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We Are Waiting Forever To Get A Diagnosis!

kimblee322

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kimblee322 Newbie
kimblee322
Posted

Good morning,

I am new here...have been reading test results here and there and all I am doing is getting myself more and more confused. My 4 year old just had the celiac panel done about a month ago. our crazy GI doc's policy is that they do not discuss test results over the phone for any reason, good or bad, so i chose to have the results mailed to me. I must have been crazy when i thought that it would just say + or - overall for celiac. HAHAHAHAHA

Anyway, here are his numbers. From what I have read it seems that he will be a negative for celiac. funny though, all of his problems really started when he started getting into bread in july! he never had any stomach issues before, and since he has started eating sandwiches and stuff he's had intermittent vomiting about every month or so. It is very frustrating especially since I think these results mean he is not celiac. Wish we had an answer!

Here we go:

total IgA= 170 (upper limit on the lab says 159)

TTG IgA <1.2

TTG IgG <1.2 f (footnote but there is none!)

Endomysial IgA negative f (again footnote with nothing)

He also has high platelets, lymph, EOS, and CO2. Low BUN.

We go back to the doctor on Wednesday...guess we will have to wait till then.

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Skylark Collaborator
Skylark
Posted

To help with the suspense, that is a completely negative panel. There is a such thing as non-celiac gluten intolerance, and also wheat allergy. I's tricky to get positive bloodwork on kids. The next step would be an endoscopy with a biopsy. Then you try him on the gluten-free diet anyway.

kimblee322 Newbie
kimblee322
Posted
  • Author

To help with the suspense, that is a completely negative panel. There is a such thing as non-celiac gluten intolerance, and also wheat allergy. I's tricky to get positive bloodwork on kids. The next step would be an endoscopy with a biopsy. Then you try him on the gluten-free diet anyway.

Thanks so much. That is what I suspected. Not that I wish my child to have to go gluten free or have celiac, I just wish that I had an answer to all of his problems. I wonder what that high total IgA could mean? Maybe some other type of allergy...

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