Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am So Mad!

mommyto3

By mommyto3
in Coping with Celiac Disease

Recommended Posts

mommyto3 Contributor
mommyto3
Posted

I can't believe how uneducated some doctors are! It's scary....

Lately my husband has been breaking out in really bad rashes around his armpits that are super itchy (he hasn't switched soaps or deoderants or anything like that). The skin eventually breaks in places as he scratches and then the rash kind of scabs over in places but is still really angry looking and inflamed. He used to get this behind his knees periodically and we always felt it was related to food because it would flare up a couple of hours after eating. The armpit rash is the same but just in a different place....

Last year both me and my son were diagnosed with Celiac and my husband's father also has the disease. Yesterday my husband went to our gp and showed her the rash and asked to be tested for Celiac. Her answer was an absolute NO because he doesn't have gut symptoms. She said there's no way he could have celiac without gut symptoms and when he tried to explain that many people with Celiac do not have gut symptoms (our son included) she got irritated and told him the test would be a waste of money and she wasn't ordering it. She gave him steroid cream and sent him on his way without even making an attempt to try to figure out the cause.....

I am so upset by this. Our doctor is often closed-minded to suggestions from patients (she hates it when you try to give any insight into your condition) and she's a pharmaceutical pusher. But to go so far as to refuse to order a simple blood test when two direct relatives have the disease? That is just ridiculous. We have considered switching doctors before but it's hard to find GPs where we are (Canada).

I just can't believe a doctor could be so misinformed and petty.....just had to vent!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Monklady123 Collaborator
Monklady123
Posted

Yeah, some doctors don't seem very responsive. -- Maybe in your dh's case he should just go gluten free with you and your ds. He doesn't need the blood test to try it, see if his rash goes away. Then if it doesn't you'll know to look at something else.

cdog7 Contributor
cdog7
Posted

Arrgh, I feel your pain! It really is maddening, and scary. I encountered a lot of this kind of ignorance from doctors when I was trying to get diagnosed, and honestly it still enrages me.

If it is possible to switch doctors, I think it might be worthwhile. It's of course worth trying to get a diagnosis, but you and I know how difficult that is made for us, meanwhile we're in pain or sometimes losing time at work, etc. He could always try the gluten-free diet for a trial run to see how he feels after at least a couple weeks (maybe up to a month). But even if this works, having a doctor that will actually listen to your symptoms, at least believe him if/when he says 'gluten intolerant', it could be important down the line when they prescribe him anything for instance.

Good luck!

kareng Grand Master
kareng
Posted

Maybe he should take the rash to a dermatologist to get a biopsy next to the outbreak.

My GYN nurse practitioner know more about celiac disease than the GI that did my endo. She suggested that we see younger GPs or internists. They are more likely to have been taught something about celiac disease.

frieze Community Regular
frieze
Posted

...and in canada, isnt there a legal/monetary advantage to having the "official" dx??

mommyto3 Contributor
mommyto3
Posted
  • Author

...and in canada, isnt there a legal/monetary advantage to having the "official" dx??

I think you can claim the Celiac on your income tax so you get a deduction for the extra cost of food but from what I've read, they make it so difficult to calculate/corroborate that the effort isn't worth it for most.

I really am considering switching doctors. The only trouble is that there are 5 of us including me and my husband and finding a doctor to take on that many patients (let alone 1) is hard.

Thanks for the suggestion to ask a dermatologist but I doubt she'd even give the required referral. We're hoping that the naturopathic MD we see for allergies will test him. He's very open to most things and doesn't have the usual "god complex" that most MDs have.......

Cypressmyst Explorer
Cypressmyst
Posted

My husband has the same rash. It seemed to get worse on the underarms with certain deodorants but we have noticed since going gluten-free and working to fix his adrenals he no longer has this problem.

Going gluten-free is the best test you can do, hands down. The ignorance and attitude of most Docs is appalling!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

it's a combination of being trained by schools run by pharmaceutical companies.. but also not being trained in every specialty. she's a GP- so, she's not gonna know every detail of every area... my GP is the same way. just the other week my Gyno told me that it was completely okay for me to go on Orthocyclen even tho im on Synthroid... and this week i asked my Endocrinologist- and she said no, and explained the hormones in great detail. so... whats my point???? ummm

ya, i understand... i often have to really really speak up for myself.. maybe your husband should just lie and say he has "D" all the time. sometimes you have to speak in "their" language

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,382
    • Most Online (within 30 mins)
      7,748
    victimm
    Newest Member
    victimm
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • lauramac
      COVID19 and getting glutened

      By lauramac · Posted

      I was diagnosed with Celiac Disease abput 10 years ago. When I was initially diagnosed my only "symptom" was persistently low iron (that occasionally dipped into anemia). After diagnosis,  over time, I started to develop symptoms when exposed to gluten--they have been overall relatively minor, but have increased over time (and yes, I realize my guts are likely being wrecked regardless of the symptoms) on the rare occasions I've been exposed to gluten. I had COVID19 last week (now testing negative) and was glutened last night (never trust anything labeled gluten-free in a mixed environment). I had my traditional symptoms (sharp gas pains, burping, nausea, stomach ache) but they were accompanied by new, more intense symptoms (muscle cramps all over my body--feet, calves, biceps, neck, shoulders, jaw, abdomen, I'm still sore today and cold sweats). I spent about 6 hours writhing before I felt well enough to get up.  I have been told by my allergist that COVID19 can cause your immune system to hyper react. I'm wondering if that's what happened here.   Has anyone else had experience getting glutened post COVID19? Relatively shortly after recovering from COVID19? Was it a more extreme reaction or same? I can't seem to find any articles on this, so I thought I'd ask the community.  Thank you!
    • Rogol72
      Draft gluten-free ciders… can they be trusted ?

      By Rogol72 · Posted

      A friend of mine is in the bar trade most of his life and has never heard of lines being mixed for different type of beers and ciders. Better to stick with cans.
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      Thanks very much for confirming my suspicion @Scott Adams! That helps a lot because I'm really trying to track down and get rid of these sources of cross-contact and so I'm going to just rule out the draft ciders and hope that helps. Also @Rogol72 its nice to hear you haven't had a problem on that side of the pond - draft cider lines being used for cider only certainly sounds like the right way to do it, but I think that must not always be practiced over here! 
    • Zuma888
      Gluten challenge and Hashimoto's Thyroiditis

      By Zuma888 · Posted

      I didn't ask a doctor about this actually. I did ask several doctors a long time ago and they told me gluten has nothing to do with hashimoto's. One of them told me to do a gluten challenge to test for celiac, but at the time I was in graduate school so couldn't afford to be even more ill than I was. If you have the symptoms, I really don't advise you to do a gluten challenge. It messed me up mentally and physically for months. At the same time, I benefitted from doing the challenge in the sense that it convinced me that all my symptoms were truly from gluten - even stuff like insomnia! So now I am terrified to eat gluten, whereas before I would have a little once in a while and not notice anything dramatic. 
    • Winnie-Ther-Pooh
      Gluten challenge and Hashimoto's Thyroiditis

      By Winnie-Ther-Pooh · Posted

      I am in a similar situation where I can't feasibly do a gluten challenge but have all the symptoms and I have 2 celiac genes. I'm curious if your doctor advised you to eat as if you had a diagnosis or if they were more dismissive about it. 
×
×
  • Create New...