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What's Up With This?

nananana

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nananana Newbie
nananana
Posted

I went gluten-free in support of my husband. Totally unexpectedly, my health began to improve. A bumpy, sometimes itchy, rash just under the skin on my arms disappeared! My hair quit falling out. Nails were stronger. Mind sharper. Stomach flattened. A lot of "little things" got better.

Headaches were something I never had. Not seldom, NEVER! Never had allergies -runny nose, itchy eyes, scratchy throat - never a sinus infection. (all of my siblings do)

BUT, after 5 weeks of gluten-free, I suddenly had a terrible headache at my temples and along the back of my neck. I checked the label and there it was, we had accidently eaten gluten! My stomach became upset - was I becoming a hypochondriac?? By the end of the day the rash and brain fog were back. And now, whenever a headache comes, we check for the gluten connection. And it is always there!

Does this sound crazy to you? I never had a headache eating LOTS of gluten - but now that I've been gluten-free, I react to a small crumb of wheat? Has anyone else experienced this?

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T.H. Community Regular
T.H.
Posted

I believe this is where I sound like granpa Simpson and say: welcome to my world! ;)

Most Celiacs notice that their symptoms to gluten increase - or start in the first place - after they have been gluten free for a while. So...sounds like you may have found out something about your health, eh?

That is completely where I'm at, although I was diagnosed officially (due to something else entirely). I never noticed a reaction to eating gluten. I had health problems, but they didn't coincide specifically to me eating something and then reacting, you know? Now, after a year away from gluten? If I get the tiniest, teeniest amount, I get vertigo, nausea, headaches, vomiting.

Blech.

So your experience is completely within the Celiac realm of possibility. Although it congratulations on figuring out something that is making you feel better and healthier!!

psawyer Proficient
psawyer
Posted

It seems to be fairly common for people to develop a "tolerance" level when constantly eating gluten, and then lose it after being gluten-free for a while.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Your experiences are really common. I never had stomach problems prior to going gluten free. I had other symptoms, but not the typical digestive ones. Now the smallest crumb and I have bad stomach pain and D for days in addition to all my other symptoms. It sounds like you have a gluten intolerance. Welcome to the board!

nananana Newbie
nananana
Posted
  • Author

I can't thank you all enough for explaining this to me! This site has really been helpful. I've been looking over all of the gluten health issues and unfortunately it reads like my family's history.

We have been off gluten for about 6 weeeks now, so should we send for the Enterolab test or is there another one that would give us an accurate result?

ravenwoodglass Mentor
ravenwoodglass
Posted

I can't thank you all enough for explaining this to me! This site has really been helpful. I've been looking over all of the gluten health issues and unfortunately it reads like my family's history.

We have been off gluten for about 6 weeeks now, so should we send for the Enterolab test or is there another one that would give us an accurate result?

You could go with Enterolab but keep in mind that they don't diagnose they look for antibodies in the stool but that is not considered diagnostic by most doctors. For all the other available tests you would need to go back on gluten for a couple of months before testing.

nananana Newbie
nananana
Posted
  • Author

My husband is doing so well - I don't think we could take a chance! This diet has saved his life . . . . .

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      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
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