Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Panic?


tea-and-crumpets

Recommended Posts

tea-and-crumpets Explorer

I have a diagnosed anxiety disorder, but a couple of times since I stopped eating gluten in October I have had serious, serious panic attacks, much worse than what I ever had before. The interesting thing is that I can be thinking completely clearly but it's like my body is taken over by waves of panic. I was at church one day and completely fine mentally, enjoying myself, but the panic took over my body. Even before, my panic attacks were more mental than physical, with my mind racing, if that makes sense.

I don't think this is because of CC. I eat at home 99 percent of the time, using ingredients that I know are gluten free. I have a gluten free kitchen. The times this has happened I had not eaten outside of the home.

I am experiencing it right now to a small extent and I can think clearly.

Any suggestions? My mom thinks it might be hormonal shifts, because I also have PCOS and maybe my body is shifting back to normal. Maybe so. I just want it to go away.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Emilushka Contributor

You could have Panic Disorder or another problem that coincidentally popped up when you went gluten-free. Or maybe you were so focused on the glutening symptoms that anything else just wasn't on your radar at the time. Do you have a good doc? There are meds to help you with this kind of thing and it's worth getting some levels tested to make sure it's not a hormonal or endocrine thing (thyroid, etc). There are lots of medical reasons to get panic attacks, but there's also Panic Disorder - all of these things are treatable.

Skylark Collaborator

Is there any chance you're vitamin B12 deficient? Deficiency will do that.

cassP Contributor

i agree with both girls above- i think you should get your Thyroid checked, and your vitamin levels (esp. b12) checked.

as someone who has suffered Panic Attacks, Generalized Anxiety, and Shortness of Breath on & off for YEARS, but especially bad the last 5 years (when my Hashimoto's Hypothyroid probably kicked in)-> let me tell you- your anxiety may very well be your body telling you to fix something... dont beat yourself up like i did- thinking it's all you and your mental state- most likely it is a signal from your body that something is not working right.

good luck!!!! i hate Anxiety!

Marz Enthusiast

My sympathies, I also suffer from panic attacks- but usually only after getting accidently glutened. I can't think of any reason why you may suffer from it now while gluten-free, except maybe deficiencies, or other issues.

Are you stressed out in general? If you're experiencing a high anxiety level, you may get panic attacks for no reason, even when you're feeling relaxed.

If it gets bad, I've found great relief from anxiety and panic attacks from the Linden method - just google for it. Bit pricey, but very worth it for the coping techniques it teaches.

Otherwise look into supplements, destressing techniques, or maybe talk to a counsellor/psychologist/psychiatrist, who may prescribe drugs to control it :/

Marz Enthusiast

By the way, an excellent way to cope with a panic attack during the attack, which helps for me, is to laugh at how powerful the mind can be to cause you to feel so crazy! It's just your mind going "Oh crap, get the adrenalin going, there's something scary here that I need to fight or escape from", but without any reason for it. Or even try to make the attack worse - tell it to give you all it's got - once you realise you're in control of it, it suddenly loses it's grip on you.

Hope that helps! :)

thleensd Enthusiast

Understandable... You're not alone.

For me, one of the things that helped me get diagnosed was gluten-induced anxiety. When I went gluten-free, from time to time I would get the out of nowhere just sitting there and BAM! anxiety. Remember that your body is now in big time repair mode, and it doesn't always discern real danger from fake danger. Sometimes it's right, and sometimes it's wrong. Like Marz says, learn to embrace that moment. (I know, easier said than done) I would think, "Wow. Fascinating. My adrenal system is fascinating." Then, console yourself like you would a child scared of a monster in the closet.

I'm a new BIG believer in the importance of nutrition. Take your vitamins. Eat your veggies, meditate, enjoy quality people.

That being said, keep your eyes open for possible triggers, in case it isn't a false alarm. I found that most of my anxiety happened when I needed to eat (kinda like low blood sugar, but my blood numbers were fine)... hormone shifts also trigger it. Also, when my ferritin or B-12 drops too low.

Best. =)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

I don't think this is because of CC. I eat at home 99 percent of the time, using ingredients that I know are gluten free. I have a gluten free kitchen. The times this has happened I had not eaten outside of the home.

Honestly, I would keep a food journal, just in case, and see if you can notice a pattern, just in case. Eating at home, with gluten free products, is, unfortunately, no guarantee of keeping free of gluten.

Because gluten free products all have low levels of gluten, if you eat enough of them, you'll still get a gluten reaction. Or if you are becoming more sensitive to gluten, or starting to react to lower amounts, that can be an issue, too.

My daughter, we thought, was always emotional, more prone to anxiety attacks and depression. When she went gluten free, this went away. However, a few months in, she started having this reaction to lower levels of gluten and many of our 'safe' gluten free foods were making her react. We had to start calling companies to see if they tested their food, and if they were <20ppm, <10ppm, or <5ppm. We now stick with the lower gluten ppm's and she's safer. If she gets the higher ones, or too much of the lower ones, she still gets ill.

We only figured this out when we started doing a food journal.

Also, the emotional/anxiety reactions are much worse now that we've been gluten free for a while.

uglybassistx Newbie

By the way, an excellent way to cope with a panic attack during the attack, which helps for me, is to laugh at how powerful the mind can be to cause you to feel so crazy! It's just your mind going "Oh crap, get the adrenalin going, there's something scary here that I need to fight or escape from", but without any reason for it. Or even try to make the attack worse - tell it to give you all it's got - once you realise you're in control of it, it suddenly loses it's grip on you.

Hope that helps! :)

I think that's some of the best advice I've ever seen for a sufferer of panic attacks. Having a history of anxiety/panic myself, I found that understanding the physiology behind panic attacks greatly helps my coping skills.

As for the original poster, I think everyone here has covered it. I would rule out thyroid, vitamin deficiency, etc and then work on perhaps seeing a mental health professional. Good luck.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,676
    • Most Online (within 30 mins)
      7,748

    AW1851
    Newest Member
    AW1851
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.