

      Hi @trents Thanks for your reply and the clarification on terminology—most appreciated. My GP has referred us to a Paediatric Gastroenterologist, and we're waiting for an appointment. She mentioned they might want to do an endoscopy or run further testing. But that often with children they try to avoid scoping them.  She also said it could take months to get an appointment, which is why she recommended starting a gluten-free diet immediately to see if there's any improvement in his symptoms, growth, and blood tests. I have an appointment in 5 weeks with the Paediatrician (who ordered all the tests)—not the Gastroenterologist. I expect the Paediatrician will also recommend a Gastroenterologist referral for further testing and diagnosis. I understand the reasons for confirming with biopsies. I'm just eager to help him feel better and I don't want to keep him eating gluten for months while waiting for a specialist when it's clearly affecting him. I really appreciate your input on this, especially your thoughts about this pointing to celiac rather than NCGS. Intuitively, it feels that way—he's always been incredibly healthy and strong, but he's suddenly wasting away. We're in Australia, so I'm not sure about benefits, etc. and needing a formal diagnosis. I’ll have to investigate.  If necessary to do a gluten challenge down the track for confirmation I'm happy to cross that bridge when I come to it. Thanks so much for your advice!
    • trents
      11 yo waiting for diagnosis

      By trents · Posted

      Welcome to the forum, @cococo!  So. let me first clarify some terminology. Gluten intolerance is a general term that can refer either to celiac disease or NCGS (Non Celiac Gluten Sensitivity or "gluten sensitivity" for short). Having said that, in common, informal usage there is still a lot of mix up in the use of the terms "gluten sensitivity" and "gluten intolerance".  Elevated DGP-IGG can certainly indicate celiac disease but the IGG tests are considered not quite as specific for celiac disease as are the IGA tests, especially the TTG-IGA. If it were the TTG-IGA that gave a 250 score it would have been grounds for declaring an official diagnosis of celiac disease without further testing in the UK and many European countries. With children, however, because their immune systems are immature, we often see their celiac disease show up in the IGG tests rather than the IGA tests. Has their been any talk about an endoscopy with biopsy of the small bowel lining to confirm or disprove a diagnosis of celiac disease? The endoscopy/biopsy is considered the gold standard of celiac disease diagnosis. Physicians are not eager to do scoping on pediatric patients, however, and try to avoid that unless there is a very good reason for it.  I think to proceed with a gluten free diet experiment at this time is a reasonable approach. If there is improvement in labs, symptoms and growth then it is reasonable to assume that there is celiac disease to blame or at least NCGS. At the end of the day, both conditions require a gluten free diet anyway. But I would also have to say that when looking at the total body of evidence you present, it looks much more like celiac disease than NCGS.  One caution, however, and that is if you are in the UK there are certain government provided benefits that incur from a formal diagnosis of celiac disease. I mention that because some of your spelling suggests that to me.
    • cococo
      11 yo waiting for diagnosis

      By cococo · Posted

      Hi all, I'd love some feedback on my 11 year old son who is waiting for a diagnosis. He has been unwell for about 6 months. His symptoms include: early morning (4/5am) nausea and vomiting, loose bowels, fatigue, headaches, aching legs, persistent dermatitis on cheeks. Recently, I noticed he wasn't growing as expected. After measuring him, we found his height had dropped from above 50th percentile to 25th, and weight from 50th percentile to 5th. I took him to our GP who confirmed he only grew 2cm in the past year and lost weight, and subsequently referred us to a paediatrician. We saw the paediatrician who ordered extremely comprehensive tests (including urine and poo testing, x-ray on wrist, hormones, thyroid, liver, kidney, diabetes checks, etc). While waiting for all results, our GP received some preliminary findings indicating coeliac disease. The GP recommended starting a gluten-free diet and referred us to a paediatric gastroenterologist. Most test results are normal except: Iron levels:  18 (normal range 20-200) Anisocytosis and Microcytosis (abnormal sized red blood cells indicating iron deficiency anaemia) Coeliac-related results: DGP IgG:     >250 (normal <15) DGP IgA:      8 (normal <15) Tissue IgA:   1 (normal <15) Tissue IgG:   1 (normal <15) Genetic markers are present for coeliac A comment was made on the blood tests that total serum IgA would be tested and commented on if below 0.07. There was no comment so I assume it wasn’t that low. While I understand it could be coeliac disease, gluten intolerance, or wheat allergy, his significant growth issues suggest coeliac. The paediatrician won't see me for 5 more weeks (because he's waiting for one more test he did on his chromosomes), but I'm concerned about waiting that long given his symptoms. Clearly he shouldn't be eating gluten regardless of the diagnosis, and I'm keen to help him feel better and start growing again, especially with puberty approaching. The blood tests were extremely comprehensive and ruled out everything except coeliac disease or a strong gluten intolerance. My GP is adamant it must be coeliac because of his symptoms. My GP said, "Don't worry about the chromosome test—that's just precautionary. His blood tests, weight loss, lack of growth, iron deficiency, fatigue, dermatitis, and other symptoms all point to coeliac." Would starting a gluten-free diet now and doing a gluten challenge later be unreasonable? (I do understand the reason to wait for a clear diagnosis, I just want him to feel better. Also, he is homeschooled so I can very much be in control of his food to ensure no cross contamination, etc) Also, does anyone have experience with highly elevated DGP IgG (but normal other results) and testing positive for coeliac? For what its worth, I personally have had many checks for Coeliac over the years and the results are always "unclear". Apparently I'm a complicated case, so I just eat gluten-free. Thanks!
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