Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Annoy You?


jasonD2

Recommended Posts

jasonD2 Experienced

When you sit down at a restaurant and tell the server you have a gluten allergy and they look at you like you're an alien? This doesnt happen to me much since i am fairly selective where i eat, but it still does happen on occasion and even at high end places. Why won't some agency make it a rule for restaurant owners to properly educate their staff on food allergies? will this ever change?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Joni63 Collaborator

When you sit down at a restaurant and tell the server you have a gluten allergy and they look at you like you're an alien? This doesnt happen to me much since i am fairly selective where i eat, but it still does happen on occasion and even at high end places. Why won't some agency make it a rule for restaurant owners to properly educate their staff on food allergies? will this ever change?

I hope some day it will change.

I've had much better luck asking for the chef and explaining your needs to them. They are usually so much more sympathetic and understanding. The server may get a little annoyed, but they usually get over it pretty quickly.

K8ling Enthusiast

Absolutely annoys me. I totally don't even want to eat there when I see that blank look.

mcbeez Rookie

As a server, I can say that I've been the one who's needed to educate the whole staff. It isn't something a chef, owner, GM, or server is trained on, and I don't foresee that changing any time soon unless WE are the ones to educate and bring awareness to the issue.

mcbeez Rookie

And really, you can't blame the server. It's not something I was really aware of until I was diagnosed, as is true of many other people. It's frustrating, yes, but let's be proactive instead of just getting frustrated. :)

tennisman Contributor

Yeh it's annoying. Another annoying thing about restaurant's 1 time while I was at a party at a restaurant I was talking to 1 of the chefs and was saying I was a celiac etc and he started going on about how celiac's were the bane of his life. I'm very unintelligent and didn't know what bane of my life meant at the time. Otherwise I would have been really angry lol.

Aimeesue Newbie

I recently read an article in The New Yorker about food allergies which said that "People with food allergies live under a constant threat, in a society that is still poorly informed about the condition. For people with peanut and tree-nut allergies, incidents in restaurants account for nearly a quarter of unintentional exposure and nearly half of all fatal reactions." They did a survey of restaurant managers and staff and found that a quarter of them thought that eating a "small amount" would be fine, half thought that frying would "destroy" the allergen, and a quarter thought that it would suffice to "remove an allergen from a finished meal, like taking walnuts out of a salad."

And that's for an allergen that causes anaphylatic shock and can actually kill people! And it's one that is pretty widely known. Gluten allergies? Not as immediately dangerous, but with an uninformed public and waitstaff, it's tough.

("The Peanut Puzzle," Jerome Groopman, The New Yorker 7 Feb. 2011)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ndw3363 Contributor

I went to a restaurant and asked for their allergen menu. The hostess graciously brought it to me. However, when our server arrived, she looked right at me a said "umm...that's our allergen menu". I said, yes I know I requested it. She looked at me like I had cancer or something. The rest of the evening, everytime she spoke to me it was in a "oh you poor thing" tone. Drove me insane! I've only been gluten free for 3 weeks so it's all very new to me. Needless to say, I won't be going back there anytime soon. I've always preferred to cook at home anyway.

jenngolightly Contributor

I recently read an article in The New Yorker about food allergies which said that "People with food allergies live under a constant threat, in a society that is still poorly informed about the condition. For people with peanut and tree-nut allergies, incidents in restaurants account for nearly a quarter of unintentional exposure and nearly half of all fatal reactions." They did a survey of restaurant managers and staff and found that a quarter of them thought that eating a "small amount" would be fine, half thought that frying would "destroy" the allergen, and a quarter thought that it would suffice to "remove an allergen from a finished meal, like taking walnuts out of a salad."

And that's for an allergen that causes anaphylatic shock and can actually kill people! And it's one that is pretty widely known. Gluten allergies? Not as immediately dangerous, but with an uninformed public and waitstaff, it's tough.

("The Peanut Puzzle," Jerome Groopman, The New Yorker 7 Feb. 2011)

OMG. I haven't eaten out since I got my tree-nut allergy diagnosis last summer. Now I'm scared to death! What if they pick a walnut out of my salad? :(

tbritt Rookie

I don't eat at restaurants. Even well intentioned folks don't have any idea of how bad this is. We are space aliens. I was in physical pain the last four times (in the last six months) that I have eaten at restaurants. It's not worth it. At the last place, the chef came out to speak to me and I still got glutened.

I have folks make me food gifts all the time (because I'm a teacher). I just take them and throw them away. You never know if the food is contaminated. It affects my livelihood, so I don't mess with gluten.

WitchyWoman Rookie

I went to Outback tonight and asked for the Gluten free menu, ordered from it and was in the bathroom within 15 minutes after eating and in severe pain now (4 hrs later) I don't know if there was cross contamination or what but I am very hesitant to go back.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    2. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

    4. - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,992
    • Most Online (within 30 mins)
      7,748

    Elizabeth xxx
    Newest Member
    Elizabeth xxx
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.