Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Feel Like I Make Stupid Mistakes....

Jenn624

By Jenn624
in Coping with Celiac Disease

Recommended Posts

Jenn624 Rookie
Jenn624
Posted

I have been gluten-free since December 26th. I noticed a problem with wheat after my gallbladder removal in May. People told me that my bowel changes were due to my gallbladder removal and I foolishly believed them. I originally started the gluten-free lifestyle on a recommendation that it might help my hashimoto's thyroiditis and epstein-barr. It became immediately obvious that I have a gluten intolerance. Now even the smallest amount makes me sick for three days. I try to be diligent, but I feel like I am making a lot of mistakes. For example, a local grocery store carries a gluten-free chicken salad. I bought chicken salad at another store without really checking ingredients and have been really sick since yesterday. It's stupid moves like that that are driving me crazy! I have decided if a packaged product is not clearly labeled gluten-free, I'm not touching it. I've checked all my hair products and creams and had to replace some of those. My vitamin is labeled gluten-free. Hopefully I will get a better grip on all of this!!! I sure do feel good when I am 100% gluten free!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


etta694 Explorer
etta694
Posted

I am SOOO there. I keep making the little mistakes, or careless mistakes. I attributed it to fuzzy thinking ;) which I've had for years. It happens mostly when I am either out and about or in a hurry. Duh.. and then - yes, I feel crappy for a few days or more. I think as time goes by I'll get tired of 'shooting myself in the foot' and I'll be more careful. ME TOO!! I feel so good when I am totally gluten free :D .

Takala Enthusiast
Takala
Posted

It's not easy training one's self to be in a state of hyper paranoia about labeling. ;)

It's not stupidity.

Luddie Newbie
Luddie
Posted

It's not easy training one's self to be in a state of hyper paranoia about labeling. ;)

It's not stupidity.

HOW TRUE! HOW TRUE!!

It does take a lot of work to follow this path.

Luddie :rolleyes:

anabananakins Explorer
anabananakins
Posted

You'll get there! It just takes awhile to get used to. But as soon as I read your message title I realised that I hadn't had a gluten nightmare in ages (by which I mean, dreams where I accidently eat something glute-y and I wake up in a panic trying to spit it out, lol). I think the dreams stopping probably reflects quite well how much more comfortable I feel, particularly having gotten through the holidays and moving into a new year. It does get better and easier :-)

notme Experienced
notme
Posted

You'll get there! It just takes awhile to get used to. But as soon as I read your message title I realised that I hadn't had a gluten nightmare in ages (by which I mean, dreams where I accidently eat something glute-y and I wake up in a panic trying to spit it out, lol). I think the dreams stopping probably reflects quite well how much more comfortable I feel, particularly having gotten through the holidays and moving into a new year. It does get better and easier :-)

oh. my. gosh! i thought i was the only one who had these! i keep dreaming i'm packing for a road trip and people contaminate my meals. once i dreamt i forgot all my clothes because i was so worried about what i was going to eat.

Fire Fairy Enthusiast
Fire Fairy
Posted

oh. my. gosh! i thought i was the only one who had these! i keep dreaming i'm packing for a road trip and people contaminate my meals. once i dreamt i forgot all my clothes because i was so worried about what i was going to eat.

Hey, I haven't had any gluten nightmares in awhile either! I usually dream I have something gluten free like say gluten-free cupcakes and someone unthinking swaps it for the gluten version. :( I realize it just after swallowing a bite.

It's not easy being a label watch dog. :) I made the mistake of letting my dad buy the groceries without me and as soon as I opened the cabinets I saw gluten filled food. He can't see the labels so he just assumed all canned veggies were safe....wrong.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


txplowgirl Enthusiast
txplowgirl
Posted

Hi there Jenn,

after 2 years I still make a boo boo every once in a while. It happens, I try not to worry about it.

Like last night I guess my son accidently glutened me, wasn't thinking, he offered me a bite of his steak salad and duh, I forgot that he had put croutons on it, and this morning my chest and tummy hurts and i'm having sharp pains run through my right foot every time I step on it and I just have this general rundown feeling and the one I really hate is every time I bend over I get dizzy and feel like I'm gonna faint. Kinda hard when you're trying to clean house.

Oh well, just have to wait it out.

As for the gluten nightmares, been there done that. Oh yeah, I believe anyone who is gluten free has had them. I believe it's natural for us. Lol,

Sorry for my rambling, lol, anyway, hang in there and it will get easier.

catsmeow Contributor
catsmeow
Posted

Hi Jen, what are your symptoms when you get glutened? I'm sick for 3 days too after getting glutened. I get a histamine reaction right away (hives,plugged ears, coughing, tight throat, itching from head to toe, with hot spots on my skin), followed by a 3 day migraine with bad joint pain. No gastro issues at all, I have a wheat allergy.

