Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Want To Share This Glorious Moment


revenant

Recommended Posts

revenant Enthusiast

Hello :)

This morning I caught a show called "The Incurables". It was about a girl retelling her struggles with bipolar disorder, psychotic episodes and major depression. She was very suicidal. In the end, she discovered she was dairy and soy intolerant and was able to go off of all of her meds after removing these foods. Very good show!

I recorded it and watched it with my mom. My mom, who often does not believe that I am gluten, soy or lactose intolerant, or that it has much mental effect. It was too large an idea for her to comprehend. She watched it because my younger sister has bipolar disorder, aggression, depression, and psychotic episodes exactly like the girl in The Incurables. And, at the end of the episode, I took a chance and said "Remember how I used to have crying episodes and hyperactive episodes? Remember how I would overreact to everything you said to me? I haven't done that for months now".. And..she said "You might be onto something here" !!! SHE BELIEVES ME!!

Even better... It just so happens that today she was having a reaction to something (she is... carelessly gluten free, IE eating hamburgers off of the bun type of gluten free) and could relate all too well with the person in the show... And she said, that she wants to try doing this right because she has never felt completely relieved of her symptoms (she is heavily ADD, depressed, anxious, OCD, and her very high dosages of meds are no longer working). She now has high blood pressure, and her mental illnesses are ntot being controlled by the meds anymore.. So she is considering going dairy free!! (Because both her mother and all 3 of her children are lactose/casein? intolerant)

We had a huge talk about how it feels to have a reaction, get glutened or lactosed. And she actually listened to me when I described things like serotonin depletion, and how all of her symptoms are common, and what food intolerances can do, and such! It was also very nice for her to come clean to me about her own thoughts, how she feels in such detail, and I just love to listen and support her. This is a breakthrough! I finally feel understood!

(I can't garuantee that she will still think this way tomorrow, because these kinds of breakthroughs never last through to the next day with her, but it was a moment that I needed to have...)

So for all out there who wish their family would try a gluten or lactose free diet... Be an example. Be healthy and happy, and they will want to follow. Also make sure it is THEIR idea... show them something, an article, or a show...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Oh sweetie, I am so happy for you :D :D This is indeed a major breakthrough moment, a validation of your suffering, and of your self-diagnosis. I do hope she still recalls it tomorrow, and the next day, and the day after that! :) Make sure that show is saved, and if she forgets, show it to her again. :rolleyes:

Be thoughtful and helpful with her, help her to do it right without being reproachful or preachy and you two may be able to once again establish a normal mother/daughter relationship. I must add that I think you show a remarkable maturity and understanding beyond your 17 years on this earth, and if anyone can do it, you can!!! Good luck. :)

eatmeat4good Enthusiast

That is wonderful! I am so amazed when young people figure this out! And you really are wise to know how to approach others too. I am trying not to be preachy with my sister but I want her to feel better too. Your perseverence paid off with your mom. I'm gonna take your advice on how to approach this by making it their idea. Brilliant! And I am only 30 years older than you! ;)

kareng Grand Master

Yeah!!!!!!!! Happy Dance!!!!

Hope she still feels this way in a say or two. Keep the recorded show. Maybe she would like to re-watch important parts.

txplowgirl Enthusiast

I'm happy for you Revenant, :D I pray your mother will be easier on you and your sister now. Keep up the good work and perhaps show that show to your sister too. Maybe it will help her also realize that she can get better. I'm keeping all of you and your family in my prayers.

wheeleezdryver Community Regular

That IS a glorious moment!! YAY!! hopefully things will continue in such a positive manner!

revenant Enthusiast

Haha thanks for the replies and support :) You are all so amazing.

Unfortunately it was a one-day kind of thing... I was again taken to see a social worker and again my mother said that I had an eating disorder because I do not eat dairy gluten or soy, she was once again oddly hysterical about it... They partially believed her too. The social worker said that I am not eating these foods because "my life is so out of control that I am trying to control my life through my food". SIGH. At least I had a moment!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gutsy Girl Rookie

I must add that I think you show a remarkable maturity and understanding beyond your 17 years on this earth, and if anyone can do it, you can!!! Good luck. :)

Wow, you're only 17 and you're able to handle this peacefully?! GOOD FOR YOU!!!! I was NOT at this point until I was about 24 or 25 years old (26 now). :) (Don't let me puff up your head, now. LOL.) *HUGS!*

I'm happy for you and hope that over time, things will improve in your relationship with your Mom.

