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Entrolab Testing


twe0708

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twe0708 Community Regular

Do you recommend it? I already know I have Celiac Disease, so I am just trying to figure out if I have any other allergies. Is it better to go to an allergist or can I benefit more from Entrolab Testing. I was dx with microscopic colitis but I don't have chronic diarrhea, just loose stools, so really not sure if taking Entocort is the answer, especially when I see people have trying pepto bismol first.


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ravenwoodglass Mentor

I found them quite helpful in helping to identify my soy and casien intolerance 5 years after my celiac diagnosis as well as identifying the genes I carry (my main reason for testing). I did seem to have the casien resolve after I had been soy and casien free for a while but soy is still a big issue for me.

  • 3 weeks later...
framedame Newbie

I too was recently diagnosed with Celiac and Microscopic colitis (JAN). I'm on Entocort BC Imodium caused bad constipation and Pepto Bismol made me nauseous and I was having monthly 5 day episodes and my stomach hurt all the time - didn't know what I could eat. I had been on a gluten free diet for 10 yrs, believing I was just intolerant to gluten. I'm now on a strict gluten-free diet and learning about the cross contamination issues that I hadn't practiced before ex. I buy Applegate turkey labeled gluten-free, however, I was having it sliced at the deli counter. I won't be doing that again - will have to get it prepackaged. I was thinking of doing Entrolab to see if I need to eliminate egg (which I have been eating) soy, (not eating) or casein (I'm off all dairy). I had a lactose test yesterday and am waiting for results, but I think I'm not lactose intolerant, which would be nice. I've had a terrible time trying to figure out what is causing my issues.

A lot of the people on this microscopic forum (Google it) are doing something called MRT testing for food sensitivities. Diet is the key and it's a slow process trying to sort out on what foods to avoid that might trigger episodes

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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