Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anybody Have Problems With Gelatin?


Tidings

Recommended Posts

Tidings Explorer

Gelatin seems to be another substance that causes all kinds of side-effects and problems for me. Wondering if anybody else with gluten intolerance/celiac has problems with gelatin?

(Wonder, too, why so many vitamins & supplements have to use gelatin when it causes problems for many people? Guess it is a cheap binder...)

One evening we ate out at an expensive restaurant and the next morning I woke with the usual headache, swollen face/eyes, rapid heartbeat, vision problems, "poisoned" feeling and I KNEW I had been toxified with gelatin. I called and asked the Chef if anything in the dinner I ate the night before had GELATIN in it, and he said "ABSOLUTELY NOT!" I pushed further and said "ARE YOU SURE? Because I'm deathly allergic [a little melodrama never hurts] to gelatin and I'm feeling very poisoned today?"; and he finally admitted, "Well, I did use CHICKEN FEET in the reduction sauce!" UGH!!! I didn't know which was more sickening--consuming gelatin or the idea of eating CHICKEN FEET!??? Blecchhhh!

At any rate, that little encounter made me doubly-confident that I can TRUST my intuition and body reactions; our bodies KNOW when we've been unintentionally "poisoned" with one of our allergen-substances. (P.S. Have not gone back to that particular restaurant since!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jststric Contributor

I have not noticed issues with gelatin....yet, lol. I've learned to never say never. I wonder if it could gave been a simple case if cross contamination with pans or something? And chicken feet??? Really??? Hard to get past THAT visual!

TrillumHunter Enthusiast

Gelatin is a natural substance that forms when animal bones are boiled. Every time you eat a pot roast, roasted chicken or even anything made with broth, you are consuming gelatin in varying quantities.

I'm not saying there isn't something bothering you, but I wouldn't be too quick to point to gelatin.

Chicken feet, by the way, made the richest, most flavorful broth imaginable. They are tasty on their own as well, as millions of Chinese people will testify.

cassP Contributor

you were at a restaurant- and was your meal gluten free??? its more likely IMHO that you either ingested gluten, dairy, MSG, or some kind of starch added to a dish... than had an issue with gelatin.

for example- i was in quite a bit of abdominal stress after a gluten free meal at Pei Wei- and i narrowed it down to the Potato Starch that they coated the chicken with. i could eat a couple of fries and be fine- but this potato starch was gelatinous and processed- it was gross. i asked if they could just sautee the chicken next time

Tidings Explorer

Gelatin is a natural substance that forms when animal bones are boiled. Every time you eat a pot roast, roasted chicken or even anything made with broth, you are consuming gelatin in varying quantities.

I'm not saying there isn't something bothering you, but I wouldn't be too quick to point to gelatin.

Chicken feet, by the way, made the richest, most flavorful broth imaginable. They are tasty on their own as well, as millions of Chinese people will testify.

Well, to each his or her own, but you'll never find me willingly eating CHICKEN FEET! LOL!

By the way, there are a lot of articles online about allergy or hypersensitivity to gelatin, such as:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

and so on...

And here's a few gross shots of chicken feet:

Open Original Shared Link

Tidings Explorer

you were at a restaurant- and was your meal gluten free??? its more likely IMHO that you either ingested gluten, dairy, MSG, or some kind of starch added to a dish... than had an issue with gelatin.

for example- i was in quite a bit of abdominal stress after a gluten free meal at Pei Wei- and i narrowed it down to the Potato Starch that they coated the chicken with. i could eat a couple of fries and be fine- but this potato starch was gelatinous and processed- it was gross. i asked if they could just sautee the chicken next time

Hi cassP,

I think it was the gelatin, because I recognized the "gelatin hangover" from many, many prior episodes, which is why I called and asked Chef if there had been any gelatin in the meal, which it turned out there was. (Interesting that your potato starch was "gelatinous"! LOL)

cassP Contributor

Hi cassP,

I think it was the gelatin, because I recognized the "gelatin hangover" from many, many prior episodes, which is why I called and asked Chef if there had been any gelatin in the meal, which it turned out there was. (Interesting that your potato starch was "gelatinous"! LOL)

ya it was gross. i also think there is something to this overprocessed "frankenstein" food.

