Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi, I Am New!

hrowe

By hrowe
in Introduce Yourself / Share Stuff

Recommended Posts

hrowe Newbie
hrowe
Posted

I was recently diagnosed with gluten sensitivity by getting an enterolab test. I also tested borderline for a dairy allergy so I am off dairy for 6 months also. My mom has always had stomach issues, has had part of her stomach removed, cannot absorb nutrients, needs blood transfusions and iron injections. I also have struggled with stomach pain and severe migraines all my life. I started seeing the chiropractor and he immediately wanted to test me for gluten intolerance. He recommended a stool test as the blood tests are often false negative. It came back positive. I went through a depression and still am, since I love to eat and I love food and cooking. I have only been off gluten (not perfectly- but I have tried to be really strict the past week) for three weeks. For most of these three weeks I have felt SO SICK, migraines every day, tired, sick to my stomach and a hollow feeling in my stomach. From what I have read, this is normal gluten detox symptoms. I just want it to go away!! I hope I am starting to get over it. I now have a bad sinus pain above my left eyebrow, don't know what that's from!!

Anyway, I look forward to becoming a part of this community!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dixiebell Contributor
Dixiebell
Posted

Welcome!

It will get better.

GFinDC Veteran
GFinDC
Posted

Welcome. Some people do indeed have withdrawal symptoms. Stick around and read read read and ask questions questions questions. :-) You might get some benefit from a pro-biotic and also enzymes.

Judy3 Contributor
Judy3
Posted

Hi everyone,

I am new here too. Just recently diagnosed with Celiac myself. I've had stomach problems since I was a teenager but in the past two years it's gotten worse with each passing month. To the point that I had nausea, vomiting, severe pain and diarrhea with every meal I've been on a gluten free diet for a week now and have gone from that to being able to eat at least small meals with none of the symptoms except some pain that I wouldn't call severe anymore. I've been reading and reading about gluten free foods and Celiac and it's a bit overwhelming so thought I'd drop in here to see if I can learn something from all of you. Thanks for having a support group for this life changing (for the better I hope) diagnosis.

*Judy3

GFinDC Veteran
GFinDC
Posted

Hi everyone,

I am new here too. Just recently diagnosed with Celiac myself. I've had stomach problems since I was a teenager but in the past two years it's gotten worse with each passing month. To the point that I had nausea, vomiting, severe pain and diarrhea with every meal I've been on a gluten free diet for a week now and have gone from that to being able to eat at least small meals with none of the symptoms except some pain that I wouldn't call severe anymore. I've been reading and reading about gluten free foods and Celiac and it's a bit overwhelming so thought I'd drop in here to see if I can learn something from all of you. Thanks for having a support group for this life changing (for the better I hope) diagnosis.

*Judy3

Welcome to you too Judy3! Glad you found us. I hope you are doing well on your gluten-free diet start. It is nice to have beginners to the gluten-free diet come around since we were all beginners at one time too. Take a look around, we have a great recipe / cooking section with cooking tips and the ingredients labeling section helps with finding about safe foods. There are also a lot of great articles on the main site about celiac disease and eating gluten-free. etc. Also a gab/chat forum in case you want to chew the fat.

At the top right side of the forum is a "view new content" link that will list all the recent threads. Very handy for catching up on whats a happenin'. Threads you have posted in will have pencil in the icon. Threads I have posted in won't look any different to you although I think they should be glowing gold or silver. :o:D Just kidding! I have been hanging around the silly thread to much I guess.

:D

Judy3 Contributor
Judy3
Posted

Welcome to you too Judy3! Glad you found us. I hope you are doing well on your gluten-free diet start. It is nice to have beginners to the gluten-free diet come around since we were all beginners at one time too. Take a look around, we have a great recipe / cooking section with cooking tips and the ingredients labeling section helps with finding about safe foods. There are also a lot of great articles on the main site about celiac disease and eating gluten-free. etc. Also a gab/chat forum in case you want to chew the fat.

At the top right side of the forum is a "view new content" link that will list all the recent threads. Very handy for catching up on whats a happenin'. Threads you have posted in will have pencil in the icon. Threads I have posted in won't look any different to you although I think they should be glowing gold or silver. :o:D Just kidding! I have been hanging around the silly thread to much I guess.

:D

Thanks for the nice welcome. I have a question right off the bat! Now I was very sick for the last few months with no energy but still went to work everyday despite my desire to stay in bed and just vomit from home. LOL (thank god I have a sense of humor) My question is: Now that I'm on the gluten free diet (it's been almost a week) I seem to have this incredible energy to do anything. I have never been like this in my life. I cleaned the whole house today, actually broke a sweat and I'm still raring to go. Is that weird or is that common when you get off the stuff that was making you sick? I'm amazed and angry at the same time because if they'd have found this years ago instead of making me take antacids that didn't work for the last ten years I could have been an energetic woman for a long time..!! Ok done being angry now just relieved that this diet makes me feel so good. :0)

*Judy

Dixiebell Contributor
Dixiebell
Posted

It took me a little longer than that but I know what you mean. Most days I am able to function all day with out feeling so tired when before I needed a nap after sweeping one room.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Judy3 Contributor
Judy3
Posted

