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Untested Severe Symtoms


Pokerpro

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I am 27 and up till mid 2007 I was actually really healthy, this is when everything went wrong all the sudden 1 day had severe diarrhea, and milk seemed to really make the diarrhea worse.. so basically i went from almost never using the toilet at work for years to having diarrhea after every meal :(... I also began to get hot pretty easy and i remember in the summer i actually turned the AC on colder temp against my bosses word... During these days at work i was eating wheat bread at subway bout everyday with cheese, which i soon cut out the cheese, cause my reaction to milk from mc d's in morns... I ended up quitting in Jan 2008 and ive been droppin weight slowly since, with a high heart rate...

For awhile i thought the diarrhea was a lactose prob or stress, so i cut out cheese since then but been eating everything else and also smoking weed from my chronic pain i have (for a birth bone deformity). I recently quit any type of drug in order to take my online poker to the next level since its the only way ive been makin money lately, and Ive really noticed i have a severe problem and im sure which has been part of the reason i ended up in ER panicking.. The third time in the ER 1 doc actually gave me alot more time as far as talking to me i think he actually wanted to truly help me as the others were only worried about my possibly dieing at the moment, and sent me out, he mentioned he next time you see your doctor have him test you for "CELIAC DISEASE",

Since then i have been on trader joes diet gluten free for about 7 days now, and I have no blood test for celiac.. But my stools seem to be little nicer then I have seen in like 4 years, but i still been consuming lactaid milk and some think thin bars that contain soy and milk and i get gas from them, so i guess my next step is removing all dairy?


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    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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