Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headaches, Celiac Dreams, And Helpful Ideas For Elimination Diet


healinginprogress

Recommended Posts

healinginprogress Enthusiast

Headaches---

I keep waking up with a headache, and it's hard to tell if it's gluten-related or tension, but really unpleasant, either way. I've been really good at being gluten-free, eating only whole foods and only at home (stuff I cook). I am very tense, but also think my man may have eaten gluten in the bed. I will clean the sheets, but am unsure of a nice way to ask him to be careful if eating gluten in there. Sometimes he's great about it, but I think he's already frustrated with having to brush his teeth before kissing, and when I brought up gluten-free dog food yesterday, he was not very receptive :(

Celiac Dreams---

This is just sort of funny. Since going gluten-free, I think I've had dreams about food pretty much every night LOL Sometimes I'll be eating something gluten-ous and then "remember" within my dreams that I can't have it and get all worried haha Last night I had a dream that I was going for my appointment with the colo-rectal surgeon and I hadn't done my enema before (so gross), and then when he was showing me what they were going to do for the colonoscopy at our next appointment, he showed me the camera they were going to use and it was HUGE and he said I didn't get any sort of sedation or anaesthesia! I also decided, in my dream, to start eating gluten for the test and was going home to order myself a whole cheesy bites pizza from Pizza Hut......SUCH crazy, amusing dreams!

Helpful Ideas for Elimination Diet---

Just a few things that have been helping me along the way. When I'm out, I've been buying some gluten-free goodies that I'm keeping in my gluten-free cupboard that will be treats when I'm done the elimination diet...it kind of just makes me happy to know that they are there, and this diet won't be forever. The other thing I found really helpful is PRESENTATION! At first, I would just take a baked yam out of the fridge and eat it just like that...which is fine, when time crunched, but definitely gets boring and sort of upsetting. Same with apples and pears. But when I bake my apple in the toaster oven, mix it in with some canned no-sugar-added packed-in-water pears, a little SF applesauce, and some chia seeds...it feels a little fancier and, in fact, is more satisfying than just an apple or a pear on their own. These two little things are making a big difference for me!

Anyways, just wanted to do a little sharing, thanks for "listening", the support is much needed and appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

The gluten free pet food seems extreme at first glance BUT

cross contamination happens on every level

AND there are many articles that show grains are NOT good for pets at all. They cannot digest them well.

Wheat gluten is almost always in dog food. People report their dogs' allergies or itching or red spots disappear off gluten. Makes sense?

My husband, the biggest skeptic of all :lol: AND a scientist who needs PROOF for anything...decided to read up on it and switched our cat to no grain foods. It's more expensive, so I was stunned, but he also WENT gluten-free with me and put the cat on the food, thinking we'd all benefit. (I know, he's amazing.)

Hubby never felt he needed to be gluten-free...and I did not insist, yet in doing so, his recent long bout with painful constipation has disappeared. (he'd die of embarrassment if he knew I wrote this...shhhhh don't tell him) I am thinking maybe his allergies will disappear in time too.

Much easier for me as his fluffy beard was the catch-all for big ole crumbs.... :)

As for dreams...I have had mega double features all my life--big, bold and colorful, all my senses involved....I could FEEL textures, SMELL foods cooking, etc...very tiring LOL

They are becoming less crazy and I don't wake up yelling any more, or sweating from bad dreams...maybe as the gluten leaves, my sleep and dreams will be more peaceful.

Your headaches may be withdrawal...?! I had them for weeks, but not any more.

Just some thoughts!! :)

Glad your soy experiment wasn't too much of a setback!

healinginprogress Enthusiast

YES, thank goodness it was only a couple days of misery with the soy!

I, too, have ALWAYS had very vivid dreams, and I always remember them...a lot of them are very scary or sad, and can affect me for the entire day because they felt so real! I can even feel pain in my dreams, it's crazy. I've also always had insomnia...hoping that will clear up in time sans gluten!

