Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When You Feel So Tired But You Can't Sleep....

healinginprogress

Recommended Posts

healinginprogress Enthusiast
healinginprogress
Posted

Yes, it's a Coldplay lyric, but it always goes through my head when I'm lying here NOT sleeping. I had maybe four hours of sleep last night, had to do a few things this morning, but then had a couple hours off where a nap would have been wonderful and beneficial, I'm sure.

My body needs rest to heal, and I'm very tired, but I just can't seem to fall asleep. Usually at night I take prescribed meds, but they didn't do much last night.

I guess I'm still resting by lying on the couch, but it's really not the same. I just started an elimination diet, so I don't see my energy levels really going up much in the next little bit...I NEED SLEEP~~~ :blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eatmeat4good Enthusiast
eatmeat4good
Posted

Try Melatonin.

I use 5 mg. a night and it really works.

There is no hangover effect.

It helps your body with other stuff too.

Read up on it if you haven't, it is really fascinating.

It is said to help stimulate growth hormone which is exactly what we need when we are healing.

I have read that people eventually get used to it and have to increase the dose for it to be effective.

That hasn't happened to me. I have much more refreshing sleep when I take it, than I do when I don't take it.

I also use it in a smaller dose when I have anxiety and want to calm it down, but not go to sleep.

It is very safe and effective.

Roda Rising Star
Roda
Posted

Try Melatonin.

I use 5 mg. a night and it really works.

There is no hangover effect.

It helps your body with other stuff too.

Read up on it if you haven't, it is really fascinating.

It is said to help stimulate growth hormone which is exactly what we need when we are healing.

I have read that people eventually get used to it and have to increase the dose for it to be effective.

That hasn't happened to me. I have much more refreshing sleep when I take it, than I do when I don't take it.

I also use it in a smaller dose when I have anxiety and want to calm it down, but not go to sleep.

It is very safe and effective.

So would this work for shift work too? I work nights and have trouble getting good sleep in the morning after I get off work. I had thought about taking provigil to stay more alert at work when I didn't get good sleep, but it has gluten in it. Even if it had been safe my doctor didn't recommend it for me. She thought it would increase my heartrate too much since it is on the high normal side. I am very reluctant, or I should say refuse to take sleep aids. For me the prescription sleep aids are not an option that I will even consider. If this is not habit forming then it might just help on the mornings I need sleep. Is this prescription or otc?

eatmeat4good Enthusiast
eatmeat4good
Posted

It would certainly help you with that situation.

People often take it for jet lag for that very reason.

It is non-addicting.

No hangover effect.

Just mildly relaxes the brain and you can sleep.

It is over the counter.

It comes in many different milligram sizes. I started with 3 mg. a night and went up to 5 mg.

It is perfectly harmless according to all I have read and in my own experience.

It is in the vitamin section of health food stores and I've even gotten it at the Walgreens or your local pharmacy.

It has a lot of benefits.

I give it to my teenager when he stays up to late on Sat night and then can't get to sleep on Sun. night.

It's not a medicine, it is a supplement.

It sure helps and I would think it would be perfect for shift workers whose hours change.

Try it.

Roda Rising Star
Roda
Posted

I would like to try it but just read on one site that it can interact with verapamil. I just started(trial basis) on it for the raynaud's symptoms. The verapamil can make the melatonin less effective by helping the body get rid of it quicker. However, it is getting warmer and I could just not take the verapamil and try the melatonin and see how it works. I fear that once I start something my body will not be able to adjust without it on the nights that I am at home and trying to sleep. However I do have trouble going to sleep at night when I am off also because of the shift work. When I schedule vacation it only takes about 3 days for my sleep cycle to shift back to normal and I usually feel great. I was on vacation for 17 days in Jan. and ever since then I have had an unusually hard time back on night shift. I've been dragging...my moods have been horrible.

healinginprogress Enthusiast
healinginprogress
Posted
  • Author

I would like to try it but just read on one site that it can interact with verapamil. I just started(trial basis) on it for the raynaud's symptoms. The verapamil can make the melatonin less effective by helping the body get rid of it quicker. However, it is getting warmer and I could just not take the verapamil and try the melatonin and see how it works. I fear that once I start something my body will not be able to adjust without it on the nights that I am at home and trying to sleep. However I do have trouble going to sleep at night when I am off also because of the shift work. When I schedule vacation it only takes about 3 days for my sleep cycle to shift back to normal and I usually feel great. I was on vacation for 17 days in Jan. and ever since then I have had an unusually hard time back on night shift. I've been dragging...my moods have been horrible.

