Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lymes Disease Or Gluten Intolerance?


Pac

Recommended Posts

Pac Apprentice

When I was 13, I wanted my dr to test me for lymes disease. We lived in a high-risk area, I caught a pretty large collection of ticks during that summer and I was feeling exhausted for weeks, with high temperature, joint and muscle pain. It seemed quite a good guess. Not to the dr. He questioned me, then my mom alone, and then came with a conclusion that I'm psychotic and want the same disease as my father. We persuaded him to do the tests anyway, but when the results same in he just told us "everything's fine". Since then my health was going steadily down, I was searching for other possile causes and I kept hearing "it's all in my head" and "it's normal, get used to it". In 2009 I got diagnosed with gluten allergy, standard gluten-free diet helped but not fully. "Paranoid" gluten-free and rice-free diet seems to help but is not always possible (I keep getting sick after every shopping probably because of the bakeries inside stores). Today I took my medical record to my new employer's doctor for a rutine check-up and listing through it I found the 1995 "everything's fine" results:

Borrelia ELISA IgM ....... positive

Borrelia ELISA IgG ....... borderline positive

What should I do now (beside cutting that doctor to pieces and feeding him to our shelter dogs)? Should I try to get retested or is it too late? Could treating borrelia help with my extreme sensitivity to gluten? I'm just so frustrated right now. I was a typical adept for celiac since early childhood, I developed almost full list of lymes disease symptoms since 1995, I even tested positive for borrelia and still I get labeled as a head case?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

When I was 13, I wanted my dr to test me for lymes disease. We lived in a high-risk area, I caught a pretty large collection of ticks during that summer and I was feeling exhausted for weeks, with high temperature, joint and muscle pain. It seemed quite a good guess. Not to the dr. He questioned me, then my mom alone, and then came with a conclusion that I'm psychotic and want the same disease as my father. We persuaded him to do the tests anyway, but when the results same in he just told us "everything's fine". Since then my health was going steadily down, I was searching for other possile causes and I kept hearing "it's all in my head" and "it's normal, get used to it". In 2009 I got diagnosed with gluten allergy, standard gluten-free diet helped but not fully. "Paranoid" gluten-free and rice-free diet seems to help but is not always possible (I keep getting sick after every shopping probably because of the bakeries inside stores). Today I took my medical record to my new employer's doctor for a rutine check-up and listing through it I found the 1995 "everything's fine" results:

Borrelia ELISA IgM ....... positive

Borrelia ELISA IgG ....... borderline positive

What should I do now (beside cutting that doctor to pieces and feeding him to our shelter dogs)? Should I try to get retested or is it too late? Could treating borrelia help with my extreme sensitivity to gluten? I'm just so frustrated right now. I was a typical adept for celiac since early childhood, I developed almost full list of lymes disease symptoms since 1995, I even tested positive for borrelia and still I get labeled as a head case?

Hi Pac,

This is a response from CarlaB, who started the Lyme thread here--

and has a lot of experience and knowledge of the disease.

"That is definitely a positive result and that test is very likely to have a false negative. You need to find a doctor who is willing to treat Lyme Disease. Most doctors are not. Please see the trailer at Open Original Shared Link for an explanation of the political battle within the medical field regarding Lyme Disease.

To find a doctor willing to treat, the best resource is www dot lyme net dot org. You need to change that to the normal format with no spaces. There is a place on the board called "seeking a doctor". If you post there, someone will send you a list of doctors near you.

Severe gluten intolerance can be a result of Lyme Disease. If you don't have celiac disease, which I did not, the gluten intolerance may go away with Lyme treatment. Mine did."

  • 2 weeks later...
jldskier1234 Newbie

why is that??

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,781
    • Most Online (within 30 mins)
      7,748

    BH1951
    Newest Member
    BH1951
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ok thank you.  Me either 
    • Colleen H
      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.