Great about your hubby! The crazy thing is, the dog food he's feeding his dog now (we each had a dog, so now we have a two-dog family) is about the same price. When I brought it up yesterday, he looked at me all scrunchy-faced and was like, "yeaaahhhh, I don't know...he's been on that brand since he was a puppy". To which I said, yes, and mine has been on HIS brand for 5 years (his dog is not yet a year old)! But what I really wanted to say is, "yeah, and I've been dying on the inside since FOREVER!"

SIGH! Anyways, sometimes he "gets it", and sometimes he doesn't. I'm glad that I can vent here, though...it helps me.

And as for withdrawals, I hope that is the case! I just exercised, and the headache is still there :(

IrishHeart Veteran

:lol:

vent away!! that's why we're here!

If he agrees to switch, just transition the puppy with a mixture of each for a few days. The pup's tum will adapt in no time.

Hope your headaches ease up....you probably already know this but....drink a lot of water!! I am not sure why, but we tend to need more water.....

I feel "funny" if I don't get enough...hang in there!! ;)

Jenn624 Rookie

I have the dreams too. I'll especially dream I am eating a doughnut and after I take a bite, I've realized what I've down and try to spit it up. Crazy!!!

Terri O Rookie

I have the dreams too. I'll especially dream I am eating a doughnut and after I take a bite, I've realized what I've down and try to spit it up. Crazy!!!

THis is too funny...just the other night I dreampt that I was at a party and had just taken a big bite of a Kentucky Fried Chicken thigh. I was like Tom Hanks in BIG when he ate that caviar! OMG too funny! Terri O

Marilyn R Community Regular

My recurrent dream was that I'd be at a barbeque and eat a big fluffy hotdog bun with a hotdog. It was so vivid. Music, friends, barbeque, big bite of hotdog! Then I'd go into the OMG! I JUST ATE A HOTDOG BUN version of the dream. It would turn into nightmare and I'd wake up in sweats.

I told my Medical Dr. about the recurring dreams and she said it's like the dream she had when she first gradutated college. She would be headed to an exam, but couldn't find the building or classroom, and she would start running all over to find the exam room. She'd run and run and run but couldn't find the room, and then she'd wake up in sweats. She feels that the dreams come from a feeling of not being prepared.

The dreams tapered off after 6 months, and I no longer have them. (gluten-free since 4/10.) I still have occasional insomnia, perhaps from CC. But sleep has definitely improved so much, and I hope your sleep will improve too. Going gluten-free is a major life change, and you've been concerned with your health, so it's perfectly normal to have weird dreams.

The headaches could be withdrawal, similar to caffeine withdrawal, or a response to the anxiety from the dreams.

Good luck ... hang in there ... it get's better! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



healinginprogress Enthusiast

LOL that's pretty funny, I have had the exam dream recently, too (I graduated from my program in December)!!!

I get glimpses of it "getting better"...and I like the view ;)

IrishHeart Veteran

I had really violent, scary dreams on gluten. People standing over me, going to kill me, or I was running from someone. There were good ones, too where I could fly like superman (which is funny, cause I do not like to fly)or I was with relatives who have passed and we were having fun ..OR upsetting ones where I was supposed to teach a class and I was not prepared or I could not find the room (I was a teacher) ...I would scream and thrash around. Poor hubby! :blink: he would wake me up and say, it's okay, babe...then, he would go right back to sleep and I'd be wide-eyed, shaking all over and trembling with sweat and cold. It was ugly.

If I went back to sleep, I had more dreams. I used to tell them to hubby in the morning, in great detail, sounds, sights, smells, textures....I would say I had a "double feature". (LOL but not really)

Some nights, I couldn't even go to sleep. I tried sleep meds, quieting tapes, meditation, valerian, melatonin...

wide awake. Many months 2 hours at most...just awful. Then, pace all around my house in chronic pain--all day long. (shudder--when I think back on it!! :unsure: )

I have had sleep issues all of my life.

I cannot even take a nap--I am too "wired". I am exhausted and would LOOOVE a nice nap, but it just will not happen. Bummer.

As I enter month 3 of gluten-free, I am sleeping better. I can go to sleep, get about 3 or 4, wake up (because I have pain) BUT go back most nights for 2 more. This is a HUGE improvement over those 1-2 hours...so, I'll take it!! :D

healinginprogress Enthusiast

Nice, yeah, I can't wait for this to get better, it's incredibly draining. I woke up at 515am yesterday and was still up around midnight last night, woke up at 3 and haven't been able to fall back asleep...and that's with a full zopiclone (sleep med).

