Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Milk


ljeanh

Recommended Posts

ljeanh Newbie

Help, I am having reactions to some soy milk and found out the Silk uses barley in their process. I also cannot tolerate any rice so my choices seem to be limited. Went to Eden website and they claim their unsweetened soy to be gluten-free. Can't find any answers on West Soy website, which is the brand my health food store carries.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

Hi ljeanh.

I'm not sure on what brand of soy milk to suggest to you, we do not drink it. I have heard of many people reacting to soy products in general, not just the milk. I'm sure there are some who have their favorites and hopefully they will respond.

We personally like almond milk. I buy the unsweetened unflavored one so I can cook with it too. Vanilla mashed potatoes are not good. :P

Jestgar Rising Star

I also choose either almond or hemp milk. No soy for me.

shopgirl Contributor

Where did you read that Silk uses barley? They've made it pretty clear that they don't use any gluten ingredients in either their products or their plants.

There are a lot of threads in the forum about Silk Soy milks like this one:

Personally, I avoid soy because I don't like what it can do to a person's body

Gemini Experienced

Help, I am having reactions to some soy milk and found out the Silk uses barley in their process. I also cannot tolerate any rice so my choices seem to be limited. Went to Eden website and they claim their unsweetened soy to be gluten-free. Can't find any answers on West Soy website, which is the brand my health food store carries.

I am not sure where you got the information that Silk soy milk uses barley in their processing of the product but that is incorrect. They do not. In fact, none of the ingredients in their products contain anything of concern for a Celiac, plus, they are going to start testing for gluten in the near future. I am not sure why as they use nothing in their processes which contain gluten but it's a good step to make completely sure there isn't.

I am also an extremely sensitive Celiac, with no sensitivity to soy products, and if there were any amount of gluten in their product, I would react. In fact, I drink soy milk everyday so I would be in the hospital by now if that were true.

shopgirl Contributor

I was thinking about this and I'm wondering if you're confusing Silk with Rice Dream rice milk which bills itself as gluten-free but uses barley in the process.

ljeanh Newbie

Could be I was confused on the brand. I have been doing alot of searching of product websites. Thanks to everyone how gave me the tip on almond milk. It could be the soy I am reacting too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sunnybabi1986 Contributor

I have spoken to customer service representatives of Silk a few times now and they have assured me each time that there is no gluten in any of their products, processing, or on their equipment. They don't deal with any gluten products at all. :)

I believe you are probably thinking of Rice Dream Rice Milk, as Shopgirl mentioned.

ElseB Contributor

I drink So Good soy milk, and its definitely gluten-free.

CandyLady Newbie

I also choose either almond or hemp milk. No soy for me.

You may wish to try So Delicious Coconut Milk Beverages. They're the only dairy-free "milk" I use, and they're really good. They also make coconut milk yogurt and coconut milk kefir. Both contain prebiotics and probiotics, which are very important for our digestive health.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    4. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.