Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused About Symptons - Need Help!

nuttmegs17

Recommended Posts

nuttmegs17 Apprentice
nuttmegs17
Posted

I have been feeling bad for well over a year. My symptons have lately increased and I have been going for my doctor for quite some time now with no luck. My symptons at first were IBS-constipation but we have since felt that it is more than that. I have had an autoimmune disorder (currently in remission): Graves disease. So many of my symptons (noted later) made me think it was flaring up again but my Thryoid tests come back fine....I am set to see a GI doc at the end of the month. I had done resaerch on my own and decided to cut out gluten dairy soy and since doing so SOME of my symptons went away but not all. I have since decided to go back on wheat at my doc and this boards suggestion so that I can be properly tested.

Background

Last summer my stomach issues kicked up a notch and I noticed that I was not dropping weight despite a VERY active lifestyle (cycling 11 miles /day, running 5-10 miles other days) etc and eating an incredible healthy diet. It was disoncerting to say the least

Symptons

gas

constipation - suffered all my life, but in the last couple of years can only go about every 3 days

bloating - the kind that is so uncomfortable you cant stand up and have to call into work

distended stomach - looked like I was 9 months pregant and then some

hot flashes - esp at night..my sheets would be soaked and couldnt sleep(made me think of graves)

During the day I am experiencing hot and cold flashes (again reminded me of graves)

Newer but VERY disconcerting symptons:

1. face is slightly swollen. Not grotesquely but my husband and mother even noticed it looks off (reminded me of graves)

last few days I have noticed oiley stools (havent really looked before so dont know if this is really new)

2. GAINING weight despite healthy/active lifestyle (and no not muscle mass!)

I am at the end of my rope. I know there is much work to be done before I get any conclusive answers but does anyone have any feedback/advice or notice any similarities with their experiences. I am wary of continue on gluten if it is indeed my problem - should I continue to eat it before I see my GI guy?

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eatmeat4good Enthusiast
eatmeat4good
Posted

It depends how bad you want the testing and diagnosis.

All of your symptoms seem to say you need to quit gluten yesterday.

I had the swollen face too for years.

Just now 5 months into gluten free is all of my swelling and inflammation calming down and my face looks normal.

If you are gonna test, do it quickly so you can go gluten free and see if it helps all of your symptoms that are consistent with Celiac/Gluten Intolerance.

nuttmegs17 Apprentice
nuttmegs17
Posted
  • Author

That is good to hear - i am anxious to get this sorted out. I am just being held up due to the dr's schedule being jam packed - it makes it hard to get to everything quickly! I know this will be a long road :(

etta694 Explorer
etta694
Posted

Yes, constipation, night sweats 5 yrs ago, bloating, distention, intestinal discomfort, exhaustion... etc. I gave up on the doctors after 5 yrs of going every few months.. Too many tests for other things came back normal and I wasn't willing to go for blood tests (and eat gluten again) once I started eating gluten free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but...
    2. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10). Since then it has gone up to 10. I am not happy with that. I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I...
    3. Mike Maurillo
      0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

      until
      Hi everyone, I’m Mike, one of the co-founders of Academy Camps, a sleepaway sports camp for kids ages 10 to 16. I’m posting here because one of our camp families whose daughter has Celiac encouraged me to share our experience wit...
    4. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer. Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks...
    5. Scott Adams
      - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Celiac disease is the most likely cause, but here are articles about the other possible causes:
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,209
    • Most Online (within 30 mins)
      7,748
    bwt34221
    Newest Member
    bwt34221
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Low iron and vitamin d

      By lizzie42 · Posted

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.