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Confused About Symptons - Need Help!

nuttmegs17

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nuttmegs17 Apprentice
nuttmegs17
Posted

I have been feeling bad for well over a year. My symptons have lately increased and I have been going for my doctor for quite some time now with no luck. My symptons at first were IBS-constipation but we have since felt that it is more than that. I have had an autoimmune disorder (currently in remission): Graves disease. So many of my symptons (noted later) made me think it was flaring up again but my Thryoid tests come back fine....I am set to see a GI doc at the end of the month. I had done resaerch on my own and decided to cut out gluten dairy soy and since doing so SOME of my symptons went away but not all. I have since decided to go back on wheat at my doc and this boards suggestion so that I can be properly tested.

Background

Last summer my stomach issues kicked up a notch and I noticed that I was not dropping weight despite a VERY active lifestyle (cycling 11 miles /day, running 5-10 miles other days) etc and eating an incredible healthy diet. It was disoncerting to say the least

Symptons

gas

constipation - suffered all my life, but in the last couple of years can only go about every 3 days

bloating - the kind that is so uncomfortable you cant stand up and have to call into work

distended stomach - looked like I was 9 months pregant and then some

hot flashes - esp at night..my sheets would be soaked and couldnt sleep(made me think of graves)

During the day I am experiencing hot and cold flashes (again reminded me of graves)

Newer but VERY disconcerting symptons:

1. face is slightly swollen. Not grotesquely but my husband and mother even noticed it looks off (reminded me of graves)

last few days I have noticed oiley stools (havent really looked before so dont know if this is really new)

2. GAINING weight despite healthy/active lifestyle (and no not muscle mass!)

I am at the end of my rope. I know there is much work to be done before I get any conclusive answers but does anyone have any feedback/advice or notice any similarities with their experiences. I am wary of continue on gluten if it is indeed my problem - should I continue to eat it before I see my GI guy?

Thanks!

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eatmeat4good Enthusiast
eatmeat4good
Posted

It depends how bad you want the testing and diagnosis.

All of your symptoms seem to say you need to quit gluten yesterday.

I had the swollen face too for years.

Just now 5 months into gluten free is all of my swelling and inflammation calming down and my face looks normal.

If you are gonna test, do it quickly so you can go gluten free and see if it helps all of your symptoms that are consistent with Celiac/Gluten Intolerance.

nuttmegs17 Apprentice
nuttmegs17
Posted
  • Author

That is good to hear - i am anxious to get this sorted out. I am just being held up due to the dr's schedule being jam packed - it makes it hard to get to everything quickly! I know this will be a long road :(

etta694 Explorer
etta694
Posted

Yes, constipation, night sweats 5 yrs ago, bloating, distention, intestinal discomfort, exhaustion... etc. I gave up on the doctors after 5 yrs of going every few months.. Too many tests for other things came back normal and I wasn't willing to go for blood tests (and eat gluten again) once I started eating gluten free.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
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      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
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      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
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      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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