For the first time, my Mom is starting to see that it's not all in my head. My Mom got diagnosed with breast cancer this year and she's been going through a whole heck of a lot with that, including lots of pain now that she's never had before. Living my whole life with chronic pain, I was surprised when my Mom asked me almost a year ago "How do you deal with the pain on a daily basis?" I nearly fell over and knocked my teeth out! Her cancer has brought us closer together as I've been able to support her and show her my love through this struggle. She's grown personally as well. (My personal two cents in my own situation is that God has been changing our hearts and causing us to really LOVE each other more than ourselves, which is a miracle, as three years ago we couldn't stay in the same house for more than three days without killing each other.)

Best wishes!!

Gutsy Girl Rookie

The social worker said that I am not eating these foods because "my life is so out of control that I am trying to control my life through my food". SIGH. At least I had a moment!

I have always hated that stupid phrase "when life gives you a lemon, make lemonade". Seriously...I hate that quote!!

But if you look at the social worker's statement POSITIVELY, you can say, "Yes, my life is out of control, I feel like *fill in the blank* and I want to live more normally. I believe that certain foods cause this discomfort (whatever your symptoms are) and that if I avoid the offending foods, I may feel better and feel more in-control of my life. This is a good thing, as I am taking responsibility for my health and wellbeing unlike many people twice my age, and I choose to see it this way."

I wonder what she'd say to that! :P Hahaha.

HUGS!!

mushroom Proficient

Of course you are trying to control your life through your food - for those who are food intolerant that is the only way that life can be controlled. Can't you give this so-called social worker some references for reading on the foods your are intolerant of which might help her understand why you avoid those foods?? Only a fool eats things which cause them harm - and you can tell her that from me :ph34r::blink:

I am so sorry that you mom's moment of lucidity was only temporary :( Maybe the moment will occur when you can watch the tape together again. Is there any way you can surreptitiously cook her gluten free food so that she can see that she is not confining herself to a life of misery, but lifting herself out of a life of misery?

Or maybe you can take HER to the social worker and say "My mom is making me sick by trying to make me eat things which cause me harm?" :D Not so far out :lol:

However it works out, my ghostly friend, stay strong and know we love and support you. :wub:

plumbago Experienced

Can you tell us more about The Incurables? Is there a web site? How can we access the particular program you reference?

Thanks.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    2. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    3. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      4

      Symptoms

    4. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    5. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,188
    • Most Online (within 30 mins)
      7,748

    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      Her results only showed greater then 100 which over 10 is considered positive.  But American standards still recommend the endoscopy to confirm.  And the Dr explained to us both the European and American standards and asked us what we wanted to do.  We figured since it’s still recommended here, do the endoscopy so Insurance can’t argue anything in the future regarding it
    • Scott Adams
      My daughter also has it, and it's much better to discover it early. What was the positive level for her test? If she has over 10x that level, and you have celiac disease, I'm not sure if a biopsy is necessary to diagnose her. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children!    
    • Scott Adams
      I forgot to mention that I also had to avoid eggs for a few years after initially going gluten-free, but could eat duck eggs without issues. Fresh duck eggs can often be found in Asian markets (be sure they are fresh eggs, because they sell various kinds of duck eggs that look the same like salted eggs, eggs with embryos inside, etc.), farmer's markets, and I was surprised to see Costco now selling fresh duck eggs.
    • Midwesteaglesfan
      UPDATE:  here I am a couple months past my full diagnosis and going gluten free.  I’ve been feeling a lot better.  More energy, joint pain has gone down a lot.  Haven’t really had the headaches and migraines I’ve had for years.   My daughter(age 17) has had some symptoms which we thought were something else, but with my diagnosis I said,  have the dr test her for celiacs.  Her antibodies came back as greater then 100.  So she is scheduled for her endoscopy and going to be joining me on this journey.
    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.