Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ugh! Why Do I Still Feel Sick?


LMac

Recommended Posts

LMac Newbie

I've been gluten-free for just over 2 weeks. I'm self diagnosed, but my father has celiac disease and a sugar/fructose intolerance, so I recognized the gluten issue. My digestion has gotten so much better (no more D and less bloating).

However, since going gluten free I have been getting headaches more often, almost daily. I have bouts of bloating, not as bad as before but definitely still present. I feel nauseous more days than not. I woke up this morning and within 30 minutes felt so nauseous I threw up. I've never had that happen before (and no, I'm not pregnant)

I've heard that symptoms of being glutened can take as much as a day or two to show up. So my question is, how on earth do I figure out what is making me feel sick? Is it slipping up on the gluten or could it be another allergy? My biggest fear is that it's soy. I've given up dairy (on the chance it effects me) but as a vegetarian, soy is a HUGE part of my diet. I eat frequently enough, eat fruits and veggies and drink lots of water.

This is so frustrating. Any help would be great.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf-soph Apprentice

I've been gluten-free for just over 2 weeks. I'm self diagnosed, but my father has celiac disease and a sugar/fructose intolerance, so I recognized the gluten issue. My digestion has gotten so much better (no more D and less bloating).

However, since going gluten free I have been getting headaches more often, almost daily. I have bouts of bloating, not as bad as before but definitely still present. I feel nauseous more days than not. I woke up this morning and within 30 minutes felt so nauseous I threw up. I've never had that happen before (and no, I'm not pregnant)

I've heard that symptoms of being glutened can take as much as a day or two to show up. So my question is, how on earth do I figure out what is making me feel sick? Is it slipping up on the gluten or could it be another allergy? My biggest fear is that it's soy. I've given up dairy (on the chance it effects me) but as a vegetarian, soy is a HUGE part of my diet. I eat frequently enough, eat fruits and veggies and drink lots of water.

This is so frustrating. Any help would be great.

It sounds more likely that you are going through a gluten withdrawal than being glutened. I'd give it a couple more weeks before you worry too much about it being a gluten exposure. You are giving your body a big shock by taking out gluten, and a lot of people feel worse before they feel better. Gluten can act on the brain, so your headaches could be withdrawal. The fact that your digestion is better is a big plus.

If you still feel off in a couple of weeks then maybe start looking into cc or other food intolerances, but until then I would just eat as well as you can, get plenty of rest and see if you can ride it out.

Hope you feel better soon :)

T.H. Community Regular

Well, I know that I felt very sick after going gluten free - nausea and headaches were part of my reaction, too. And it definitely was hidden gluten for me. I didn't feel nauseous at all before going gluten-free, but it totally hit me afterward, within days.

And soy - that does get CC by gluten fairly frequently, yeah, I'm sorry to say.

Honestly? I'd try to drop everything down to as basic as you can get it. Fruits and veggies - make sure you get something with carbs/fat, like potatoes, sweet potatoes, taro root, avocados. I'd usually say meat, but with you as a vegetarian, it gets tricky. Beans, seeds, nuts, grains - they all have higher risks of CC due to processing and growing (soy is often grown on the same fields as wheat after its been harvested, for example. :( ). Perhaps you can stick to the sources for those that are certified gluten-free down to a certain level. Bob's red mill is processed in a gluten-free facility and tests for 20ppm or less. Pamela's flour mixtures are made in gluten-free facilities and test at 5ppm gluten or less. Lundberg rice is made in a gluten-free facility, but they told me they don't test, so I've no idea what gluten level their's is at. But those might be good choices, at first. None of them do beans, I don't think (not in a gluten-free facility, anyway). However, Ancient Harvest quinoa might be a good choice - many people can tolerate that, and it's a full protein. Along with amaranth, which Bob's Red Mill does process.

You could keep eating soy, but it wouldn't be a bad thing to avoid it for just a week, yeah? Then you could try to add it back in and see how you do. At the very least, dropping everything would help you figure out whether you're reacting to the lack of gluten, or the continued presence of it.

Good luck!

sandiz Apprentice

I've been gluten-free for just over 2 weeks. I'm self diagnosed, but my father has celiac disease and a sugar/fructose intolerance, so I recognized the gluten issue. My digestion has gotten so much better (no more D and less bloating).

However, since going gluten free I have been getting headaches more often, almost daily. I have bouts of bloating, not as bad as before but definitely still present. I feel nauseous more days than not. I woke up this morning and within 30 minutes felt so nauseous I threw up. I've never had that happen before (and no, I'm not pregnant)

I've heard that symptoms of being glutened can take as much as a day or two to show up. So my question is, how on earth do I figure out what is making me feel sick? Is it slipping up on the gluten or could it be another allergy? My biggest fear is that it's soy. I've given up dairy (on the chance it effects me) but as a vegetarian, soy is a HUGE part of my diet. I eat frequently enough, eat fruits and veggies and drink lots of water.

This is so frustrating. Any help would be great.

Read your labels, Soya sauce has wheat in it to ferment it faster. That could have something to do with it.

GlutenFreeManna Rising Star

You could try keeping a food diary to see if you can see a pattern. Be sure you check all ingredients carefully on any processed foods you buy. A lot of the veggie alternatives have wheat in them (Like Boca Burgers) and not all soy milk is gluten free (I think Soy Dream is processed with barley water, but I might be wrong on the brand since I don't drink soy milk). I would take it down as basic as you can and avoid most processed things for a while. Eat fruit and veggies and don't go overboard on the raw things. I know in the early stages for me my stomach could not handle too much raw veggies and I could not do beans at all. Chickpeas, lentils, and nut butters were not as much of a problem for me as whole nuts or beans.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,996
    • Most Online (within 30 mins)
      7,748

    Sasha Bondarev
    Newest Member
    Sasha Bondarev
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.