Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Learning To Eat Gluten Free. Sleeping 10 -12 Hours. Related?


farnickle

Recommended Posts

farnickle Newbie

I'm still very new to this, figuring out the signals my body has been sending. Low energy, depression, lethargy, weakness were definitely symptoms that lead me to stop eating gluten. I got a quick peak in energy, deeper sleep, and renewed happiness/vitality about a week after giving up gluten. Since then, quite honestly, I've been kind of dense about figuring out the food labeling system. I've used this site a good bit. I believe I've gotten glutened quite a few times. Since I don't have sharp stomach pains, I'm sometimes not sure if I've been glutened or not! I'm still figuring out my body awareness & figuring out what's "me" after these years of putting up with discomfort and low energy.

Probably TMI. Here's the point. I regularly go to bed between 10 and 11. For a couple of weeks I just can't get myself out of bed at all. My husband can bring me breakfast in bed, my dog can lick my face, my alarm can go off, and off, and off.... but I can't wake up until I've had 10 - 12 hours! I've slept past several important engagements (that I was looking forward to!).

Have y'all experienced this kind of sleep as you heal from gluten? Or as a symptom of accidentally consuming gluten? Any advice?

Again.. thanx for this amazing resource!!! I have learned so much on this site & forum. <3


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

Welcome to the forum farnickle!

Are you taking any vitamins? Have you had your vitamin levels checked? It is recommended that you supplement your diet with them. A good multi, b-complex, fish oil and I'm sure others will have suggestions too.

eatmeat4good Enthusiast

I used to sleep like I was dead.

I couldn't hear the alarm, the phone, my son, nothing.

It was very scary.

I had no idea what had happened to me.

Once I slept for 20 hrs and didn't know what day it was.

Woke delirious and confused.

It went away in the second month gluten free.

The first month I still needed like 10 hrs a night.

Now I sleep normally and wake with no problems.

Hang in there.

It will get better.

shopgirl Contributor

If the doggie is eating food with gluten in it, it's not a good idea to let him or her lick your face. That's one way to get glutened. ;)

  • 2 weeks later...
mom2three23 Newbie

I actually feel a bit more normal now. You have described me to a T. I also experienced the peak shortly after going gluten-free, and was very excited, but then the valley again. It is good to hear that it will get better! I had a vitamin D panel done and my D levels were bottomed out. I have been started on a good VD oil (health food store) and I do think it is helping! Maybe we can figure this out together (I am newly diagnosed and trying to find my way . . .)

glutenfreesavvy Rookie

Sleeping a lot could also be a healing response. I do require extra sleep after accidental glutening, in fact I'm completely exhausted at first & have to sleep it off, so to speak. The only way to know that you're not getting small amounts of gluten is to prepare all your food yourself, from scratch - no processed or prepared anything for a while, even if it's labeled gluten free, imho. I've been glutened more than once from "gluten free" foods. I've blogged about it, if you're interested in more details. :)

I wish you all the best while you're in the depths of figuring the whole gluten-free life out. :)

warmly,

Faydra

rahga Newbie

I had a similar experience. This lasted close to a year for me: sleeping 10 - 12 hours (sometimes more) with occasional bouts of insomnia. Vitamins (double dose) help, as do digestive enzyes and fiber. At least that has been my experience. I am 56 and was diagnosed in November of 2009. I was strict about my diet from day one and by October or November of this past year my energy was back to near normal levels. I still have an occasional day when my energy lags or when I cannot get to sleep. Most days, though, I feel terrific. My guess is that if you remain patient with this, life will slowly come back together for you.

I hope that helps.

I'm still very new to this, figuring out the signals my body has been sending. Low energy, depression, lethargy, weakness were definitely symptoms that lead me to stop eating gluten. I got a quick peak in energy, deeper sleep, and renewed happiness/vitality about a week after giving up gluten. Since then, quite honestly, I've been kind of dense about figuring out the food labeling system. I've used this site a good bit. I believe I've gotten glutened quite a few times. Since I don't have sharp stomach pains, I'm sometimes not sure if I've been glutened or not! I'm still figuring out my body awareness & figuring out what's "me" after these years of putting up with discomfort and low energy.

Probably TMI. Here's the point. I regularly go to bed between 10 and 11. For a couple of weeks I just can't get myself out of bed at all. My husband can bring me breakfast in bed, my dog can lick my face, my alarm can go off, and off, and off.... but I can't wake up until I've had 10 - 12 hours! I've slept past several important engagements (that I was looking forward to!).

Have y'all experienced this kind of sleep as you heal from gluten? Or as a symptom of accidentally consuming gluten? Any advice?

Again.. thanx for this amazing resource!!! I have learned so much on this site & forum. <3


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



horseshoe Newbie

Pretty much, farnickle, you described some of my problems near exactly. Up until this past year I was a normal 8 hours a night person with drive and energy to do things. Then, about six months ago, I started sleeping longer and longer and longer. Around this same time (6mo) I stopped having energy to exercise or motivation to do things because I was/am always tired and needed a nap after every meal (or so it seemed.)

I've only been gluten free for a couple of weeks (still get CC sometimes) but I can actually do my job and I wake up when my alarm goes off instead of turning it off and sleeping three more hours. I'm hoping I can slide past the setbacks that others have commented on having (fingers cross :D).

cyberprof Enthusiast

I used to sleep like I was dead.

I couldn't hear the alarm, the phone, my son, nothing.

It was very scary.

I had no idea what had happened to me.

Once I slept for 20 hrs and didn't know what day it was.

Woke delirious and confused.

It went away in the second month gluten free.

The first month I still needed like 10 hrs a night.

Now I sleep normally and wake with no problems.

Hang in there.

It will get better.

I'm so glad that I read this thread. This used to describe me when I was young (and on gluten) and describes my son now, even though he is gluten-free. However, he is not as strict as he could be. He's a gifted student and a good kid but he can't wake up. I was wondering how he'll be able to survive next year at college. I've convinced him to be really strict for a month or two to see if it helps.

123bree7797 Newbie

I used to do the same thing it will go away in time

cap6 Enthusiast

I was the same. My iron levels were very low. You might have that tested. You may also just need the healing sleep. I slept 10 to 12 hours a day for months & am just now at the point where I can get along on 9.

Chiana Apprentice

I am 4 months in and I'm still really variable on how much sleep I need. Sometimes I have to nap for four hours in the middle of the day after 9 or 10 hours of sleep at night.

I'm so glad that I read this thread. This used to describe me when I was young (and on gluten) and describes my son now, even though he is gluten-free. However, he is not as strict as he could be. He's a gifted student and a good kid but he can't wake up. I was wondering how he'll be able to survive next year at college. I've convinced him to be really strict for a month or two to see if it helps.

Actually, as long as he is smart about when he schedules his classes, he'll be ok. I don't schedule anything before noon unless I absolutely have to. (It was actually my terrible minimum-wage job that suffered.) Though, he may get more strict on his diet when he realizes that he could be out having fun instead of sleeping all the time.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,733
    • Most Online (within 30 mins)
      7,748

    Debydear
    Newest Member
    Debydear
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.