Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Official I Had My Endo And Colonoscopy Today!


okieinalaska

Recommended Posts

okieinalaska Apprentice

The prep was no fun but I made it through and had both a colonoscopy and endoscopy today. All the docs and nurses were super nice (I go to the military hospital) and some were very funny. I remember being hooked up and the nurse saying they were putting in the stuff to make me sleep and then I woke up back in my "room". I felt so good, nothing hurt. For some reason I was sure they had forgot to do my endoscopy I felt so good, LOL.

The doc was able to tell me right then that I had Celiacs. But he also took 8 samples and they are being sent to the lab. I got a cool printout with color photos of everything so I get to see what it looks like. On my paperwork it says:

"There was diffuse duodenal smoothness, loss of villi, fissuring and scalloping of the mucosa that was endoscopically consistent with celaic spure-duodenum."

"Severly atrophic mucosa was found in the 2nd portion of the duodenum."

"Mildy erythematous mucosa was found in the antrum and body of the stomach."

I also had a polyp in my stomach they removed and two in my colon. They are sending those to the lab.

I came home and took a nap for 5 hours.

It's such a relief to finally know and now I can start feeling better! By the way, tomorrow is my 42nd birthday! Happy Birthday to me. :lol: I get the gift of feeling a whole lot better!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf-soph Apprentice

Congratulations! It's so nice to have a clear answer, and great that you are feeling fine afterwards.

divamomma Enthusiast

I am glad you found some answers! Now the fun begins LOL! Good luck :)

ravenwoodglass Mentor

Happy Birthday. Now you know for sure and hopefully you will have lots of healthy and happy gluten-free birthdays in the future.

shopgirl Contributor

Aw, pictures to hang on the refrigerator! :) I wish I'd gotten pictures.

Happy birthday and congratulations. Imagine how much better you'll feel for your next birthday.

LDJofDenver Apprentice

And, you're one of the lucky ones. There's no doubt (no negative or borderline blood work, etc.).

You know definitively what you've got and you know what you've got to do. Honestly, there's something to be said for knowing. For me, it was a relief after years (OK, decades) of NOT knowing what the heck was wrong with me.

Here's to your healing! Hip Hip

okieinalaska Apprentice

I 100% agree LDJofDenver. I am very greatful to be sure. That was one reason I wanted to keep eating gluten even though it took me 7 weeks from blood work till my endoscopy. I knew that if I knew there was damage to my intestines and saw it/heard it for myself, that would help me to be totally gluten free.

On that note, I was making the bc gluten-free brownies and accidently sprayed the pan with the baking PAM, the one that has FLOUR in it! Yikes! I threw the pam away and had to find another pyrex pan to put the brownies in!

The brownies are pretty good btw. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Looking for answers Contributor

I love your positive outlook. It will serve you well on your path to wellness.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.