Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starving! Please Assist!


Newtoitall

Recommended Posts

Newtoitall Enthusiast

Ok, so as it stands

Known issues with

Soy

Gluten (obv)

Lactose

and the worst one is Fructose Malabsorbtion (do you know how many delicious thing's that takes off the table)

Is there, by any chance, a book or online guide to recipes for such an intolerant person, Perhaps I'm just healing.

However I do need to stay Monk style for a while, when I eat badness it isn't just awe dayum for a night It get's me for like 2 days and the third being iffy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Have you actually been tested ? You can sub rice milk, almond milk,vance's dairy free, better than milk for any dairy in recipes. There are many recipes on this

site plus you can google & you will find other sites that have gluten-free, df, cf....... all articial sweetners make me sick plus most of them are BAD for your intestinal tract anyway. I do not do soy either....the non-gluten free people at my house love vanilla almond breeze for the morning cereal....

hth mamaw

Newtoitall Enthusiast

Have you actually been tested ? You can sub rice milk, almond milk,vance's dairy free, better than milk for any dairy in recipes. There are many recipes on this

site plus you can google & you will find other sites that have gluten-free, df, cf....... all articial sweetners make me sick plus most of them are BAD for your intestinal tract anyway. I do not do soy either....the non-gluten free people at my house love vanilla almond breeze for the morning cereal....

hth mamaw

Tested, Negative, Only for celiac disease and that was positive and high first try.

Gastro app is on march 1st, screw going back on gluten the difference was obvious enough.

As for Fructose malabsorbtion and soy, those are based off how I felt after having things like soybean oil or soy lecathin or however that's spelt, and I had a small bowl of fruit one night, and the big bad D the next day, and my stomach wasn't to happy, then similar weird feelings from a bowl of jello... I mean really if jello does it that's sensitive =/

um from what I read It seems like intolerance testing is only at city hospitals I doubt I can here (I live in the sticks) but I do plan on trying to get tested, ugh and I know how you feel, when my cousins come down they GORGE themselfs on candy and chocolate and *tear* mint icecream..well ok I made that up I just have it sit there and look at the ice cream..got it at xmas >_> pre diagnoses oh the irony, got a HUGE pile of xmas candy all my favs cannot have any -.-

cahill Collaborator

someone once told me to concentrate on what I CAN eat not what I cant.

Do you have a SAFE foods list?? (Foods that you know are safe for you to eat)

For me ,,right now the safest way for me to eat is very very plain simple meals

I dont know of a book or recipe site that would be helpful but I will watch this thread HOPING someone could suggest one

T.H. Community Regular

For fructose malabsorption, this is a list of safe foods, in a nice chart format:

Open Original Shared Link

However, some other possibilities?

- What fruit did you eat when you got D? Apples, pears, and most citrus have wax coatings that are made from shellac wax, which has either soy or casein added to it! (when you cut into the citrus, if you are REALLY sensitive, the knife will pick up a little of what's on the peel and carry it into the fruit as you cut in.) So, the fruit could actually be soy, too! I believe there are some other fruits and veggies that might use shellac, but there are other waxes, too, and I only know the exact one for the above three. I know that some sprays for produce, preservative, fertilizers and such have gluten cc - I wonder how many have soy cc, too? If you react to the soy oil, I would think you may be very sensitive.

- It might be worth your while trying to find some sites for people with soy allergies - they tend to be really good about showing you hidden sources of soy, ya know? Although I'd go for the forums/personal blogs. They are a LOT more motivated due to personal interest. The doctor sites tend to be pretty, well, unaware about the REALLY hidden soy. For example, I found this, just on the first try (not so helpful, but just basic)

"Soy Allergy: Avoid These Ingredients

* edamame

* miso

* mono-diglyceride

* natto (Japanese fermented soybeans)

* tofu (soybean curds)

* okara (soy pulp)

* soya, soja, soybean, soyabean

* soy protein (isolate / concentrate)

* tempeh

* TSF (textured soy flour)

* TSP (textured soy protein)

* TVP (textured vegetable protein)*

* yuba (tofu skin)

* Textured vegetable protein can come from different vegetable sources, including soy.

You may also see the words "soy lecithin" on a label. Soy lecithin is a soy fat, not protein, and is often tolerated by those allergic to the soy protein. However, in some

circumstances, very sensitive individuals can react to it."

(from Open Original Shared Link)

- also, something to look out for is there is a lot of fraud going on with olive oil right now, where cheap soy oil is being substituted with a dye, instead. If you react to an olive oil, you may want to assume soy and try another one, at first.

- for jello - it doesn't have fructose, but sucrose, so that'd be sugar cane. However, many celiacs have more trouble with dyes and preservatives, so that might be more of the issue, ya know? Or you have trouble with fructose and sucrose, both.

Good luck to you!

Newtoitall Enthusiast

someone once told me to concentrate on what I CAN eat not what I cant.

Do you have a SAFE foods list?? (Foods that you know are safe for you to eat)

For me ,,right now the safest way for me to eat is very very plain simple meals

I dont know of a book or recipe site that would be helpful but I will watch this thread HOPING someone could suggest one

Sadly I don't, that is why I turned to here, but I guess I will have to just "bea tuffy" and deal with it, all I eat atm is like plain chicken, plain roast beef, and canned chicken >_> I've been eating mccains shoestring, they seem to be ok, but I'm dealing with some sort of stomach issue so often lately I really can't tell =/

Mom decided to make toffy -.- and I decided to try it, was fine till the next day and the day after -.-

I really don't know how people deal with this it's driving me nuts.

Jestgar Rising Star

90% of my meals consist of poultry and veggies. At this point I'm quite happy with it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

Sadly I don't, that is why I turned to here, but I guess I will have to just "bea tuffy" and deal with it, all I eat atm is like plain chicken, plain roast beef, and canned chicken >_> I've been eating mccains shoestring, they seem to be ok, but I'm dealing with some sort of stomach issue so often lately I really can't tell =/

Mom decided to make toffy -.- and I decided to try it, was fine till the next day and the day after -.-

I really don't know how people deal with this it's driving me nuts.

my meals ,,right now are very very basic,include

lamb,ground lamb being the best,

turkey,, chicken is a no-no for me but turkey is OK

veggies,carrots,green peas,green beans,yellow squash,bok choy and yummy sweet potatoes

white rice

frozen ( never canned )peaches

that is my safe foods list,,these foods i know i can eat without a reaction

not many yet but I am content to slowly try expanding that list

cyberprof Enthusiast

Ok, so as it stands

Known issues with

Soy

Gluten (obv)

Lactose

and the worst one is Fructose Malabsorbtion (do you know how many delicious thing's that takes off the table)

Is there, by any chance, a book or online guide to recipes for such an intolerant person, Perhaps I'm just healing.

However I do need to stay Monk style for a while, when I eat badness it isn't just awe dayum for a night It get's me for like 2 days and the third being iffy.

Have you looked at the Specific Carbohydrate Diet (SPD)? Many people on this site follow it. Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,782
    • Most Online (within 30 mins)
      7,748

    BH1951
    Newest Member
    BH1951
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ok thank you.  Me either 
    • Colleen H
      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.