Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cytomel & Synthroid Generic gluten-free?


cassP

Recommended Posts

cassP Contributor

hello again fellow Hashimoto's sufferers...

1st off, thankyou so much for providing so much comfort and information on here- i would be a mess without you all, seriously.

so, i almost lost it tonight at the pharmacy. i'll try to be short. Right now, i'm on Synthroid Brand Name 50mcg ( i already called the company last week- they are gluten free), and i am on Cytomel Brand Name 5mcg (gluten-free).. my doc tried me at 2 Cytomel pills a day... and NOW- she has me taking 3 of those a day.

Soooo- i asked my doc if we should up my dosage and then i could just break the pill, because 90 pills of Cytomel a month would be too expensive. she said the price should not change if she is prescribing that amount.

well, it did. maybe it's because i have United Healthcare/Catastrophic insurance... but i canNOT afford 77$ a month on Cytomel alone.

my question is: do any of you know for sure if there is any GENERIC SYNTHROID & GENERIC CYTOMEL that is 100% gluten-free????? i looked thru this forum, and someone mentioned Paddock & Mylan made gluten-free Cytomel... but that's all i could find. many of my local pharmacies no longer carry Mylan products :(

if any of you have any helpful advice, that would be so great!!! i have to call my doc tomorrow- cause i cant spend 77$ plus 17$ (synthroid) every month... and i cant go back to how i was feeling either :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tigercat17 Enthusiast

Hi there,

I've been taking Levoxly from King Pharmaceuticals & it is gluten free the last time I checked -last year.I'm really sensitive & I've never had any problems with it.

Open Original Shared Link

cassP Contributor

Hi there,

I've been taking Levoxly from King Pharmaceuticals & it is gluten free the last time I checked -last year.I'm really sensitive & I've never had any problems with it.

Open Original Shared Link

thanku, sorry for never replying.

i did find out my brand name Synthroid, and my Cytomel (brand or generic) are both gluten-free. but because of the HIGH COST, my doc is now going to try me on Armour- i hope i like it, cause it's much cheaper, but im a little worried, cause i think i prefer a higher ration of T3

your dog is ADORABLE :)

compucajun Rookie

thanku, sorry for never replying.

i did find out my brand name Synthroid, and my Cytomel (brand or generic) are both gluten-free. but because of the HIGH COST, my doc is now going to try me on Armour- i hope i like it, cause it's much cheaper, but im a little worried, cause i think i prefer a higher ration of T3

your dog is ADORABLE :)

I actually like the Armour better, but because of supply issues I had to change to generic synthroid.

MaryJones2 Enthusiast

I've taken quite a few generic brands of both wtih no issues. Never found one that has gluten in it. Armour is great and I prefer it but over the years the company has had issues keeping up with demand so be prepared to switch back to synthetics occasionally.

You can use this database to find all of the ingredients in a particular generic - you just have to know who manufacturers it: Open Original Shared Link

Tigercat17 Enthusiast

thanku, sorry for never replying.

i did find out my brand name Synthroid, and my Cytomel (brand or generic) are both gluten-free. but because of the HIGH COST, my doc is now going to try me on Armour- i hope i like it, cause it's much cheaper, but im a little worried, cause i think i prefer a higher ration of T3

your dog is ADORABLE :)

Thanks cassP! Good luck with the Armour! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    2. - trents commented on Scott Adams's article in Kids and Celiac Disease
      2

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

    3. - Russ H replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    4. - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    5. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,001
    • Most Online (within 30 mins)
      7,748

    bonniebeebe143
    Newest Member
    bonniebeebe143
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      I agree with @trents that the IgA you listed sounds like a total IgA, not celiac-specific, if 114 is normal.  Were any other antibody tests run?  
    • Russ H
      What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility to coeliac disease it should be possible to give a diagnosis. There is a bit more here: Seronegative coeliac disease
    • Scott Adams
      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.