Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hey, New Here


Shannon.a

Recommended Posts

Shannon.a Newbie

Hey, my name is Shannon from Canada, BC. I was diagnosed with celiac two weeks ago. A couple months ago I had the blood test done but they wanted to do the scope to make sure I defintely had it. I have always had tummy problems and fatigue my whole life, over a year ago I went to the Doctor and told her I didn`t think it was normal to feel this tired all the time.... so she prescribed me anti-depressents! I obviously knew that wasn`t the case and felt very alone for a long time, until a friend suggested i go and get blood work done. I am so thankful to have found this forum it is so helpful and everyone is so nice :) And I don`t feel alone anymore! I have been trying to be gluten-free for two weeks now but somehow I keep getting sick, I make sure I read labels, but I'm thinking it might be dairy :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

Welcome Shannon.a!

A lot of people do have to give up dairy for a while. Also make sure not to eat to many pre- packaged foods. Try to eat more meats, fruits and veggies to start.

cassP Contributor

Hey, my name is Shannon from Canada, BC. I was diagnosed with celiac two weeks ago. A couple months ago I had the blood test done but they wanted to do the scope to make sure I defintely had it. I have always had tummy problems and fatigue my whole life, over a year ago I went to the Doctor and told her I didn`t think it was normal to feel this tired all the time.... so she prescribed me anti-depressents! I obviously knew that wasn`t the case and felt very alone for a long time, until a friend suggested i go and get blood work done. I am so thankful to have found this forum it is so helpful and everyone is so nice :) And I don`t feel alone anymore! I have been trying to be gluten-free for two weeks now but somehow I keep getting sick, I make sure I read labels, but I'm thinking it might be dairy :(

for this beginning transitional period- i think it's a good idea to give up dairy, corn, and soy.. and keep your "gluten free" substitutes to a minimum (cookies, breads, cereals).

you can try adding those things in later- and maybe even one at a time. many people can go back to dairy once their villi are healed... but for many it's a more permanent thing.

some do fine with corn, and many of us dont.

those are the big 3 i think.

there are many other intolerance some of us have- fructose, nightshades, etc... but you should definitely start with avoiding dairy.

you might also want to treat yourself to some items that help heal your small intestine:

Ghee (only 1 tbsp a day.. plain or used to cook with or on your veggies)

L-Glutamine powder (1 heaping tbsp mixed with 8oz water)

:)

Shannon.a Newbie

for this beginning transitional period- i think it's a good idea to give up dairy, corn, and soy.. and keep your "gluten free" substitutes to a minimum (cookies, breads, cereals).

you can try adding those things in later- and maybe even one at a time. many people can go back to dairy once their villi are healed... but for many it's a more permanent thing.

some do fine with corn, and many of us dont.

those are the big 3 i think.

there are many other intolerance some of us have- fructose, nightshades, etc... but you should definitely start with avoiding dairy.

you might also want to treat yourself to some items that help heal your small intestine:

Ghee (only 1 tbsp a day.. plain or used to cook with or on your veggies)

L-Glutamine powder (1 heaping tbsp mixed with 8oz water)

:)

Thank you so much for the info, I have no idea how I will eliminate dairy, this is going to be tough

GFreeMO Proficient

Thank you so much for the info, I have no idea how I will eliminate dairy, this is going to be tough

You could try Lactaid milk and supplements if you think it's lactose intolerance. Works great for me! Welcome to the forum!

GFinDC Veteran

You can look for almond milk or hemp milk in organic or heath food stores. It is usually sold in boxes and on shelf rather than in a refrigerator.

You can find Daiya dairy free/soy free cheese shreds in Canada. Not the same as cow milk cheese but not too bad either.

Open Original Shared Link

Shannon.a Newbie

I took a chance to see if it was dairy, I had a bowl of gluten-free cereal with cow milk and never got sick. Do "artificial flavoring" and "spices" have gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Gluten can not be hidden in an ingredient list as "spices." In theory, "artificial flavor" could be gluten-grain derived, but I have never encounted a case where it actually is. In the US, wheat would have to be explicitly disclosed.

Kevinb Newbie

Hey, my name is Shannon from Canada, BC. I was diagnosed with celiac two weeks ago. A couple months ago I had the blood test done but they wanted to do the scope to make sure I defintely had it. I have always had tummy problems and fatigue my whole life, over a year ago I went to the Doctor and told her I didn`t think it was normal to feel this tired all the time.... so she prescribed me anti-depressents! I obviously knew that wasn`t the case and felt very alone for a long time, until a friend suggested i go and get blood work done. I am so thankful to have found this forum it is so helpful and everyone is so nice :) And I don`t feel alone anymore! I have been trying to be gluten-free for two weeks now but somehow I keep getting sick, I make sure I read labels, but I'm thinking it might be dairy :(

I'm new to the site but have been gluten-free for nearly 9 years after my Celiac diagnosis. As someone else mentioned you need to give your body a chance to heal after all the damage gluten has done to it. Eat simply and blandly for a while and cut out processed foods, restaurants and foods like milk, eggs and peanuts which many people have sensitivities to anyway. Yes, this sucks but simple food cooked and prepared by you and only you that is easy to digest will make it easier on your gut to heal and will avoid you getting poisoned by gluten. A common problem many Celiacs can have is leaky gut. This is where gluten has ravaged your small intestine and actually perforated the lining allowing food to pass through undigested, this causes an immune response in the body as it sees this undigested food as a foreign invader. Keep a food log, this is very helpful in the early stages to try and identify foods that are causing you issues. Get a good multi vitamin that is gluten-free and a sublingual B-12, this will help increase your energy level. Being gluten-free isn

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.