Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dexa Bone Scan

Mama Melissa

By Mama Melissa
in Related Issues & Disorders

Recommended Posts

Mama Melissa Enthusiast
Mama Melissa
Posted

Hey just wanted to know if any celiacs out there have ever gotten this bone scan test and what happened if you did have osteoporosis?? how do they treat it??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Test is easy no prep needed. I do have osteoporosis and they tried to push meds on me. I declined as I don't consider them safe and some research does state they are not good for celiacs. My doctor advised getting adaquate calcium and vitamin D and weight bearing excercise. You may want to see a recent thread on Fosamax and read all you can about those drugs before you agree to take them.

Mama Melissa Enthusiast
Mama Melissa
Posted
  • Author

thank you raven

mushroom Proficient
mushroom
Posted

My Vit. D was very low and I suffered a compression fracture in my spine from a fall injury, so all the docs assumed I had osteoporosis. I said I wanted another DEXA scan before making that assumption (I had had a screening scan 4 years or so before that said my bones were great), and guess what, my bones were still great :D But I still take lots of D and calcium....

sb2178 Enthusiast
sb2178
Posted

magnesium, vitamin K, and a diet that is high in fruit and veg (7+ servings per day) are also bone protective. Sufficient protein helpful, excessive protein harmful.

It's a very easy test-- you really just have to be wearing no metal or dense plastic and it takes (usually) between 5 and 11 minutes for a full body and less for a part like hip or spine.

cahill Collaborator
cahill
Posted

I am 54 years old .

I had my latest DEXA scan this past summer and it showed osteoporosis in my spine.

My doc IMMEDIATELY started trying to push Boniva on me.

I declined to go that route. I am taking supplements and doing weigh bearing exercises.And will closely watch the progress of the osteoporosis to decided wither or not to add drugs like Boniva.

Tina B Apprentice
Tina B
Posted

Hey just wanted to know if any celiacs out there have ever gotten this bone scan test and what happened if you did have osteoporosis?? how do they treat it??

normally it is done at age 50 but my gyn ordered mine at age 45 because of the celiac. The initial showed osteopenia which is the beginnings of osteoporosis. The follow up 2 years later showed no change which is good. I had added weight bearing exercise (treadmill, eliptical) and weight training as well as calcium with magnesium. The reason for doing it earlier was to see if I would need something like Fosamax or Boniva earlier than expected.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

I've had several. I was dx'd with osteoporosis and osteopenia at 34, and it kept getting worse every year, even with reclast injections. Once I was dx'd celiac, I am sure to take my calcium and D religiously and exercise 5 times a week. My most recent (first post diagnosis) dexa scan showed "dramatic improvement," with no drugs. Doc was astonished and said keep it up!

The test takes like 5 minutes. You just lay there (with no metal) and then you're done. Easiest test ever!

  • 1 month later...
ILoveflowers74 Newbie
ILoveflowers74
Posted

I also (like mushroom) compression fractured my spine at 28 yrs old....that's when I got my first scan . Dx osteopenia... Was told to take calcium and d for a year and repeat the scan I even added weight bearing exercise I was jacked lol. However my 1 yr follow up was worse . I couldn't understand it . I mentioned to the doc that it seemed like I wasn't absorbing it... Cuz I was taking it. It just kinda was forgotten about until now with my suspecting celiac . My most recent scan which was the first in 4 years was worse still. Currently doing the gluten challenge . Can't wait to be able to absorb and try to save my bones I'm 37 now time is running out ? I have no doubt that I'm a celiac . I just need my dx for backup. ... So I can go back to being gluten-free and begin recovery again... I cannot wait.

Good luck with your scan. It's very Easy you'll see. :)

shopgirl Contributor
shopgirl
Posted

My scan was clean thankfully. I spent my life drinking enough milk to choke a cow so I'm guessing that helped. Like the others said, it's easy: you just lie on the table for a few minutes while they scan you. I got to listen to the tech tell me about her weekend plans (visiting her grandchildren and finishing a knitting project, if you're interested).

My mother (non-Celiac) showed osteopenia but she declined all the drugs they pushed on her and has maintained her levels for the past five years by taking Vitamin D and eating a healthy diet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    2. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    3. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
    5. Scott Adams
      - Scott Adams replied to ElenaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      I think I am gluten intolerant

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS). Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. Your situation is a classic p...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,906
    • Most Online (within 30 mins)
      7,748
    Dakota4
    Newest Member
    Dakota4
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.