Melatonin is intended to help normalize circadian rhythms. I don't generally find it helpful, however, my med tolerance is pretty high, possibly due to damage to my insides? As an experiment, I will try it tonight, instead of my sleeping pill (which is prescribed, it's actually an antidepressant that makes me sleepy, but I take an antidepressant during the day, so don't worry about me going off a med or anything, I don't take the sleeping pills all the time)

I do like the potential of use as an anti-anxiety...I've been having a lot lately, despite my meds.

I'll let ya know how it goes...I have to be up super early for a hydrogen breath test, anyways :P

healinginprogress Enthusiast
healinginprogress
Posted
  • Author

Omg...I haven't slept at all...and I took five of the damn things! I'm fasting for my lab test, and I don't know if that's what's caused it, but I have the worst headache. And now there's a wind warning and it's so loud it sounds like I'm gonna blow away! Lab test is in 3hrs...I'm really hating life right now!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

I know that must suck not sleeping. About two weeks ago I was up for almost 24 hrs. Not fun!

healinginprogress Enthusiast
healinginprogress
Posted
  • Author

Yeah, I've been up since 6am yesterday :( it's almost 5 and I have to get up at 6am to go to the lab. Sigh...really wish someone hadn't booked me on at work today, but at least it's only an hour.

Jestgar Rising Star
Jestgar
Posted

Omg...I haven't slept at all...and I took five of the damn things! I'm fasting for my lab test, and I don't know if that's what's caused it, but I have the worst headache. And now there's a wind warning and it's so loud it sounds like I'm gonna blow away! Lab test is in 3hrs...I'm really hating life right now!

5 is too many. It's supposed to be a mild sleep assistant. Taking five would really screw up your hormone balance and make keep you awake all night. :P

healinginprogress Enthusiast
healinginprogress
Posted
  • Author

Awesome. I only took more because it wasn't working

healinginprogress Enthusiast
healinginprogress
Posted
  • Author

I'm sure the empty stomach and bad headache didn't help matters. Today will suck, but I'll get through it somehow

Jestgar Rising Star
Jestgar
Posted

yeah, it's a weird one. It makes me feel 'heavy', but not really sleepy, and I feel a bit hung over if it's been less than 8 hours or so. I think of it not as a sleep aid, but more of a 'sleep better' aid.

Even though you'll be tired, you'll feel better once it's out of your system.

Jestgar Rising Star
Jestgar
Posted

too late now, but people also use benadryl as a sleep aid.

healinginprogress Enthusiast
healinginprogress
Posted
  • Author

Benadryl never makes me sleepy. Gravol, sometimes. But I think I'll go back to the Rx

IrishHeart Veteran
IrishHeart
Posted

I must be "special". :unsure: benadryl makes me "hyper" not sleepy... and melatonin---well, I fell asleep, but woke up anyway..arrgh!! Valerian root, passionflower...WIDE AWAKE!! I remain, sleepless in NY :o

Really?/ how can we be so exhausted, yet not sleep or be able to nap?? I don't get it!!

healinginprogress Enthusiast
healinginprogress
Posted
  • Author

I must be "special". :unsure: benadryl makes me "hyper" not sleepy... and melatonin---well, I fell asleep, but woke up anyway..arrgh!! Valerian root, passionflower...WIDE AWAKE!! I remain, sleepless in NY :o

Really?/ how can we be so exhausted, yet not sleep or be able to nap?? I don't get it!!

