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Allergist--A Good Experience To Share


Roda

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Roda Rising Star

I changed my children's allergist last July. My first visit I was impressed. I'm still impressed today after taking my oldest son for his first injections on his new allergy serum. His allergies to most fall weeds have resolved but his cockroach and dust mite allergy remains as well as developing new allergies to molds and tree pollen. I had him retested for celiac and his results were negative according to the lab with a reference range for the gliadin antibodies <19 neg, 20-30 weak positive and >30 positive and the ttg ref range is 0-19 neg and > 19 positive. His values were gliadin Igg 2, gliadin iga 4 and iga ttg 5. His allergist believes he needs to be off gluten and wheat despite his "technically negative results" along with his 6 year old brother who had a positive iga ttg test and has been gluten free since 11/19/10. He says they both need to be and as for my oldest (almost 10) it may at this point be an intolerence. I was like "WOW" you need to talk to my husband who whole heartedly believes in the test to be concrete. I know hubby won't agree to the oldest one going gluten free right now especially in light of the negative tests, but I am going to have him take him to his follow up appointment in three months with the allergist unless I have reason to change him earlier. He goes for his 10 yr check up soon which I'm going to ask for his iron tests to be repeated (he had borderline high TBIC and low % iron saturation a year ago) because he is pasty. His H & H were fine as was his ferritin. I want the NP to explain to him why my boys need to be gluten free. I think he will respect someone in the medical profession's opinion. He does respect mine(I'm in the medical field too) but it's just different since I am their mother. So far my gut instincts have been correct but I've needed a little back up on proving them. I thought I would just share that our allergist is a keeper! If anyone wants to know the allergy groups name you can pm me. It is a big group and we are at one of many offices in many cities/towns in TN.


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missy'smom Collaborator

I'm glad for you. It feels good to have the support and understanding from those in the medical field. I know many people say allergists and allergy tests are not helpful but we've gotten alot of help and improvement in our health from ours. I think it's a matter of finding the right one. Ours is up on celiac disease too.

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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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