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I Feel Like I Make Stupid Mistakes....


Jenn624

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Jenn624 Rookie

I have been gluten-free since December 26th. I noticed a problem with wheat after my gallbladder removal in May. People told me that my bowel changes were due to my gallbladder removal and I foolishly believed them. I originally started the gluten-free lifestyle on a recommendation that it might help my hashimoto's thyroiditis and epstein-barr. It became immediately obvious that I have a gluten intolerance. Now even the smallest amount makes me sick for three days. I try to be diligent, but I feel like I am making a lot of mistakes. For example, a local grocery store carries a gluten-free chicken salad. I bought chicken salad at another store without really checking ingredients and have been really sick since yesterday. It's stupid moves like that that are driving me crazy! I have decided if a packaged product is not clearly labeled gluten-free, I'm not touching it. I've checked all my hair products and creams and had to replace some of those. My vitamin is labeled gluten-free. Hopefully I will get a better grip on all of this!!! I sure do feel good when I am 100% gluten free!


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etta694 Explorer

I am SOOO there. I keep making the little mistakes, or careless mistakes. I attributed it to fuzzy thinking ;) which I've had for years. It happens mostly when I am either out and about or in a hurry. Duh.. and then - yes, I feel crappy for a few days or more. I think as time goes by I'll get tired of 'shooting myself in the foot' and I'll be more careful. ME TOO!! I feel so good when I am totally gluten free :D .

Takala Enthusiast

It's not easy training one's self to be in a state of hyper paranoia about labeling. ;)

It's not stupidity.

Luddie Newbie

It's not easy training one's self to be in a state of hyper paranoia about labeling. ;)

It's not stupidity.

HOW TRUE! HOW TRUE!!

It does take a lot of work to follow this path.

Luddie :rolleyes:

anabananakins Explorer

You'll get there! It just takes awhile to get used to. But as soon as I read your message title I realised that I hadn't had a gluten nightmare in ages (by which I mean, dreams where I accidently eat something glute-y and I wake up in a panic trying to spit it out, lol). I think the dreams stopping probably reflects quite well how much more comfortable I feel, particularly having gotten through the holidays and moving into a new year. It does get better and easier :-)

notme Experienced

You'll get there! It just takes awhile to get used to. But as soon as I read your message title I realised that I hadn't had a gluten nightmare in ages (by which I mean, dreams where I accidently eat something glute-y and I wake up in a panic trying to spit it out, lol). I think the dreams stopping probably reflects quite well how much more comfortable I feel, particularly having gotten through the holidays and moving into a new year. It does get better and easier :-)

oh. my. gosh! i thought i was the only one who had these! i keep dreaming i'm packing for a road trip and people contaminate my meals. once i dreamt i forgot all my clothes because i was so worried about what i was going to eat.

Fire Fairy Enthusiast

oh. my. gosh! i thought i was the only one who had these! i keep dreaming i'm packing for a road trip and people contaminate my meals. once i dreamt i forgot all my clothes because i was so worried about what i was going to eat.

Hey, I haven't had any gluten nightmares in awhile either! I usually dream I have something gluten free like say gluten-free cupcakes and someone unthinking swaps it for the gluten version. :( I realize it just after swallowing a bite.

It's not easy being a label watch dog. :) I made the mistake of letting my dad buy the groceries without me and as soon as I opened the cabinets I saw gluten filled food. He can't see the labels so he just assumed all canned veggies were safe....wrong.


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txplowgirl Enthusiast

Hi there Jenn,

after 2 years I still make a boo boo every once in a while. It happens, I try not to worry about it.

Like last night I guess my son accidently glutened me, wasn't thinking, he offered me a bite of his steak salad and duh, I forgot that he had put croutons on it, and this morning my chest and tummy hurts and i'm having sharp pains run through my right foot every time I step on it and I just have this general rundown feeling and the one I really hate is every time I bend over I get dizzy and feel like I'm gonna faint. Kinda hard when you're trying to clean house.

Oh well, just have to wait it out.

As for the gluten nightmares, been there done that. Oh yeah, I believe anyone who is gluten free has had them. I believe it's natural for us. Lol,

Sorry for my rambling, lol, anyway, hang in there and it will get easier.

catsmeow Contributor

Hi Jen, what are your symptoms when you get glutened? I'm sick for 3 days too after getting glutened. I get a histamine reaction right away (hives,plugged ears, coughing, tight throat, itching from head to toe, with hot spots on my skin), followed by a 3 day migraine with bad joint pain. No gastro issues at all, I have a wheat allergy.

I also had to change all my beauty products. regular shampoo breaks me out in itchy hives on my head. The itching drives me insane!!

I swear, I could have written your post..It's been a year, and I still get glutened from time to time, and it's usually when I let my guard down....I hate when that happens!!!!!

I'm still having nightmares of accidently eating wheat, and waking up trying to spit it out. It's such a relief when I realize it was a just a nightmare..

It was so good to hear y'all share the nightmare thing.....thank you. I feel so alone with this problem. People just don't understand....

Jenn624 Rookie

Hi Jen, what are your symptoms when you get glutened? I'm sick for 3 days too after getting glutened. I get a histamine reaction right away (hives,plugged ears, coughing, tight throat, itching from head to toe, with hot spots on my skin), followed by a 3 day migraine with bad joint pain. No gastro issues at all, I have a wheat allergy.

I also had to change all my beauty products. regular shampoo breaks me out in itchy hives on my head. The itching drives me insane!!

I swear, I could have written your post..It's been a year, and I still get glutened from time to time, and it's usually when I let my guard down....I hate when that happens!!!!!

I'm still having nightmares of accidently eating wheat, and waking up trying to spit it out. It's such a relief when I realize it was a just a nightmare..

It was so good to hear y'all share the nightmare thing.....thank you. I feel so alone with this problem. People just don't understand....

My symptoms include a headache and horrible diarrhea where I literally have to run to the bathroom. I also get a rash on my rear end as well. I got glutened by the chicken salad on Thursday, and am starting to feel better today. I guess by tomorrow (DAY 3) I will be fine.

Thanks everyone for your replies! I teach school and have to go camping with my 5th graders next month as a field trip. I already told my coworker that I will only feel comfortable taking my own food. She kept saying that if I tell the kitchen, they could surely prepare some gluten free stuff for me. I had to tell her I wouldn't trust there wouldn't be cross contamination.

rachbomb Rookie

I make these kinds of mistakes all the time and even worse, there are times I KNOW that I got glutened but I can't figure out how. It seems like it might take a day or two for me to feel the worst of the symptoms and sometimes I just can not figure out what I did wrong. I have only been gluten-free for 2 months and it seems like I only can get 3 good days before I mess up again. As a side note, I discovered dairy was a bad idea about a week ago after I tried to reintroduce it. Is it possible that I am still just healing or am I really missing gluten somewhere? FRUSTRATING!!!

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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