Thanks for your reply Dixiebell. I don't know what to think. I've never felt this good in my life. It seems odd that just a week would do that but hey I'm not going to knock it. I still have stomach pain when I eat but no nausea, vomiting, or diarrhea (thank god). We'll see if this stays this way or if it's just' OMG I'm not sick anymore euphoria..' LOL

GFinDC Veteran
GFinDC
Posted

That can surely happen Judy3. I got a lot more energey when I frist wentGF also. It didn't last a long time for me as I developed additional food intolerances. But increased energy makes sense if you think about it. Your body has been fighting a battle on two fronts. On one side your immune system has been creating a flood of new antibody soldiers everyday to attack you gut's villi. An on gut's side it has been fighting every day trying to replace the wounded villi soldiers. All of a sudden there is a lull in the battle (gluten-free diet) and the body can take a breather from the all-out war of self destruction. Plus you may be able to start absorbing nutrients more efficiently. Both are good things for your health.

Judy3 Contributor
Judy3
Posted

Thanks GFinDC. Like I said in my post before, energy abounds but I still have pain about an hour after I eat but it's dull pain not the sharp stabbing pain I had before. I hope the absorption of food and nutrients gets better. I've seen whole pills, scrambled eggs, carrots and brown rice and many other foods in their identifiable form in the toilet if you get my drift. :blink: They did a gastic emptying study on me a month ago and I had to eat radioactive scrambled eggs. The doctor said your study showed normal movement so that's fine.. I said to him 'ok if all is normal them why were there scrambled eggs in the toilet the next morning?' His eyes got as wide as saucers and that's when the Celiac studies started. Kinda funny thinking back on the look on his face that day. LOL :)

mushroom Proficient
mushroom
Posted

If you are not digesting your food still, it is probable that some digestive enzymes would help out. Often your pancreas has gone on holiday and is not putting out sufficient quantities of things like lipase, protease, etc., which are required to break down your food. Also, a good probiotic would help in repopulating your gut with the good bacteria and healing your leaky gut.

Judy3 Contributor
Judy3
Posted

Thanks Mushroom, I have started taking a probiotic as they had me on antibiotics for 10 days and they were powerful ones. They did the pancreatic enzyme tests on me a while back as they thought I had pancreatitis at first. It's only been a week so I'm going to just let it run it's course and see what happens in the next few weeks. :)

GFinDC Veteran
GFinDC
Posted

Thanks GFinDC. Like I said in my post before, energy abounds but I still have pain about an hour after I eat but it's dull pain not the sharp stabbing pain I had before. I hope the absorption of food and nutrients gets better. I've seen whole pills, scrambled eggs, carrots and brown rice and many other foods in their identifiable form in the toilet if you get my drift. :blink: They did a gastic emptying study on me a month ago and I had to eat radioactive scrambled eggs. The doctor said your study showed normal movement so that's fine.. I said to him 'ok if all is normal them why were there scrambled eggs in the toilet the next morning?' His eyes got as wide as saucers and that's when the Celiac studies started. Kinda funny thinking back on the look on his face that day. LOL :)

I like that about the look on his face! My new doc on Thursday had a similar reactino when he looked at my feet. He seemed pretty freaked about them. But heck, they look better than they have for years IMHO. :)

I've had that before, recognizing the out flow as being what was eaten earlier. But then again, why should anyone be expected to digest radioactive eggs anyhow? Crazy docs! I think radioactive eggs is what the flame monster from outer space eats right? Geez!

Judy3 Contributor
Judy3
Posted

I agree on the flame monster eating radioactive eggs.. LOL Strange things they do to us huh? I survived and I seem to be digesting my food now, most of it anyway... time I know, I need time for this to get better... I like immediate results but in this case I need to be patient. gritting my teeth.. LOL One thing I've maintained over the years is my sense of humor and I will always try to do that.. When the doctors were upset that I lost 20 lbs in the last month I said hey lets look at the bright side here guys it's a great weight loss plan if you can stand the pain!!! :P They didn't think I was funny geez...

Have a good night all! I'm going to bed to have sweet dreams of the gluten free bread I saw in the grocery store tonight.. looked like the fake food I played with as a kid.. ackkkk!!! ;)

*Judy

PS I didn't buy the bread... I bought the ingredients and I'll try to make my own!

GFinDC Veteran
GFinDC
Posted

Yep, werd mad doctor experiments all-righty.

There are some good threads on making gluten-free bread here Judy.

The Most Delicious Home-made Gluten Free Bread I've Ever Tasted

Uprisings - Reaching New Heights In Gluten-Free Baking

Judy3 Contributor
Judy3
Posted

Well I got the results of my genetic tests today. Positive for DQ2 and DQ6 (whatever that is) but negative for DQ8.. so I guess I'm officially a member of the club now... B)

GFinDC Veteran
GFinDC
Posted

Ok, skooch over people and make room for Judy3 elbow elbow. There we go! :D

Judy3 Contributor
Judy3
Posted

Ok, skooch over people and make room for Judy3 elbow elbow. There we go! :D

LOL that was my first smile of the day and a much needed one as well... thank you GFinDC!

GFinDC Veteran
GFinDC
Posted

Ha ha, glad you liked it Judy! You might like to join us in the gab chat room for the funny pages thread sometime. We have an ongoing very serious discussion about the importance of life outside of celiac disease that demands impeccable speeling and decorum. Plenty of room for noobies there!

The funny pages

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.