I've tried everything under the sun as well LOL So jealous and almost resentful of sleepers sometimes :P

IrishHeart Veteran

Nice, yeah, I can't wait for this to get better, it's incredibly draining. I woke up at 515am yesterday and was still up around midnight last night, woke up at 3 and haven't been able to fall back asleep...and that's with a full zopiclone (sleep med).

I've tried everything under the sun as well LOL So jealous and almost resentful of sleepers sometimes :P

Poor babe! It truly sux.

Me too--sleep meds, valium!! even...geesh.All the drugs did was "whip me up" more. :angry: I stopped trying things a few months ago.

here's the thing...it takes a long time for that poison to get out of the gut, the organs, the skin....and I know what you mean about the jealousy thing :unsure: I never thought I'd be "jealous" about people who can SLEEP, or EAT ...what the heck?? LOL

I wondered why people were upset that they sleep 10 hours...man, try NOT sleeping for a few days and see what that feels like....!!oh, that sounded petty...I don't mean it that way.

Hopefully, you will get a rhythm soon....if you can, soak in an epsom salt bath before bed..... I can't lie in the tub with my back, but if I COULD, that's what I would do.... :)

hang in there...it gets better...really!

healinginprogress Enthusiast

It didn't sound petty, I completely understand...I've always been jealous of sleepers...and it's funny, I've been dealing with it for so long (even as a kid my mom said I never slept, and I remember her giving me things like gravol...and kahlua...haha when I was a teenager) that it almost seems like I function better on 5 hours of sleep (broken sleep, usually), than if a pill knocks me out for hours because my body is so used to it. To a certain extent, anyways, and usually only for a few days and then it gets bad (mood and brain-wise).

I don't have a bathtub...man, I miss baths...but I could soak my feet? I have some circulation issues, so I worry my feet will get too hot or puffy, but I'll give it a go (why not, at this point, right? LOL)

I hope to stop taking the sleeping meds at some point, just don't think I'm ready, yet

IrishHeart Veteran

It didn't sound petty, I completely understand...I've always been jealous of sleepers...and it's funny, I've been dealing with it for so long (even as a kid my mom said I never slept, and I remember her giving me things like gravol...and kahlua...haha when I was a teenager) that it almost seems like I function better on 5 hours of sleep (broken sleep, usually), than if a pill knocks me out for hours because my body is so used to it. To a certain extent, anyways, and usually only for a few days and then it gets bad (mood and brain-wise).

I don't have a bathtub...man, I miss baths...but I could soak my feet? I have some circulation issues, so I worry my feet will get too hot or puffy, but I'll give it a go (why not, at this point, right? LOL)

I hope to stop taking the sleeping meds at some point, just don't think I'm ready, yet

I didn't even sleep when I was a baby! LOL My sister and dad took turns rocking me to sleep in the middle of the night...mom was sound asleep..

I think a warm foot soak would help, yes! then, elevate them after so they do not get puffy? I hope it helps!

Honestly, I think the sleep meds make it worse...Just my humble opinion. Be careful when you stop--you need to taper off those...trust me! I had a rough time with Ambien CR a few years ago...talk about w/d symptoms--yikes! Naturally, my doctor didn't warm me about that!

I read this book called INSOMNIAC a few years ago and it opened my eyes about sleep and meds, etc...I think once the gluten is out of you, you'll see a BIG difference. Lots of posts on here about that. Encourages me!!

healinginprogress Enthusiast

Yes, a lot of the posts on here encourage me, as well...especially when I get to that dark place, like when I sent you that private message last night LOL...sorry about that :rolleyes:

The posts on here about depression, anxiety, insomnia, levido reticularis, fatigue, body aches, headaches/migraines, skin conditions, brain fog, and of course nausea, vomiting, D, cramping, bloating, inflammation....the posts about ALLLLLLL of these things improving/going away??? That REALLY helps to keep me going, I guess sometimes it's just hard to believe that it will actually happen for me, ya know?