I also had to change all my beauty products. regular shampoo breaks me out in itchy hives on my head. The itching drives me insane!!

I swear, I could have written your post..It's been a year, and I still get glutened from time to time, and it's usually when I let my guard down....I hate when that happens!!!!!

I'm still having nightmares of accidently eating wheat, and waking up trying to spit it out. It's such a relief when I realize it was a just a nightmare..

It was so good to hear y'all share the nightmare thing.....thank you. I feel so alone with this problem. People just don't understand....

Jenn624 Rookie
Jenn624
Posted
  • Author

Hi Jen, what are your symptoms when you get glutened? I'm sick for 3 days too after getting glutened. I get a histamine reaction right away (hives,plugged ears, coughing, tight throat, itching from head to toe, with hot spots on my skin), followed by a 3 day migraine with bad joint pain. No gastro issues at all, I have a wheat allergy.

I also had to change all my beauty products. regular shampoo breaks me out in itchy hives on my head. The itching drives me insane!!

I swear, I could have written your post..It's been a year, and I still get glutened from time to time, and it's usually when I let my guard down....I hate when that happens!!!!!

I'm still having nightmares of accidently eating wheat, and waking up trying to spit it out. It's such a relief when I realize it was a just a nightmare..

It was so good to hear y'all share the nightmare thing.....thank you. I feel so alone with this problem. People just don't understand....

My symptoms include a headache and horrible diarrhea where I literally have to run to the bathroom. I also get a rash on my rear end as well. I got glutened by the chicken salad on Thursday, and am starting to feel better today. I guess by tomorrow (DAY 3) I will be fine.

Thanks everyone for your replies! I teach school and have to go camping with my 5th graders next month as a field trip. I already told my coworker that I will only feel comfortable taking my own food. She kept saying that if I tell the kitchen, they could surely prepare some gluten free stuff for me. I had to tell her I wouldn't trust there wouldn't be cross contamination.

rachbomb Rookie
rachbomb
Posted

I make these kinds of mistakes all the time and even worse, there are times I KNOW that I got glutened but I can't figure out how. It seems like it might take a day or two for me to feel the worst of the symptoms and sometimes I just can not figure out what I did wrong. I have only been gluten-free for 2 months and it seems like I only can get 3 good days before I mess up again. As a side note, I discovered dairy was a bad idea about a week ago after I tried to reintroduce it. Is it possible that I am still just healing or am I really missing gluten somewhere? FRUSTRATING!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Bogger
      - Bogger replied to Bogger's topic in Related Issues & Disorders
      2

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      Thanks for your reply I’m a nearly 69yr old female. My only medications are Fosamax and Lamotrigine for seizures. Thank you for that drugs.com link! There are soooo many common side effects for Reclast and almost nothing for Fosamax. Since it’s working well and I haven’t had any side effects from Fosamax (stomach bleeding, pain or upset) my d...
    2. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      32

      Severe severe mouth pain

      But for someone with Barrett's like @Charlie1946, long term PPI therapy might be necessary.
    3. Caligirl57
      - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      32

      Severe severe mouth pain

      Thank you!!
    4. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      22

      Shingles - Could It Be Related to Gluten/ Celiac

      Sorry I didn’t get a notification you posted. Thanks for this information! Im Still battling it and the itching that has now developed in my scalp and on my face is unbearable. My hair has broke off. I now have hazing on my cornea and I’m at like week 8 now I think. I came Down with Covid right before Christmas and now I have strep throat!! I think my imm...
    5. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      32

      Severe severe mouth pain

      Aaaackkk!!! Stop with the Omeprazole! It's not good, especially if taken for a long period of time!!! Gerd and Acid Reflux are actually caused by too little digestive enzymes resulting from nutritional deficiencies in Thiamine B1 and Niacin B3 that are needed to make digestive enzymes. Omeprazole is a proton pump inhibitor that has been shown...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,082
    • Most Online (within 30 mins)
      7,748
    Lisaskittiekat
    Newest Member
    Lisaskittiekat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Bogger
      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      By Bogger · Posted

      Thanks for your reply I’m a nearly 69yr old female. My only medications are Fosamax and Lamotrigine for seizures. Thank you for that drugs.com link! There are soooo many common side effects for Reclast and almost nothing for Fosamax. Since it’s working well and I haven’t had any side effects from Fosamax (stomach bleeding, pain or upset) my doctor recommends it first over Reclast. Reclast is introduced into a vein thus bypassing the stomach which avoids all those stomach issues. But, once it’s in me, it’s there for a year or so. Any complications can’t be undone. With Reclast, I’m concerned about not being able to treat dental issues, several weeks of bone pain and the chance, although rare, of kidney damage. Plus all those other dozens of common side effects. It’s a very effective drug but looks pretty complicated to deal with. Hopefully I’m not just being a big chicken. In 2018 I fell and broke my ankle in two places. It took three screws to put it back together which is normal for that surgery. There was no mention of any difficulty or signs of bone loss. Thanks to my dog, I fell about a month ago onto a concrete floor with thin carpet. I landed on my left hip, then my spine, one vertebrae at a time, then clunked my head on the door frame. Twisted my wrist too. It was all in slow motion waiting to feel a crack that didn’t happen. Went to the ER tho. Amazingly, I didn’t even see any bruises. Thanks again for that link. I need to read through it some more. My doctor’s appt is next week when I’ll make the big decision.   
    • trents
      Severe severe mouth pain

