Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had To Laugh...

Guest imsohungry

By Guest imsohungry
in Gluten-Free Restaurants

Recommended Posts

Guest imsohungry
Guest imsohungry
Posted

My hubby and I went to a local restaurant the other night...

I never really think of myself as a person with Celiac, Epilepsy, Lupus, etc. (I just quietly go about my business until one of my problems gets in the way). B)

So here I am last Friday, sitting in this restaurant...when I suddenly realize what it has taken to get my body "comfortable" and "accommodated."

1. I am in a booth with plenty of leg room due to my poor leg circulation and bad knee

2. The booth must be in a warm side of the restaurant or my Raynaud's is bothersome (so I'm sitting in my booth wearing a JACKET in JULY!) :rolleyes:

3. I must avoid cigarette smoke due to Multiple Chemical Sensitivity and have plenty to drink due to the Sjogren's.

4. The lighting in the restaurant and patterns on the table-top were making me "seizury" so my hubby and I had to cover the table with napkins in order to avoid a seizure. (I think our waiter thought I was germ-phobic) :blink:;)

5. The waiter comes to take my order, I reply, "I'll have a hamburger, plain, no bun. A potato, plain. And a side of vegetables with no seasonings. :P

And so, there I sat, sprawled out in my booth, wearing a jacket, sitting over a table covered in neatly folded white napkins, eating food that was special-ordered and self-seasoned. :rolleyes:

I just had to giggle. -Julie ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


skbird Contributor
skbird
Posted

I'm laughing now. I was cracking up about this the other day - somehow I still consider myself low maintenance!!! I used to laugh my head off when watching the movie "When Harry Met Sally" and she thought she was low maintenance, but he says she's the worst kind - she thinks she's low maintenance, but really she's high maintenance. Well, that's me, now.

I tell people I can't have gluten. Then they say ok, how about this? Then I have to say, oh wait, I can't have nightshades. Ok, how about this? Oh wait, I forgot to mention, I'm allergic to shellfish. Hmmmm. What else? Oh yeah, I avoid corn, don't eat much sugar, and can I read that label to see if it has MSG or citric acid on it?

By the way, I can't be in the sun too much, mold causes me problems, and caffeine and alcohol are also out. Sorry! Are you sure you still want me to come over? :)

Anyway, even with all that, I think I do pretty well. Of course I'm about 4 days away from finding out if I have a connective tissue disease on top of all this, but heck, that at least won't add any more food restrictions (except maybe alfalfa sprouts!) to my list so I'm ok with that! :D

Thanks for the post... I have been saying for the last week to anyone who rolls their eyes at me that I really hope they broke the mold after they made me...

Stephanie

PS at least I haven't had a migraine in a while! :)

Guest imsohungry
Guest imsohungry
Posted
I was cracking up about this the other day - somehow I still consider myself low maintenance!!!

Hee, hee :P

Yeah, I know what you mean. I really don't think of myself as "high maintence" until I stand back and look at it all! I'm just an easy-going kind of person B)

Congrats on no recent migraines...I know from experience that everyday without one is a blessing! ;)

We gotta appreciate the irony of life! :rolleyes:

Merika Contributor
Merika
Posted
I tell people I can't have gluten. Then they say ok, how about this? Then I have to say, oh wait, I can't have nightshades. Ok, how about this? Oh wait, I forgot to mention, I'm allergic to shellfish. Hmmmm. What else? Oh yeah, I avoid corn, don't eat much sugar, and can I read that label to see if it has MSG or citric acid on it?

Stephanie,

Hahahahahaha, lol :D Same story here!

Merika

lgranott Rookie
lgranott
Posted

Thats so funny, I can completely relate. At first I was just a vegetarian by choice. Never made a fuss and always found something to eat--still low maintenance...

Then I slowly (perhaps b/c I am slow, lol) realized that I couldn't do the dairy thing--ok, I could still consider myself lowish maintanace...

NOW!!!! No gluten???? No one wants me around when it comes to food:)

I just don't understand why--lol. I am still low maintenance, aren't I? I'm easy going about all of it--I just can't eat anything ;)

Talk about there being nothing to do but laugh at yourself...

I had all this energy!!!! So I went on a fast-paced bike ride, then a 5 mile run. Wow!!! Haven't been able to do that in a while. Realized at mile 4 1/2 that I had hardly eaten and was about to pass out:) oops. So I took my very shaky self to Whole Foods and went to the prepared foods (which I never do) and found something that I thought was gluten-free. It had tofu tomato and soy cheese--great! Took it home and shovelled it in my mouth. After swallowing 5 bites w/o even chewing I began to taste what I was eating... I wondered what the chewy thing was--AHHHHH!!!!! Noodles. I read the ingrediants 3 times, I don't know how I missed it:( I guess I was too hungry, I haven't done anything that stupid before... Well I had a little while before I knew I would have a reaction--so after panicking, I just laughed b/c there was nothing else I could do. So now on day two of my punishment--ouch!

