Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help Me Understand What Food Intolerances I Actually Have?


Trymester

Recommended Posts

Trymester Contributor

My Enterolab results show that I am sensitive to Gluten.

Previous and Current blood tests say that I am not allergic to Gluten, but do claim me as allergic to some other things:

May 31, 2009

Corn Class 2

Soy Class 1

Egg White Class 0

Milk Class 0

Wheat Class 0

Peanut Class 2

Sesame Seed Class 2

Walnut Class 1

October 18, 2010

Corn Class 1

Soy Class 0

Egg White Class 0

Milk Class 0

Wheat Class 0

Peanut Class 1

Sesame Seed Class 1

Walnut Class 1

What does it mean that my corn and nuts numbers were class 2 and are now class 1? Is it just different ways to calculate the same facts? If Enterolab (October 2010) had me at 36 units (Fecal Anti-gliadin IgA), when the normal is less than 10 units, and that makes for a clear intolerance to gluten, then why does it not show up at all on blood IgE tests?

I was perfectly ready to start my gluten-free diet, but both of my blood tests say I'm allergic to corn, and the older one said I'm allergic to soy. These were to be my main wheat replacements. What should I do?

Supposedly, I'm not allergic to milk, but I planned on letting go of it also. My fecal anti-casein IgA came out to 10 units, and the normal is supposedly under 10.

In conclusion, I will do the gluten-free, but should I abstain from corn, soy, and nuts as well? Why do these tests check for these foods, and not others? If they checked for peanuts, sesame (which was 1 of my main replacement foods in hummus), and walnuts, then why didn't they check for pecans, almonds, hazelnuts, etc.?

What do you guys make of this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jeanne- Rookie

Hi Trymester,

I too am allergic to corn and soy. I have used a combination of rice flour, potato starch, and tapioca flour to replace my wheat flour (proportions can be found on the King Arthur Flour web site, it is located at the bottom of their gluten free recipes). It helps if you can make as much homemade food as you can. Bob's Red Mill has a gluten free flour that is good for baking cakes, it doesn't have the grittiness that rice flour can have.

We use rice milk to replace dairy. Rice Dream claims to be gluten free although I did see a post that said it truely wasn't. Guess it depends on how sensitive you are to gluten.

When my son was tested for food allergies, he was positive for milk and two kinds of cheeses, but negative for two other kind of cheeses. The doctor said that the protien structure was slightly different in each cheese. Makes me wonder if the protien structure is slightly different in each kind of nut as well.

Looking for answers Contributor

Have you continued to eat the foods you're allergic to? You have to be eating the foods for your tests to be accurate.

Trymester Contributor

I am yet to stop eating any foods at all.

ravenwoodglass Mentor

First off celiac does not show up on allergy testing. You should eliminate the stuff that you are reacting to for a bit. You may find after you have been gluten free for a bit that your other intolerances will improve. Leave them out till you are fully healed on the gluten free diet and then add the others back in one at a time to see if you are tolerating them.

Trymester Contributor

First off celiac does not show up on allergy testing. You should eliminate the stuff that you are reacting to for a bit. You may find after you have been gluten free for a bit that your other intolerances will improve. Leave them out till you are fully healed on the gluten free diet and then add the others back in one at a time to see if you are tolerating them.

Thanks for this. I will do. And, as far as I know though, I am not reacting to any corn, soy, or nuts.

mushroom Proficient

IgE testing is not necessarily predictive of how you will react to a food when you ingest it. They did not check for the other nuts because they only check for the most common allergens, of which sesame seeds just recently made the list.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

Because Allergies & Intolerances & Autoimmune Diseases are all completely different things. you could have one & not the other or both

there's a moderator on here who says those allergy tests are not conclusive... my theory and own allergic experiences: is that they body may not always be releasing the same amount of histamines ???? i read somewhere that when you are stressed- your body makes MORE histamines which would elevate your allergic responses-

i have definitely experienced different levels of allergic responses

Trymester Contributor

Even though I came out low on the allergy scale for things like nuts and walnuts, what exactly does that mean for almonds? Is anyone here allergic to almonds?

arened Rookie

I went to an allergist when I was trying to figure out what was causing my symptoms (later figured out I had Celiac). They did a blood test called the RAST, which tests for the most common IgE allergies (these are immediate reactions). Common signs of IgE reactions are itching and immediate swelling. The panel they tested me for was the same as yours, which are the most common allergens. I also did not react to wheat on that test. Class 0, 1, 2, etc. are the level that you reacted. The higher the number, the more IgE antibodies you have in your body for those foods. So, you will react more to them.

The anti-gliandin test from Enterolab (which I also completed) is an IgG reaction. This is a delayed reaction (not immediate like IgE). It is more likely to show you food intolerances and symptoms could include many things like fluid retention, joint pain, fatigue, GI upset, etc.

There is a Celiac panel, which is a blood test, that you can have completed from your Primary Care Physician. If you haven't gone on a gluten-free diet yet, you could give this blood test a try.

I was positive on enterolab for anti-gliandin, then had the blood test done only recently and it was also positive. My IgE blood test was negative. I hope this helps!

Skylark Collaborator

I'm not sure why you would expect fecal IgA and blood IgE tests to come out the same. :lol: It's a totally different part of your immune system.

The usual thing with RAST is to eliminate all the foods that came up positive. Then you introduce them one at a time to see if you have a reaction from eating the food. They are not conclusive because your body is not a test tube. The test is simplified by necessity, and lots of things happen to foods between your mouth and your bloodstream.

The doctor who ordered the tests will generally help with setting up the diet and challenge schedule. Food allergies come and go, as you see with your shifting test results, so if you have a food that's only a mild reaction, it's reasonable to test it again in a few years.

As far as corn and soy, it looks like your wheat replacements will have to be rice and potatoes.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,330
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.