Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hey, New Here

Shannon.a

Recommended Posts

Shannon.a Newbie
Shannon.a
Posted

Hey, my name is Shannon from Canada, BC. I was diagnosed with celiac two weeks ago. A couple months ago I had the blood test done but they wanted to do the scope to make sure I defintely had it. I have always had tummy problems and fatigue my whole life, over a year ago I went to the Doctor and told her I didn`t think it was normal to feel this tired all the time.... so she prescribed me anti-depressents! I obviously knew that wasn`t the case and felt very alone for a long time, until a friend suggested i go and get blood work done. I am so thankful to have found this forum it is so helpful and everyone is so nice :) And I don`t feel alone anymore! I have been trying to be gluten-free for two weeks now but somehow I keep getting sick, I make sure I read labels, but I'm thinking it might be dairy :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dixiebell Contributor
Dixiebell
Posted

Welcome Shannon.a!

A lot of people do have to give up dairy for a while. Also make sure not to eat to many pre- packaged foods. Try to eat more meats, fruits and veggies to start.

cassP Contributor
cassP
Posted

Hey, my name is Shannon from Canada, BC. I was diagnosed with celiac two weeks ago. A couple months ago I had the blood test done but they wanted to do the scope to make sure I defintely had it. I have always had tummy problems and fatigue my whole life, over a year ago I went to the Doctor and told her I didn`t think it was normal to feel this tired all the time.... so she prescribed me anti-depressents! I obviously knew that wasn`t the case and felt very alone for a long time, until a friend suggested i go and get blood work done. I am so thankful to have found this forum it is so helpful and everyone is so nice :) And I don`t feel alone anymore! I have been trying to be gluten-free for two weeks now but somehow I keep getting sick, I make sure I read labels, but I'm thinking it might be dairy :(

for this beginning transitional period- i think it's a good idea to give up dairy, corn, and soy.. and keep your "gluten free" substitutes to a minimum (cookies, breads, cereals).

you can try adding those things in later- and maybe even one at a time. many people can go back to dairy once their villi are healed... but for many it's a more permanent thing.

some do fine with corn, and many of us dont.

those are the big 3 i think.

there are many other intolerance some of us have- fructose, nightshades, etc... but you should definitely start with avoiding dairy.

you might also want to treat yourself to some items that help heal your small intestine:

Ghee (only 1 tbsp a day.. plain or used to cook with or on your veggies)

L-Glutamine powder (1 heaping tbsp mixed with 8oz water)

:)

Shannon.a Newbie
Shannon.a
Posted
  • Author

for this beginning transitional period- i think it's a good idea to give up dairy, corn, and soy.. and keep your "gluten free" substitutes to a minimum (cookies, breads, cereals).

you can try adding those things in later- and maybe even one at a time. many people can go back to dairy once their villi are healed... but for many it's a more permanent thing.

some do fine with corn, and many of us dont.

those are the big 3 i think.

there are many other intolerance some of us have- fructose, nightshades, etc... but you should definitely start with avoiding dairy.

you might also want to treat yourself to some items that help heal your small intestine:

Ghee (only 1 tbsp a day.. plain or used to cook with or on your veggies)

L-Glutamine powder (1 heaping tbsp mixed with 8oz water)

:)

Thank you so much for the info, I have no idea how I will eliminate dairy, this is going to be tough

GFreeMO Proficient
GFreeMO
Posted

Thank you so much for the info, I have no idea how I will eliminate dairy, this is going to be tough

You could try Lactaid milk and supplements if you think it's lactose intolerance. Works great for me! Welcome to the forum!

GFinDC Veteran
GFinDC
Posted

You can look for almond milk or hemp milk in organic or heath food stores. It is usually sold in boxes and on shelf rather than in a refrigerator.

You can find Daiya dairy free/soy free cheese shreds in Canada. Not the same as cow milk cheese but not too bad either.

Open Original Shared Link

Shannon.a Newbie
Shannon.a
Posted
  • Author

I took a chance to see if it was dairy, I had a bowl of gluten-free cereal with cow milk and never got sick. Do "artificial flavoring" and "spices" have gluten?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

Gluten can not be hidden in an ingredient list as "spices." In theory, "artificial flavor" could be gluten-grain derived, but I have never encounted a case where it actually is. In the US, wheat would have to be explicitly disclosed.

Kevinb Newbie
Kevinb
Posted

Hey, my name is Shannon from Canada, BC. I was diagnosed with celiac two weeks ago. A couple months ago I had the blood test done but they wanted to do the scope to make sure I defintely had it. I have always had tummy problems and fatigue my whole life, over a year ago I went to the Doctor and told her I didn`t think it was normal to feel this tired all the time.... so she prescribed me anti-depressents! I obviously knew that wasn`t the case and felt very alone for a long time, until a friend suggested i go and get blood work done. I am so thankful to have found this forum it is so helpful and everyone is so nice :) And I don`t feel alone anymore! I have been trying to be gluten-free for two weeks now but somehow I keep getting sick, I make sure I read labels, but I'm thinking it might be dairy :(

I'm new to the site but have been gluten-free for nearly 9 years after my Celiac diagnosis. As someone else mentioned you need to give your body a chance to heal after all the damage gluten has done to it. Eat simply and blandly for a while and cut out processed foods, restaurants and foods like milk, eggs and peanuts which many people have sensitivities to anyway. Yes, this sucks but simple food cooked and prepared by you and only you that is easy to digest will make it easier on your gut to heal and will avoid you getting poisoned by gluten. A common problem many Celiacs can have is leaky gut. This is where gluten has ravaged your small intestine and actually perforated the lining allowing food to pass through undigested, this causes an immune response in the body as it sees this undigested food as a foreign invader. Keep a food log, this is very helpful in the early stages to try and identify foods that are causing you issues. Get a good multi vitamin that is gluten-free and a sublingual B-12, this will help increase your energy level. Being gluten-free isn

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.