i had a NIGHTMARISH episode the other day with High Maltose Corn Syrup!!! lots of debate over the internet over if it hurts celiacs or not.... but basically this one article said that the HMCS is "Relatively New" to human consumption- and that the effects on the human body may not be known yet.

great...... it's like we're part of an experiment


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ksymonds84 Enthusiast

Well, to each his or her own, but you'll never find me willingly eating CHICKEN FEET! LOL!

By the way, there are a lot of articles online about allergy or hypersensitivity to gelatin, such as:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

and so on...

And here's a few gross shots of chicken feet:

Open Original Shared Link

Very interesting. Every time I made a homemade pizza crust using unflavored gelatin, I always reacted. Didn't know why but stopped using the gelatin. All the other ingredients in the pizza I am fine with.

Tidings Explorer

Very interesting. Every time I made a homemade pizza crust using unflavored gelatin, I always reacted. Didn't know why but stopped using the gelatin. All the other ingredients in the pizza I am fine with.

Hi Kathy,

Some sites online claim that there can be MSG in some gelatins (processed kind), which might explain some folks' reaction to the gelatin in foods they consume.

What I find odd (intriguing) is that so many of the foods/substances that cause a reaction in me are the "GLUEY" kind that are used to hold foodstuffs together or provide smooth consistency, like GELATIN, WHEY, CARRAGEENAN, PECTIN. I wish I had studied chemistry or molecular biology or something that would assist me in comprehending WHY these substances cause similar "poisoned" effects in me! Remember, too, that GLUTEN contains a "gluey" substance. Maybe the operative word in all these problems foodstuffs is GLUE!! I remember as a kid using WHITE FLOUR as a PASTE SUBSTITUTE for little-kid-art-projects. I figure the "GLUE" in the gluten is "shellacking" our guts and making them nonfunctional. But do the other STICKY, GLUEY substances like WHEY, CARRAGEENAN, PECTIN, GELATIN, etc. do a similar thing to our insides? It would sure be nice if somebody would research it and let us know!

:-D

Tidings Explorer

ya it was gross. i also think there is something to this overprocessed "frankenstein" food.

i had a NIGHTMARISH episode the other day with High Maltose Corn Syrup!!! lots of debate over the internet over if it hurts celiacs or not.... but basically this one article said that the HMCS is "Relatively New" to human consumption- and that the effects on the human body may not be known yet.

great...... it's like we're part of an experiment

"Frankinstein food" is a good way to describe some of this stuff! Recall in the old monster movies there often was a creature/being/monster that took the form of a GELATINOUS SUBSTANCE! UGHHHH. !

ksymonds84 Enthusiast

Hi Kathy,

Some sites online claim that there can be MSG in some gelatins (processed kind), which might explain some folks' reaction to the gelatin in foods they consume.

What I find odd (intriguing) is that so many of the foods/substances that cause a reaction in me are the "GLUEY" kind that are used to hold foodstuffs together or provide smooth consistency, like GELATIN, WHEY, CARRAGEENAN, PECTIN. I wish I had studied chemistry or molecular biology or something that would assist me in comprehending WHY these substances cause similar "poisoned" effects in me! Remember, too, that GLUTEN contains a "gluey" substance. Maybe the operative word in all these problems foodstuffs is GLUE!! I remember as a kid using WHITE FLOUR as a PASTE SUBSTITUTE for little-kid-art-projects. I figure the "GLUE" in the gluten is "shellacking" our guts and making them nonfunctional. But do the other STICKY, GLUEY substances like WHEY, CARRAGEENAN, PECTIN, GELATIN, etc. do a similar thing to our insides? It would sure be nice if somebody would research it and let us know!

