Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am Stupid


elk

Recommended Posts

elk Rookie

Had a mini-melt down yesterday and apparently today. Yesterday I was out and "had to have" food, so I risked McDonalds fries... I'm too stupid to ask if they had a dedicated frier. Not sure if that's the cause of my migraine today since I had a headache before I ate them (I figure if I'm going to do the time then I'm going to do the crime :angry: ).

So THEN since I'm feeling miserable today, I went ahead and had some Kellog's corn flakes, only looking up afterward if Malt flavoring is an issue... and apparently it can be. So now I'm wondering how long I'll be miserable.

I don't normally eat processed foods and I've done so well over the past 6 months avoiding gluten and then I go and ruin it because I'm feeling bad. Why do I have to pay for every little thing I do?? I try so freaking hard and it seems no matter what I do, I'm doomed to feel miserable for the rest of my life. I already had to quit my job. Our savings are about depleted and it's all my fault. Medications don't work and make things worse. Doctors can't find anything wrong with me ("I'm the picture of health"). I really can't take much more of this and I don't know what else to do about it.

Sorry for the pity party... thanks for listening.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hnybny91 Rookie

First - you are NOT stupid! Second - you will get through this latest episode. We all have eaten things we should not have. You live and learn and it does get easier - I promise :)

kareng Grand Master

I try to have a little something with me - a small Snickers, bag of peanuts, Lara bar type thing. I have found that most mini-marts have little bags of peanuts, M&M's, yogurt. Something to get you through.

ravenwoodglass Mentor

Don't beat yourself up about it. As another poster said try to be prepared by keeping a 'goodie' bag with you so you don't fall to temptation when you are very hungrey. I hope your feeling better soon.

GFinDC Veteran

You are learning how to do things better. You are learning how your body reacts now vs a few years ago. Learning involves trial and error. Gettin' smarter is a process of time and errors. You is started down that path, keep going and you will get there! :)

elk Rookie

thanks for the support :)

Strawberry-Jam Enthusiast

I would do that a lot with my reflux before diagnosis--"well, if I'm already having terrible reflux and feel this bad, then I might as well eat what I want." Then it got worse... :angry: I hated myself several times for binging on chocolate (which I don't even LIKE! what is my problem?) and alcohol (by binge I mean not a lot but rather too close to bedtime) and paying for it now AND later.

brains are silly things. But things will def get better!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nmthommy Rookie

get the book "Why Do I Still Have Thyroid Symptoms? When My Lab Tests are Normal." by Dr. Kharrazian.

I was beginning to think all my issues where in my head. My doctor recommended that I read it and I'm now on my way to better health.

The doctors can only test for certain things and then the "refrence range" is based on your community results. So you could have issues but have "normal" readings.

naiiad Apprentice

*hugs* trust me I'm going through the exact same thing. Adjusting to this diet is hard and its easy to feel overwhelmed and it's easy to make mistakes. You aren't stupid and you definitely aren't alone. It takes time, but you'll learn which foods are safe and which aren't.

Anything packaged or processed is usually a red-flag, unless it's labeled as gluten-free. Nature's Path sells some really good gluten-free corn flakes and other cereals. Also, there are yummy foods that you can get from corner stores and stuff if you're away from home. Smartfood popcorn, reeses peanut butter cups and nuts and dried fruit (read the label) are a tasty and safe choice.

Things will get better! Hang in there =)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.