Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me, Please


Googles

Recommended Posts

Googles Community Regular

I have been dealing w/ Celiac for almost two years. I had gone almost a year without a major glutening. I got glutened the Saturday before last. I'm still having diarrhea (more the urgency than anything else). It has been really bad today after not being as bad the last couple of days (only causing problems in the morning). I have also started to throw up in the morning. How do I make this stop? I need to go to school and work. This evening (after being confined to my home all day) I have taken some pepto-bismal to see if it helps at all. I have a test tomorrow morning. Please help me. I've never had a gluten reaction last this long.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I have been dealing w/ Celiac for almost two years. I had gone almost a year without a major glutening. I got glutened the Saturday before last. I'm still having diarrhea (more the urgency than anything else). It has been really bad today after not being as bad the last couple of days (only causing problems in the morning). I have also started to throw up in the morning. How do I make this stop? I need to go to school and work. This evening (after being confined to my home all day) I have taken some pepto-bismal to see if it helps at all. I have a test tomorrow morning. Please help me. I've never had a gluten reaction last this long.

I'm so sorry :(

I don't typically throw up as a result of a glutening, but the diarrhea sometimes will persist. I take Immodium and that stops it completely for a day or so and acts to "reset" everything (for lack of a better word).

Maybe the Pepto or something else for the vomiting would work similarly?

Jestgar Rising Star

Maybe you're actually sick?

Googles Community Regular

I have considered being sick, but the rest of me feels fine. It is really just my GI track that is having problems. I would make an appointment w/ my doctor, but I worry that they would just say that my guess as to what is wrong is as good as theirs.

ravenwoodglass Mentor

I have considered being sick, but the rest of me feels fine. It is really just my GI track that is having problems. I would make an appointment w/ my doctor, but I worry that they would just say that my guess as to what is wrong is as good as theirs.

I would make an appointment with your doctor. Unless you are being reglutened somehow the D should IMHO be relieved by now. You may instead have food poisoning which can cause just D without you having any 'sick' feelings. You want to rule that out. If you have to take a test take some immodium or call your school or professor and see if the test can be taken another day. If you still have D after taking the immodium then you really should get stool testing done ASAP. I had salmonella once and the immodium would only relieve the D for about an hour or two and then it would return. If you do have a case of food poisoning you may need an antibiotic to clear it up.

Googles Community Regular

I'll call the doctor tomorrow and see when I can get in. I hate being sick. :( The pepto-bismal didn't help, but the imodium did.

ravenwoodglass Mentor

I'll call the doctor tomorrow and see when I can get in. I hate being sick. :( The pepto-bismal didn't help, but the imodium did.

If you wake up today and the D has resolved then things should be okay but if you still have D call the doctor and tell them on the phone that you have had D for an extensive period of time and want to rule out food poisoning. They should be able to let you pick up what you need to have for stool testing today and drop it off at the lab. Then if you have to wait a week or so for your appointment the results will be there when you go. If the results are positive they will usually call you and have you go right in for an antibiotic script.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marz Enthusiast

Shame man, that's terrible :(

It could be illness/food poisoning, if it's been a week please get to the doctor ASAP!

Throwing up in the morning - first thing I thought of was morning sickness, but I'm sure you'd know if that was a possibility :) Don't get offended - my doctor tested me twice when I was suffering from nausea before going gluten-free, even though I told him I was pretty safe ;)

Other possibility is you're taking a medication for the illness, that's not gluten-free. Double check all your medication.

Anything new you're eating? Or something you've started eating/drinking because of the d/vomiting?

Symptoms in addition to vomiting/d? Extreme pain/tenderness/burning feeling in lower right area of abdomen (if you're looking down at your stomach), with fever would indicate possible appendicitis, get you to the doctor very quickly. Stiff neck and bad headache? Also an indication to go to the doc quickly.

Hope you feel better soon!!

Googles Community Regular

Thanks everyone.

I went in to the doctor and they said that it is a stomach virus that is going around and should last 7-10 days. They said since I've had it for a while I should likely be close to the end. I'm slowly starting to feel better. They did tell me that because it was a stomach virus the imodium was the worst thing I could have taken.

I knew they were going to ask me if there was a possibility I am pregnant, but no, not any. No offense taken.

I hate going to the doctor so thanks for convincing me to go.

catsmeow Contributor

Thanks for posting this. It helped me tonight.

I'm so glad your starting to get better. All this crud going around is so miserable!

When I get glutened, I get sinus congestion, migraines and hives (wheat allergy).

Right now, I have had sinus/cold symptoms and a migraine going on for several days.....so for several days I've been looking for what glutened me, but since I read this, I'm thinking I have a darn cold!!! My daughter has one, and her symptoms match mine, I just asked her. I am sure I have not eaten gluten.....so, I think I need to relax and start treating it like a cold. I also have body aches and no joint pain. Being glutened usually gives me joint pain for days.

Thanks again for posting this....I was going crazy.....it's so hard to differentiate between a cold and a glutening....

annegirl Explorer

Thanks for posting this. It helped me tonight.

......

Thanks again for posting this....I was going crazy.....it's so hard to differentiate between a cold and a glutening....

Made me feel better too! I've been going crazy all day trying to figure out what gluten I ate. Even went back to the usually safe Mexican restaurant I ate at last night and made them tell me the ingredients in everything I ate. No gluten. Just too much week and a little cold. >rolls eyes<

It's hard not to be psycho and always think every twinge is gluten for me!

OP - Feel better soon! That sounds like one cruddy virus 7-10 days Wow!

catsmeow Contributor

Made me feel better too! I've been going crazy all day trying to figure out what gluten I ate. Even went back to the usually safe Mexican restaurant I ate at last night and made them tell me the ingredients in everything I ate. No gluten. Just too much week and a little cold. >rolls eyes<

It's hard not to be psycho and always think every twinge is gluten for me!

OP - Feel better soon! That sounds like one cruddy virus 7-10 days Wow!

Psycho! Thats EXACTLY how I've been feeling! I would have gone to the restaurant and done the same thing! LOL!

Your so right when you say that it's hard not to think every little twinge is gluten/wheat.

It feels good to relax.

WitchyWoman Rookie

Hi~~~~~

I am so sorry you are not feeling well...me too :( My Dr put me on Lomotil which is a stronger prescription dose of Imodium for the D and Phenergran pills for the nausea. They really help. You may want to request RX for these meds.

Hope you feel better soon!!

sallyb Newbie

I have been dealing w/ Celiac for almost two years. I had gone almost a year without a major glutening. I got glutened the Saturday before last. I'm still having diarrhea (more the urgency than anything else). It has been really bad today after not being as bad the last couple of days (only causing problems in the morning). I have also started to throw up in the morning. How do I make this stop? I need to go to school and work. This evening (after being confined to my home all day) I have taken some pepto-bismal to see if it helps at all. I have a test tomorrow morning. Please help me. I've never had a gluten reaction last this long.

I'm new to gluten free diet, and by that i mean this week i was diagnosed with celiac disease. There is a medication called Lomotil. I take the generic version which is called diphenoxylate-atropine. You might want to ask your Dr. about it. It stops diarrhea and i would not have been able to leave the house without it. I am no expert, but it has helped me with my digestive issues thus far. I have not thrown up becuase of the Celiac Disease, but I am just starting to be able to not wear diapers when i leave the house. Trust me as far as the bathroom issues go I know exactly what you're feeling. I hope this helps.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.