Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Did I Do Wrong?

AZGirl

By AZGirl
in Coping with Celiac Disease

Recommended Posts

AZGirl Rookie
AZGirl
Posted

I am feeling terrible tonight and have no idea how I could have been glutened. I had 1 cup of plain yogurt for breakfast followed by dry plain almonds and craisins. For lunch: left over roast beef with veggies that I made, so no chance there, a cup of sugar-free chocolate pudding- I checked the label and finally I took 2 Excedrin Migraine.

I am very diligent so I don't know where I could have messed myself up, but if any of you have an idea please speak up, so I don't do this again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


txplowgirl Enthusiast
txplowgirl
Posted

I'm sorry you feel so bad, I have heard that craisins are dusted with flour, not for sure.

jerseyangel Proficient
jerseyangel
Posted

Ocean Spray Craisins are gluten-free. I'm wondering if it might be the sugar free pudding--aspertame can cause symptoms in some people as can sugar alcohols.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

What brand of yogurt? Activia has a warning on it that it may contain wheat. Also is it possible that you are casein intolerant?

For the almonds did you buy a brand that is not processed with wheat? Many nuts have a warning that they "may contain wheat" or are processed on equipment that also processes wheat. But that warning is optional in the US, so unless you call them and check you don't know. It's like playing russian roulette if you are super-sensitive to cc. Craisins should be okay gluten-wise (I've never seen any with flour dusted on them anyway) HOWEVER dried fruit and nuts can cause cramping and pain, especially if you are in the early stages of healing--those things are especially hard to digest. I would lay off of raw things like that for a while if that's what you are experiencing. Eat soft foods like steamed veggies.

sunnybabi1986 Contributor
sunnybabi1986
Posted

Ocean Spray states that its beverages and sauces are gluten free, but then gives this disclaimer:

"Do Ocean Spray

Lisa Mentor
Lisa
Posted

I agree with Patti that the Crans are gluten free. Please check their website (Oceanspray) to verify, or 1-800-662-3263

Not knowing how long you have been on the diet, but it's often recommended that you give up dairy products for a while, until healing can take place. It can often be re-introduced without issue.

starrytrekchic Apprentice
starrytrekchic
Posted

What type of chocolate pudding? I can't eat snack pack chocolate pudding cups, and I'm not sure why. As far as I can tell, they're completely gluten free, but I've reacted to them all three times I've tried them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I have a bag of chocolate covered Craisins and they do not list gluten in their listing, but rather milk and soy.

T.H. Community Regular
T.H.
Posted

The first offenders I'd be looking at would be the almonds (biggest processing CC risk), then the craisins (I don't know them specifically, but many dried fruit has CC issues), then the pudding (only because it's got some extra additives, if it's flavored and gluten free).

The worst gluten reaction I ever had was to pistachios, actually - same as you, I figured they'd be safe, but woah....BAD reaction. My daughter and I both were very ill, yuck.

Good luck - hope that your reaction passes quickly

Lisa Mentor
Lisa
Posted

The first offenders I'd be looking at would be the almonds (biggest processing CC risk), then the craisins (I don't know them specifically, but many dried fruit has CC issues), then the pudding (only because it's got some extra additives, if it's flavored and gluten free).

The worst gluten reaction I ever had was to pistachios, actually - same as you, I figured they'd be safe, but woah....BAD reaction. My daughter and I both were very ill, yuck.

Good luck - hope that your reaction passes quickly

With due respect, do you have any substantiated evidence for your "offenders"? Many people depend on the information found here. Links or citations are welcome.

Many companies have been friends of people with food allergies. Ocean Spray is one of them. As always mentioned here, every one is different. But, please do your research.

Board Rule # 5

https://www.celiac.com/gluten-free/index.php?app=forums&module=extras&section=boardrules

* Any claims you make here should be based on legitimate sources, or be expressed as opinion, experience, or inquiry. You should remain on topic and be consistent with the theme of the forum as a whole.

eatmeat4good Enthusiast
eatmeat4good
Posted

I am feeling terrible tonight and have no idea how I could have been glutened. I had 1 cup of plain yogurt for breakfast followed by dry plain almonds and craisins. For lunch: left over roast beef with veggies that I made, so no chance there, a cup of sugar-free chocolate pudding- I checked the label and finally I took 2 Excedrin Migraine.

I am very diligent so I don't know where I could have messed myself up, but if any of you have an idea please speak up, so I don't do this again.

I would suspect the aspartame or sweetener in the sugar free pudding. It could also be sulphites if the craisins contained sulphites. Many dried fruits do contain sulphites and these are known to cause headache. I don't have a particular reference for you other than I googled suphites when I had such reactions. Good luck and I hope it passes quickly.

Marz Enthusiast
Marz
Posted

I'd suspect the pudding - I have had a very strong reaction to chocolate mousse pudding before. No gluten warning on it, made by a company I trust, so I assume no gluten was intentionally added. But... they do make lots of puddings containing wheat as well, so I think shared lines. They didn't warn about it, but it's fairly obvious that is the case.

Of course, I've also had creme brule puddings by the same company, and those were 100%, so perhaps it was some other ingredient disagreeing with me (I have a bad soya intolerance as well....)

AZGirl Rookie
AZGirl
Posted
  • Author

You all are amazing!! Thank you for all the ideas and information!!!

I read the back of the craisen package, which was from WalMart, and it said "may contain traces of wheat." We also have a bag of Ocean Spray that says "Gluten-free" and made in a gluten free facility. I'm pretty sure that must have been it. I haven't been having problems with almonds or the SF pudding packs. I am logging my food and reactions, so maybe somewhere down the road I'll have more solid information about what happened yesterday. I am feeling a lot better today.

I had no idea that my new life would include company phone calls and researching every bite that goes in my mouth, but on the bright side I now know I have some control over how I feel.

AZGirl Rookie
AZGirl
Posted
  • Author

Okay everyone just a little update. I have been feeling very good for the last few days and again today was struck by gluten unintentionally. Today when reviewing this posting I noticed a common food item- the sugar free pudding pack. I'm still not sure it's the culprit, but I went to Hunt's website to explore and they do not give the SF chocolate pudding a gluten free label. I couldn't find anything in it's ingredients that make me think it has gluten in it, but they do label other puddings in their line as "gluten free."

I know that others have had issues with pudding packs, so for now I think I'm going to avoid them.

Just so you know my day included:

Plain yogurt, a banana, coffee, lemon chicken (homemade), wild rice and green peas.

Oddly my reaction took a little while to occur. I usually know if I am eating something with gluten within the first 3-5 bites. I get very intense stomach spasms right away and the bloating begins.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing...
    2. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    3. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    4. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    5. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,871
    • Most Online (within 30 mins)
      7,748
    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.