Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Done Today

wow89

Recommended Posts

wow89 Rookie
wow89
Posted

I got a celiac panel done today, food allergies, along with thryoid and glucose. Pleased with new dr. she leaned more toward thyroid, but thought I was on the right track wiht the celiac... since I glutened this weekend my heart keeps "popping" I guess that's a palpitation ;) and feeling fuzzy/out of focus and weak.

If it's not gluten then I don't know what the heck is wrong... feeling frustrated. IF it is gluten it means I've had this for about 20 years, cause that's when it ALL (tummy troubles) started.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


txplowgirl Enthusiast
txplowgirl
Posted

Wow89, have you been gluten free for a while? If you have then i'm sorry to say that you have a very good chance of the blood tests coming back negative. I hope you get the answers you need.

wow89 Rookie
wow89
Posted
  • Author

Thanks for the info - stopped for 2/3 weeks - I tried to eat some this weekend.. told the dr about the lapse, even it says I am little I'm done with it as bad as I feel so as long as it's a 'little positive' that works for me. ;) If not, hormone issues it is! ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for the info - stopped for 2/3 weeks - I tried to eat some this weekend.. told the dr about the lapse, even it says I am little I'm done with it as bad as I feel so as long as it's a 'little positive' that works for me. ;) If not, hormone issues it is! ;)

Please don't assume that if the test is negative that it isn't celaic. My doctors doing so cost me many, many painful years. When you are done with testing no matter what the results do give the diet a good strict trial.

wow89 Rookie
wow89
Posted
  • Author

Thanks for the advice - yes I am going to go gluten free, as because Sat and Sun I ate gluten, Tuesday a.m. I have D. It just makes sense. I have low B12 and am otherwise quite healthy despite my weakness, fatigue, palpitations, jitteryness, hair loss, ridges in fingernails and anxiety. These symptons REALLY majorly appear after I have had some sort of tummy virus or am sick, but the D remains a constant and tends to also appear around my time of the month. It could be hormonal too but it's gotta be the gluten.

question is there one symptom that all celiacs have or is it just that varied?

wow89 Rookie
wow89
Posted
  • Author

Also just wondering... I can be sitting and doing nothing and then my body just kind of has a mind of it's own I start feeling anxious or my heart jumps or palpitates... is that a celiac thing or just my stress over waiting to hear something? ;)

Also, how long before you are back to normal ie - like you were before it all started?

kareng Grand Master
kareng
Posted

Also just wondering... I can be sitting and doing nothing and then my body just kind of has a mind of it's own I start feeling anxious or my heart jumps or palpitates... is that a celiac thing or just my stress over waiting to hear something? ;)

Also, how long before you are back to normal ie - like you were before it all started?

I had that when I was severly anemic. I think because the blood can't carry enough oxygen so your heart tries to pump more. Have you been checked for iron, ferritin, B12, D?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for the advice - yes I am going to go gluten free, as because Sat and Sun I ate gluten, Tuesday a.m. I have D. It just makes sense. I have low B12 and am otherwise quite healthy despite my weakness, fatigue, palpitations, jitteryness, hair loss, ridges in fingernails and anxiety. These symptons REALLY majorly appear after I have had some sort of tummy virus or am sick, but the D remains a constant and tends to also appear around my time of the month. It could be hormonal too but it's gotta be the gluten.

question is there one symptom that all celiacs have or is it just that varied?

Symptoms can really vary a lot. I also had a worsening in symptoms around the time of my periods, well until celiac put me in early menapause. The delayed D is fairly common for us. Also what you think are tummy viruses may actually be celiac symptoms. I am glad to hear you are going to give the diet a good strict try. I hope you have quick results, and you may with the D, but some of the other stuff may take longer to resolve. Do get your iron, ferritin and vitamin levels checked also.

wow89 Rookie
wow89
Posted
  • Author

Thanks - yes I do have low b12 I know for sure... am getting other levels checks. Thansk for all your help!

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks - yes I do have low b12 I know for sure... am getting other levels checks. Thansk for all your help!

You should make sure you are taking the sublingual form of B12 supplements as you may not absorb the pills you swallow until you are fully healed.

annabella Newbie
annabella
Posted

I had a blood test on Wednesday, but am also told that it could be negative as I've been gluten-free for a few weeks now. Did you get your results yet?

wow89 Rookie
wow89
Posted
  • Author

Anabella - no test results yet? How about you? Waiting waiting waiting... It's just gotta be the gluten too much makes sense now!

I've been gluten free for a few days and am feeling lots better. My vitamin had wheat in it, changed to a sublingual B12 and and feeling better in all those aspects too. I used to also get sick after cleaning house, always thought it was because my hubby was germy - now I read cleaners have gluten.. could it be?

If it is positive I could have had this for 10-15 years!!! or more, I remember being constipated as a child a lot... is that a memory lots of kids have??? ;)

Will taking B12 and eating lots of eggs skew an anemia/b12 test?

So does all vitamin E mean what? I have a "holy grail" foundation I'm using and I really don't want to give it up :) (but I would) ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

Will taking B12 and eating lots of eggs skew an anemia/b12 test?

So does all vitamin E mean what? I have a "holy grail" foundation I'm using and I really don't want to give it up :) (but I would) ;)

Yes taking B12 will skew the results and so will taking folate as it can give a reading that is higher than it really is for the B12. I don't think the eggs will. Just tell your doctor what supplements you are taking before the doctor tests your levels.

Not all vit E is wheat derived some is soy derived and there are other sources.

The best way to find out about the foundation's source is to call the company and ask. Not all of us would be concerned about the source in foundation. As long as it doesn't contact any mucous membranes in your eyes, nose or mouth and you wash your hands well it might be okay. If in doubt use something else until you feel better and then see if starting up with it again causes any issues.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748
    tdouglas2901
    Newest Member
    tdouglas2901
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.