Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What's Your Vote?

snifter

By snifter
in Coping with Celiac Disease

Recommended Posts

snifter Apprentice
snifter
Posted

First let me thank you in advance! You are appreciated!! Ok so I've been gluten free since October 2010 of course I have a ton of questions!

This weekend was babysitting at another house and might have got glutened but it could have been something else. I had a fruit cup, maybe the pears in it? I can't have bananas anymore. I can't be around a mango tree so I was thinking there might be some kind of fruit connection? Anyway I broke out in a rash that night. And I have been icthy all week ! I just can't stand it anymore it's just not going away like I thought it would. Do you have a rash from gluten or is it more likely from something else?

Gluten free kitchen- right now my kitchen is not gluten free because I have a 16 month old baby and I am letting her eat gluten because her pediatrician said we can test her blood for celiac at 18 months and I figure she needs to eat gluten for it to show up! Mine did not show up in blood. I have a mass in my stomach and had a biopsy. Is there any harm with her being gluten free. I feel I really need my kitchen to be gluten free so that I won't get conaminated left and right from my own baby! She will have visible crumbs all over her! I feel like I can't kiss and hug all over her because of the gluten! Ahhhh! Frustration!!

So what's your opinion and advice. Again thank you thank you, I can't show my gratitude enough I hope you have a great day

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

In my opinion there is nothing wrong with having a gluten free house. Testing on children has a higher rate of false negatives anyway at that age. It isn't going to hurt her to be gluten free and will help you be a healthier mommy. Once she is old enough to be less 'crumbly' and will be able to sit at a table to have her gluten foods and not make an extreme mess then go ahead and let her have it. She isn't going to be more likely to develop celiac or issues with gluten because of being gluten free now. However if she does have an issue with gluten once you start feeding it to her again you may notice symptoms in her behavior, growth or tummy aches.

zimmer Rookie
zimmer
Posted

My vote is to go totally gluten free. Take care of yourself! Your little one will never miss it. It will make life so much easier for you.

As for getting her tested, I wouldn't worry about it right now. If symptoms or problems develop in the future, then deal with them at that time.

My perspective on this - my kitchen is gradually going gluten-free. I still have a few gluten items for small children (6 & 4) who have favorite snacks. However, I am making changes to their habits and brands. FYI, they tested negative but I'm not going to take that as an all clear for them. Like was posted before, they probably have a higher false-negative rate. If they develop issues, then we will do something then.

mamaw Community Regular
mamaw
Posted

Dr.Alessio Fasano is doing a study on this ..He has clients /patients that are not giving their children any gluten for the first two years of life. The study is new so h ecan't make a judgement call at present but down the road this study will make a difference.He's not sure if it will keep or help a child from developing celiac or if it will only prolong the child to develop at a later age.He is with the University of Maryland,may be you can look up his research to date. I'm on my way out for supper or I'd do it...

I for one have never seen a death from not eating wheat/gluten....

I would follow your heart & decide for yourself &your child.You know best.........

blessings

mamaw

K8ling Enthusiast
K8ling
Posted

My rule is they can eat whatever they want outside the house, but in the house, the kitchen is my domain and I need to be safe. The kid and my husband had pizza outside today and I ate my lunch inside. Then we washed up lil guys hands and face and brushed his teeth. At school (he's 2.5) they adhere to the same rules.

It has seemed to help me a lot and I am hoping to have continued success with the new baby as well!

Loey Rising Star
Loey
Posted

I agree with keeping the house gluten free. Your little one's not going to suffer by your keeping the house gluten-free and you can possibly make her own gluten-free baby food (or check Whole Foods and see if they carry it). Your baby is going to need a healthy energetic mother more than a diet with gluten in it.

Sending positive energy!

Loey smile.gifsmile.gif

snifter Apprentice
snifter
Posted
  • Author

You have just confirmed my thoughts! Again thank you!

Add smiley faces here

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748
    Wilson1984
    Newest Member
    Wilson1984
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.