      By trents · Posted

      But for someone with Barrett's like @Charlie1946, long term PPI therapy might be necessary. 
    • Caligirl57
      Severe severe mouth pain

      By Caligirl57 · Posted

      Thank you!!
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      Sorry I didn’t get a notification you posted. Thanks for this information! Im Still battling it and the itching that has now developed in my scalp and on my face is unbearable. My hair has broke off. I now have hazing on my cornea and I’m at like week 8 now I think. I came Down with Covid right before Christmas and now I have strep throat!! I think my immune system has quit!! How much longer-l-lysine is recommended?  Thanks I have been wondering if I need to increase my zinc and or vitamin d And / or add anything else 
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      Aaaackkk!!!  Stop with the Omeprazole!  It's not good, especially if taken for a long period of time!!!   Gerd and Acid Reflux are actually caused by too little digestive enzymes resulting from nutritional deficiencies in Thiamine B1 and Niacin B3 that are needed to make digestive enzymes.   Omeprazole is a proton pump inhibitor that has been shown to cause continuing villi damage to the small intestines!        Factors associated with villus atrophy in    symptomatic coeliac disease patients on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/28220520/ Proton Pump inhibitors reduce digestive enzymes which results in poorly digested food.  If the food is not broken down by the digestive enzymes, then the nutrients cannot be released from the food and cannot be absorbed by the villi.  Damaged villi cannot absorb nutrients from food.  PPIs block Thiamine B1 transporters, so that thiamine cannot be absorbed.  PPIs reduce the production of the intrinsic factor required for Cobalamine B12 absorption.  The absorption of other vitamins and minerals are affected as well.    The Effects of Proton Pump Inhibitors in Acid Hypersecretion-Induced Vitamin B12 Deficiency: A Systematic Review (2022) https://pubmed.ncbi.nlm.nih.gov/36545170/ Proton Pump Inhibitors like Omeprazole should be used only on a short term basis, like two weeks.  Continued use can cause nutritional deficiencies because PPIs prevent the absorption of vitamins and minerals.      Profound Hypomagnesemia Due to Proton Pump Inhibitor Use-Associated Wernicke’s Encephalopathy: A Case Report on Excitotoxicity https://pmc.ncbi.nlm.nih.gov/articles/PMC12618944/    Proton pump inhibitors and risk of vitamin and mineral deficiency: evidence and clinical implications https://pmc.ncbi.nlm.nih.gov/articles/PMC4110863/ Vitamin and mineral deficiencies contribute to health problems like Non Alcoholic Fatty Liver Disease and Chronic Renal Failure and Osteoporosis.    Association between dietary intakes of B vitamins and nonalcoholic fatty liver disease in postmenopausal women: a cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC10621796/    The association between proton pump inhibitors and hyperparathyroidism: a potential mechanism for increased fracture-results of a large observational cohort study https://pubmed.ncbi.nlm.nih.gov/37530847/ Regular Proton-Pump Inhibitor Intake is Associated with Deterioration of Peripheral Bone Mineral Density, Microarchitecture, and Strength in Older Patients as Assessed by High-Resolution Peripheral Quantitative Computed Tomography (HR-pQCT) https://pmc.ncbi.nlm.nih.gov/articles/PMC12546302/ Vitamins and minerals are essential to our health and can prevent disease. Long term use of PPIs can cause kidney disease and liver disease!    Association between Proton Pump Inhibitor Use and Risk of Incident Chronic Kidney Disease: Systematic Review and Meta-Analysis https://pubmed.ncbi.nlm.nih.gov/39061988/    Proton pump inhibitors use and the risk of fatty liver disease: A nationwide cohort study https://pubmed.ncbi.nlm.nih.gov/32886822/  Thiamine deficiency unrelated to alcohol consumption presented with urinary retention and Wernicke's encephalopathy: A case report https://pmc.ncbi.nlm.nih.gov/articles/PMC10415583/ Essential nutrients are needed to repair and heal the body!    High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition https://pubmed.ncbi.nlm.nih.gov/33608323/ Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ There are liquid forms of B complex vitamins that are available over-the-counter and by prescription.   I pray for ears to hear.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.