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Should I See A Nutritionist?

tsisler

By tsisler
in Doctors

Nutritionist  

9 members have voted

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tsisler Newbie
tsisler
Posted

My doctor recommended that I see a nutritionist but it is not covered by my insurance. What are peoples' experiences? Will I be getting any information from her that I'm not getting from reading about the disease and the gluten-free lifestyle? My husband and I are a bit stressed about money, especially as we need to replace so much in our kitchen and home. I don't want to shell out the money for the nutritionist just to be given the information that I already have. What type of information did people receive from the nutritionist? Did you find it helpful? Would you recommend it? Did it do anything to help you decide how careful to be about cross-contamination (such as - there's nothing on the ingredient list but I emailed the company and although they confirm that all the ingredients are gluten-free - they cannot confirm that the ingredients were not processed in a facility that also processed products containing gluten. can I use the product?)

Thank you for your help!

~Tosha

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mushroom Proficient
mushroom
Posted

I contacted a Nutritionist long after I had gone gluten free because I did not feel that my leaky gut was healing. She had some useful input on supplements to bring me back into nutritional balance. She said overall my diet was good; she had her particular biases and some of them I agreed with, some I didn't. It was a useful experience for me, and she had me complete a very thorough health and symptom history.

tsisler Newbie
tsisler
Posted
  • Author

I contacted a Nutritionist long after I had gone gluten free because I did not feel that my leaky gut was healing. She had some useful input on supplements to bring me back into nutritional balance. She said overall my diet was good; she had her particular biases and some of them I agreed with, some I didn't. It was a useful experience for me, and she had me complete a very thorough health and symptom history.

Thanks for your input Mushroom. I've been dealing with digestive issues for a very long time and am already on supplements. Also - as I have had my colon completely removed (due to IBD), currently have a j-pouch, and also have interstitial cystitis (which comes with its own food restrictions) - I'm guessing that I know more about what I can and can't eat than the nutritionist when it comes to the non-gluten-specific foods. They've had a nutritionist meet with me in the hospital during some of my prolonged stays and this has been my experience. If we spend the money, I just want to make sure it's for something we're going to find productive. Still undecided. Any other input is welcome!

Looking for answers Contributor
Looking for answers
Posted

To me, the money may be better spent seeing a Naturpath or holistic doctor - someone who can look at the "whole picture" and can help you with nutrition, supplements and lifestyle changes to help you manage everything you're dealing with.

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      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

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    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
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