:-D

You are right it is intriguing. I also have fructose malabsorption and pectin is a big no for me. Actually anything prebiotic (oligosaccharides and Fructo-oligosaccharides)tends to set a lot of us off such as chickory root, inulin, ect. Probiotics bother some of us as well so we don't use these as supplements or eat yogurt such as Fiber One, since it will make us worse. Anything too fermented such as sauerkraut also will do numbers on our g.i. Its part of the low fodmap diet that many with FM follow.

I've also heard that Gelatin is a natural source for sulphites and some that react to sulphites will react to Gelatin. I only know that red wine will make me look like rudolph and I blame the higher sulphites in red wine for that. Also cheap wines no matter what the varietal, will get me glowing :)

mbrookes Community Regular

Life is too short to drink bad wine. Stick with the good stuff. It isn't all expensive. Check out the reccommended ones in Wine Spectator magazine (I read it free at the library) Some of the highly rated ones are under $20 a bottle.

RiceGuy Collaborator

I use agar agar in place of gelatin. Works quite well.

As for supplements, Country Life and NOW Foods make many which use vegetarian capsules made from plant cellulose, not gelatin.

Chicken feet...yuck! I don't even want to contemplate all the disgusting things those chickens walk on in those chicken coops.

Tidings Explorer

Chicken feet...yuck! I don't even want to contemplate all the disgusting things those chickens walk on in those chicken coops.

EXACTLY!!! LOL!

By the way, when they say vegetarian cellulose, you don't suppose there's a chance they could be talking about a gluten-containing grain (is grain a vegetable?), do you? Have noticed a lot of products specify plant cellulose, but not sure what exactly their source is. ??

ksymonds84 Enthusiast

Life is too short to drink bad wine. Stick with the good stuff. It isn't all expensive. Check out the reccommended ones in Wine Spectator magazine (I read it free at the library) Some of the highly rated ones are under $20 a bottle.

I know what you mean. I should have been more clear in my original post. The fine dining restaurant that my hubby and I own has been awarded the Wine Spectator award for 5 years in a row now. It happens when we have to go to awful political events ect and they serve us nasty wine :(

You are correct about finding decent wine for less.

Tidings Explorer

You are right it is intriguing. I also have fructose malabsorption and pectin is a big no for me. Actually anything prebiotic (oligosaccharides and Fructo-oligosaccharides)tends to set a lot of us off such as chickory root, inulin, ect. Probiotics bother some of us as well so we don't use these as supplements or eat yogurt such as Fiber One, since it will make us worse. Anything too fermented such as sauerkraut also will do numbers on our g.i. Its part of the low fodmap diet that many with FM follow.

I've also heard that Gelatin is a natural source for sulphites and some that react to sulphites will react to Gelatin. I only know that red wine will make me look like rudolph and I blame the higher sulphites in red wine for that. Also cheap wines no matter what the varietal, will get me glowing :)

This stuff about sulphites is very interesting. Had not really considered sulphites as a problem, but when I look at the list on the following link, I do see several foods/substances that are known to provoke a reaction in my system:

Open Original Shared Link

Substances like gelatin, pectin, chocolate (sometimes)... Not sure if it's the sulphites themselves that cause me problems or something else. What's interesting is that for several months earlier this year, I was taking a couple eyedrops for glaucoma that contained sulphites... I had a LOT of systemic problems during those months... Maybe a connection...

Open Original Shared Link

It is also interesting that adrenaline/epinephrine (which causes heart palpitations and irregular heartbeat when I have it) is one of the things used to counteract a severe sulfite reaction! (Maybe the old "hair of the dog" remedy at play?)

  • 1 year later...
runnergirl88 Newbie

I have the same problem! You are not alone!

I notice that if I eat jell-o or even vitamins/meds that contain gelatin I don't feel well. Same reaction with the headache, joint pain, puffy eyes, and sleeping problems. Also, my lymph nodes seem swollen my underarms heart and groin...People keep telling me I'm crazy and its "impossible" nope...anything's possible. You're not alone trust me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.