healinginprogress Enthusiast

oh, and MEMORY hahahahaha Funny how I always "forget" that one.................. :lol::lol::lol:

IrishHeart Veteran

Yes, a lot of the posts on here encourage me, as well...especially when I get to that dark place, like when I sent you that private message last night LOL...sorry about that :rolleyes:

The posts on here about depression, anxiety, insomnia, levido reticularis, fatigue, body aches, headaches/migraines, skin conditions, brain fog, and of course nausea, vomiting, D, cramping, bloating, inflammation....the posts about ALLLLLLL of these things improving/going away??? That REALLY helps to keep me going, I guess sometimes it's just hard to believe that it will actually happen for me, ya know?

Do not be sorry for that message!! I am happy to listen!!

Yup, we have to focus on the success stories. one woman's message to me made me CRY--in RELIEF because she had all the same symptoms--even had the burning mouth I have and it is gone from her now..... :)

It is hard to believe...but you will come to a point where you will stop fretting about it and believe it WILL happen...that's a big hurdle to jump...but you WILL!!

((pretend I am giving you a big hug LOL))

IrishHeart Veteran

oh, and MEMORY hahahahaha Funny how I always "forget" that one.................. :lol::lol::lol:

I'm sorry, I "forgot" to add ....yes, memory issues clear up too ...LOL LOL LOL

Some of 2009 and 2010 are lost to me....but they were not so great health wise anyway...

ndw3363 Contributor

Oh the headaches!! I've been gluten-free for 3 weeks and I have had the worst headaches for about a week. As for the sleeping, I can't seem to get enough - although I'm not sleeping all that well either. I took a benedryl the other night (the itching from DH is making me nuts) and I slept great! However, I felt terrible the next day (stomach pain), so I won't take it again.

So funny that you brought up dreams. Just last night, I had a dream that I was eating lasagna and breadsticks. Sooo vivid too! Since I haven't been sleeping well, I rarely remember dreams. But this one was so real!

Hope you start to feel better soon! This forum has saved my sanity!

IrishHeart Veteran

Oh the headaches!! I've been gluten-free for 3 weeks and I have had the worst headaches for about a week. As for the sleeping, I can't seem to get enough - although I'm not sleeping all that well either. I took a benedryl the other night (the itching from DH is making me nuts) and I slept great! However, I felt terrible the next day (stomach pain), so I won't take it again.

So funny that you brought up dreams. Just last night, I had a dream that I was eating lasagna and breadsticks. Sooo vivid too! Since I haven't been sleeping well, I rarely remember dreams. But this one was so real!

Hope you start to feel better soon! This forum has saved my sanity!

Headaches are the "fun" part of detox--aren't they?? <_< UGH!!

good news....they will pass! :) Hang in there!!

PS...Love your kitty cat! adorable! :)

Marilyn R Community Regular

It didn't sound petty, I completely understand...I've always been jealous of sleepers...and it's funny, I've been dealing with it for so long (even as a kid my mom said I never slept, and I remember her giving me things like gravol...and kahlua...haha when I was a teenager) that it almost seems like I function better on 5 hours of sleep (broken sleep, usually), than if a pill knocks me out for hours because my body is so used to it. To a certain extent, anyways, and usually only for a few days and then it gets bad (mood and brain-wise).

I don't have a bathtub...man, I miss baths...but I could soak my feet? I have some circulation issues, so I worry my feet will get too hot or puffy, but I'll give it a go (why not, at this point, right? LOL)

I hope to stop taking the sleeping meds at some point, just don't think I'm ready, yet

A good foot rub may be even more beneficial than a soak. I remember reading an article that there are more that 200 nerve centers connected to your feet. Then again, my memory hasn't been that magnificent, maybe it was only 100 nerve centers!

I use Bag Balm to massage my feet, and spend a few minutes massaging my feet before going to bed after a stressful day. I really think it helps. I don't care for the scent of bag balm, I may just switch to coconut oil or olive oil.

At any rate, foot massages are very relaxing, even if self-administered. ;) And it could potentially help with the poor circulation to boot...good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,407
    • Most Online (within 30 mins)
      7,748

    H2HPizzaWagon
    Newest Member
    H2HPizzaWagon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.