No kidding, I feel like I've gone manic or something!!! I've basically been up since 6am yesterday, and I haven't had any caffeine or drugs or anything...I don't think this has ever gone on for so long in one bout, yikes :( I'll take a sleeping pill soon and force it outta me I guess

IrishHeart Veteran
IrishHeart
Posted

No kidding, I feel like I've gone manic or something!!! I've basically been up since 6am yesterday, and I haven't had any caffeine or drugs or anything...I don't think this has ever gone on for so long in one bout, yikes :( I'll take a sleeping pill soon and force it outta me I guess

Hope you got some ZZZZZZZZZZZZs! I cut out some foods with high salycilates (at the suggestion of another member) and got almost 6 hours last night...go figure!

healinginprogress Enthusiast
healinginprogress
Posted
  • Author

Hmmm salicylates...another thing to look up lol

Well, I did get some sleep, still tired, though...but I think that's a given. It's really nice out today...cold-ish, but at least sunny, so a walk with the dogs might perk me up.

Do/Have any of you experienced chills, or being cold all the time on the new diet? (I'm on elimination diet, not sure if that makes a difference)

  • 1 month later...
love2travel Mentor
love2travel
Posted

My insomnia is extremely difficult to bear. It is mainly due to severe back/hip/pelvic/shoulder/leg pain from a severe back injury three years ago. The only reprieve I get is with prescription sleeping pills. It's a horrible cycle. If I can't sleep my muscles cannot replenish themselves so the pain becomes worse then I cannot sleep because of the pain.

I've been gluten-free for two months and there is absolutely no difference but would love it is further down the road my insomnia were to end. Melatonin, Benadryl, etc. unfortunately have ZERO effect on me. The longest I've gone without sleep is TWELVE nights. I was hallucinating and so on. The doctors were scared of my organs shutting down so I had to be hospitalized and put on tons of Demerol, narcotics, etc. just so I could sleep. That was terrifying.

It is horrible when you just cannot escape it. :(

  • 2 weeks later...
Marilyn R Community Regular
Marilyn R
Posted

Benadryl never makes me sleepy. Gravol, sometimes. But I think I'll go back to the Rx

Interesting. Benadryl has always made me "crawl the walls" vs. sleep. I thought I was a lone ranger. :(

IrishHeart Veteran
IrishHeart
Posted

Interesting. Benadryl has always made me "crawl the walls" vs. sleep. I thought I was a lone ranger. :(

me too! Racy and wide awake...

I have had insomnia for most of my life. (now, I know why!!)

I STILL have not found anything to help me sleep (prescription or herbal)...but I did want to re-post and say that I can get to sleep now and most nights, I can go back to sleep if I wake up. I do get more than the 1 or 2 I was getting...some night -- ZERO sleep for many months....and like Love2travel, I have chronic pain that makes life horrible....and it wakes me up constantly. Yet, I cannot tolerate any medications whatsoever...sigh.

I know that feeling of hallucinating when very sleep-deprived.

BUT...the good news is....4 months gluten-free and I am at least getting about 6 now--with a few wake ups...I really need some restorative sleep...and I wonder if it will ever happen again in this lifetime??

Hope all of you are getting more ZZZZZs now...

sb2178 Enthusiast
sb2178
Posted

Magnesium is another one that could help as it is involved in regulating sleep. Celiacs (or those with chronic D) often are a bit low in it, but the blood test isn't incredibly reflective of total body nutrient status.

Try it for a week (200 to 400 mg) and see if it helps. Shouldn't hurt (although can have a mild laxative effect).

  • 2 weeks later...
FernW Rookie
FernW
Posted

Yes, I miss sleep, was told I have chronic fatigue syndrome which did not develop for almost a year after diagnosis, now I developed restless legs. docs are trying to get it to where I am a bit more comfy. I am addicted to sleep when I can get it. I also sleep for short periods of time not like 6 or 8 hr more like 2-3 in a 24 hr period.

FernW Rookie
FernW
Posted

Benedryl does nothing for me but its is good if, used to use it for sleep but nothing helps anymore.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,131
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.