Liatt

celiac3270 Collaborator
celiac3270
Posted

Ha...that's kind of funny, but in a twisted way :lol:

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Laughing about it is the best thing to do! It's a lot of things to do but at least you are out there doing them and being happy!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted

It's nice to be able to laugh at ourselves and also be able to go out and have fun at the same time ;)

jenvan Collaborator
jenvan
Posted

I always say I'm high-maintenance in ways I can't choose--but in the ways that matter--like relationally, I am low maintenance--I don't get into fights, don't like 'drama' in relationships etc. So, at least we're not trying to be a pain in the butt like some people are--we can't help it when we're a pain !! :lol: lol !

Guest imsohungry
Guest imsohungry
Posted
...So, at least we're not trying to be a pain in the butt like some people are--we can't help it when we're a pain !! :lol: lol !

HA! Very true. I work with a lady who is never happy with anything...when the office goes out for lunch, she complains about everything from the service and seating to the temperature of the food and the background noise. <_< (Needless to say, she is a pain in the butt...not to mention no fun...to eat with). :ph34r:;)

I may be "high maintenance," but at least I can still laugh about most things!

Just for the record Jen...I've don't get in fights either. :D

Julie (High maintenance; Low drama) B)

watkinson Apprentice
watkinson
Posted

Hi everyone,

Just wanted to say how refeshing this thread is. :) I love how all of you have such great attitudes. Life may be a difficult at times but it's as good as we make it.....Life is great!!!! :D

Wendy

Guest gliX
Guest gliX
Posted

haha that stories hilarious..

whenever i go out to eat i just say i'm allergic to bread and they seem to understand

it's easier than explaining celiac disease

whenever i get fast food they go crazy, call a manager over, and have no idea what i want, after i say "no bun." :unsure:

mouse Enthusiast
mouse
Posted

Also love this topic. I just about never get invited to anyone's home to eat as they are just to afraid to feed me. Had one couple invite us over last fall for a cookout and she made me a gluten-free chicken breast and a fantastic tossed salad. I really appreciated the extra effort she went through so that I could be part of the group. Have a sister-in-law who lives about 1 1/2 hours east of us and my husband had had them over last fall and he did the cooking on the grill - burned it all and started over. I was still to weak to do much cooking or entertainting. We all had a good laugh over his cooking skills. In 42 years of marriage he had never had to cook or grill and I have to give him all A's for his efforts. But, the same sister-in-law was suppose to be a fantastic cook and she invited us to their place. She emailed a list of all the ingredients and I felt like a fool, when I had to email her back with no or if OK, what brand she had to use. I was so embarrased by the time the dinner came around. But STUFF my embarrasment - THAT WAS THE BEST MEAL, I have had since my diagnosis in 2/04. Now if I can only get them to move nearer to us. HA HA. We generally meet friends at restaurents, unless I cook the meal. When we do get invited to cookouts (not sit down's) I just bring something I like and cook triple of it - that way everyone can try it and I still get to stuff myself. Also usually bring a gluten-free cake or brownies and chuckle inside when they all rave about the great brownies, etc. I figure if maybe they realize this is not a big deal, maybe I can get invited to actual dinners.

Guest imsohungry
Guest imsohungry
Posted

Armetta and Wendy...nice to meet you! :) I don't think I've met ya'll before. Glad you are enjoying the thread... ;) I can't always find the humor in the health issues, but I try to laugh when I can! Keep smiling everyone. :D

Pegster Apprentice
Pegster
Posted

We have to laugh when my family goes to a restaurant together. I, too, just say I'm allergic to bread or to flour so the waiters understand. But daughter #1 is allergic to cashews and pistachios and avoids cheese and creamy sauces. Daughter #2 has the peanut allergy. My husband eats everything so he tells the waiter to bring him MY BREAD, and everyone else's nuts, cheese, etc. on a plate. He doesn't want anything to go to waste! :D

KaitiUSA Enthusiast
KaitiUSA
Posted
We have to laugh when my family goes to a restaurant together.  I, too, just say I'm allergic to bread or to flour so the waiters understand.  But daughter #1 is allergic to cashews and pistachios and avoids cheese and creamy sauces.  Daughter #2 has the peanut allergy.  My husband eats everything so he tells the waiter to bring him MY BREAD, and everyone else's nuts, cheese, etc. on a plate.  He doesn't want anything to go to waste! :D

<{POST_SNAPBACK}>

HAHA thats great :lol::P My family would have probably dont the same thing...hey if your paying for it anyway you might as well get anything you can out of it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    2. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    3. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    4. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    5. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,337
    • Most Online (within 30 mins)
      7,748
    Susan1001
    Newest Member
    Susan1001
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.