Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had My Endoscopy Today...


salexander421

Recommended Posts

salexander421 Enthusiast

I had my endoscopy today after undergoing a 3 month gluten challenge. My celiac panel was negative but doctor still wanted to do endoscopy to confirm negative blood work. He said that there was gastritis and apparently I have a hernia somewhere causing indigestion (I found that interesting since I don't experience indigestion when gluten free). He said that he didn't see anything that made him suspect celiac but that I would need to wait on the biopsy which should be back in 7 days. I guess my only question would be about the gastritis. Is it common to see gastritis but have a negative biopsy? Would gastritis maybe point more towards non celiac gluten intolerance? Of course he prescribed prevacid which I have no intentions of taking, I'm gluten free again starting right now :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MsCurious Enthusiast

I had my endoscopy today after undergoing a 3 month gluten challenge. My celiac panel was negative but doctor still wanted to do endoscopy to confirm negative blood work. He said that there was gastritis and apparently I have a hernia somewhere causing indigestion (I found that interesting since I don't experience indigestion when gluten free). He said that he didn't see anything that made him suspect celiac but that I would need to wait on the biopsy which should be back in 7 days. I guess my only question would be about the gastritis. Is it common to see gastritis but have a negative biopsy? Would gastritis maybe point more towards non celiac gluten intolerance? Of course he prescribed prevacid which I have no intentions of taking, I'm gluten free again starting right now :)

Congrats on having the biopsy hurdle behind you! And good luck with the results. Happy for you that you can go gluten-free again starting now! :)

salexander421 Enthusiast

Congrats on having the biopsy hurdle behind you! And good luck with the results. Happy for you that you can go gluten-free again starting now! :)

Thank you :) I'm so glad to have this all behind me! The next week will be challenging anticipating the results but I do feel that I already have my answer as far as how it affects me so I feel good no matter what the outcome is.

shopgirl Contributor

There's no way for the doctor to see Celiac damage with the naked eye unless it's the really extreme complete villous atrophy.

But, either way, congratulations! You don't have to worry about eating gluten again. (Well, you do have to worry about eating but you don't have to actually eat it.)

sa1937 Community Regular

I had both gastritis and duodenitis (inflammation) show up on my EGD so I don't think it's all that uncommon. I was surprised since my stomach didn't really hurt. Unless damage is really severe, I don't think doctors can usually visually see it with the scope. Hopefully he took at least six biopsies because if damage is patchy, it could be missed.

Wishing you healing as you go back to gluten-free!

Jaymie Jaymz Rookie

You're so lucky that it's over! Mine's not until the 30th. Did the procedure go smoothly for you?

I'm hoping they find something or I'll have to stay on gluten since he wants to do the pill cam if the biopsies are negative.

salexander421 Enthusiast

You're so lucky that it's over! Mine's not until the 30th. Did the procedure go smoothly for you?

I'm hoping they find something or I'll have to stay on gluten since he wants to do the pill cam if the biopsies are negative.

I'm so sorry you have to wait, It'll be here before you know it! It went very smoothly for me, I don't even remember a thing and I was up and moving around within minutes after as if nothing had ever happened :P I hope you get the answers you're looking for!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



salexander421 Enthusiast

Hopefully he took at least six biopsies because if damage is patchy, it could be missed.

I never really got a clear answer on that one so I'm just keeping my fingers crossed and hoping he took enough. I'm not that great with dealing with doctors :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.