Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Rib Cage Pain Question...

SaraKat

Recommended Posts

SaraKat Contributor
SaraKat
Posted

Mine is 95% of the time on the left side. In the last 12 months I have had a CT scan, chest XRAY, AB ultrasound, and an endoscopy. All they found was celiac, so I am guessing it is the celiac, but it is scary how bad the pain is.

I was beginning to think something with my pancreas, but all other tests were normal, so I am led to think it is a celiac thing.

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyberprof Enthusiast
cyberprof
Posted

Mine is 95% of the time on the left side. In the last 12 months I have had a CT scan, chest XRAY, AB ultrasound, and an endoscopy. All they found was celiac, so I am guessing it is the celiac, but it is scary how bad the pain is.

I was beginning to think something with my pancreas, but all other tests were normal, so I am led to think it is a celiac thing.

Thanks!

I had the same pain and had all the same tests. Negative on anything that could cause pain. Pain went away after I was reliably gluten-free - maybe 2-3 months. Hope your pain goes away soon.

julandjo Explorer
julandjo
Posted

Always on the left side. I've had so many tests and procedures done, thinking it was my heart, and then maybe esophageal spasming, etc... nobody has ever found anything except the celiac and a vit. D deficiency. It's reassuring that it's probably not my heart, but boy does it feel like it is!

HardcoreDior Newbie
HardcoreDior
Posted

Hey,

You're not alone, I have that pain too. I have had similar tests done, all negative, and I am also assuming it is celiac.

I have been gluten free for about 2 months now, and it hasn't gone away yet. However, I did also figure out that I am tapioca intolerant a few weeks ago, so it may be a while longer for me. . .

I hope your pain, and mine, goes away soon! But you're definitely not alone.

HardcoreDior Newbie
HardcoreDior
Posted

Oh, and mine is always on the left side too.

julandjo Explorer
julandjo
Posted

You guys, I can't tell you how reassuring this is to read! Not that I wish these sensations on anyone, but for years now I've been fairly convinced that something is so wrong with me that maybe I'd die suddenly (no joke) and doctors wouldn't figure it out until my autopsy. Thank you so much for sharing what you've shared here!

SaraKat Contributor
SaraKat
Posted
  • Author

Dior- how did you find out about the tapioca thing? I am wondering if I should get additional food testing done.

JulandJo- This is definitely reassuring, I have seriously had the same thoughts!! I said to my husband- how can I be in this much pain and not be dead yet. That is how bad it is!! I even went to an oncologist before the celiac diagnosis, I thought it was cancer.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


WheatChef Apprentice
WheatChef
Posted

Almost every other person I talk to with a gluten intolerance gets that pain on the left side in the region of the spleen. Pain on the right side would be possibly related to the gallbladder and possibly a different condition.

julandjo Explorer
julandjo
Posted

JulandJo- This is definitely reassuring, I have seriously had the same thoughts!! I said to my husband- how can I be in this much pain and not be dead yet. That is how bad it is!! I even went to an oncologist before the celiac diagnosis, I thought it was cancer.

Hugs to you! I know, I've vacillated between thinking it's my heart, to maybe lung cancer, to "well, even though it feels like it's inside my chest, maybe it's really breast cancer". After reading these chest pain threads today I called my husband and my mom and told them all about it. This has seriously made my whole month!

kayo Explorer
kayo
Posted

I had that same pain for years and had so many tests, all negative. Turns out it was SIBO (small intestine bacterial overgrowth). I've since been treated (round of antibiotics) and I'm doing well. I have not had that pain since treatment. I can even tolerate cassein now. I'm able to have lactose free yogurt and lactose free yogurt cheese. I also follow the FODMAP diet to keep the SIBO at bay. Knock on wood!

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

You guys, I can't tell you how reassuring this is to read! Not that I wish these sensations on anyone, but for years now I've been fairly convinced that something is so wrong with me that maybe I'd die suddenly (no joke) and doctors wouldn't figure it out until my autopsy. Thank you so much for sharing what you've shared here!

OMG I have had these thoughts as well! I went to see a pulmonologist today sure I had lung disease or cancer or something. He spent a long time basically telling me I have GERD and I need to lose weight. I already know I need to lose weight (and I have been working on it) but this doctor had no idea about gluten. I don't think I have GERD either after looking it up. I told him I don't eat gluten, dairy or soy and then when he was giving me advice about what to eat he said I should not eat things like pizza and fried chicken! I said I already CAN'T eat those things (Unless I make them gluten free and thats a special treat). I eat grilled or baked chicken and steamed veggies mostly. Then he said I could have a sandwhich every once in a while if I ate it on whole wheat or multigrain bread instead of white. :o At least I wasn't talking to a GI doctor, but still annoyed me.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.