Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Source Of Gluten We Didn't Think About

bonnie blue

Recommended Posts

bonnie blue Explorer
bonnie blue
Posted

I was diagnosed with Celiac in September of last year, felt pretty darn good for awhile, then in December started feeling worse then before, after many, many, tests the doctors here could find nothing, they basically told me it was in my head and wrote me off. And then finally we found a good GI doctor about 100 miles away who was willing to listen, he asked of course the obvious question, "Is your home gluten free?" and we said yes, of course. Then he asked where we worked, and my husband said that he worked at McCain foods,( a plant that makes onion rings, breaded cheese sticks, etc..) he said ok thats probably why she is still getting sick. Don't get me wrong my husband never hugged me or even got close to me with his work clothes on and we even washed them separate from the other laundry. But the doctor told us from now on he needs to change his clothes before he comes home and to come in the back door and take his shower before he has any contact with me. Also he changed my meds did a full blood work up, saw that my vitamin B12 was low, so I am now taking B12, which has made quite a difference, wow who knew that little pill everyday could do so much!! So I guess to sum it all up gluten is everywhere, even on our husbands! lol. Finally starting to feel good again and just wanted to share my happy ending with all my friends here, have a great day everyone!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


angel9165 Newbie
angel9165
Posted

I got my call September 1st last year and what wake up call that was. Thanks for sharing your story about your husband and his work place. I've been reading more and more about these types of cross contamination and it does make sense just not something we'd think of. :huh:

lynnelise Apprentice
lynnelise
Posted

Oh my goodness, who would've thought! I am so glad you finally found some answers! :D B12 is magic isn't it! When mine gets low I feel like a ballon that's been 90% deflated!

ravenwoodglass Mentor
ravenwoodglass
Posted

What a celiac savvy doctor you have!!!!!!! If only all of them were as smart as this one is. Glad you were able to figure it out with his help and hope your feeling better soon.

catsmeow Contributor
catsmeow
Posted

I am impressed! What a fantastic doctor!!!

I was telling my doctor about how I react badly in the bread isle in the grocery store (which is where the gluten-free section is...the idiots) and as I am talking, my doc starts having a severe allergic reaction to me!! My mind was racing, trying to figure out what he was allergic to. I could totally tell he was suffering. So I asked if he was allergic to cats....he said yes, and I said I have cats and had held them before coming in. I told him we could open the exam room door for fresh air. He was very happy about that, and could not stop apologizing!! And, he got better after we let the air in.

The reason I told this story, is because it's no different than your husband coming home wearing gluten! Except your problem is Celiac versus allergy.....

It makes perfect sense!!!! I'm glad you found this gem of a doctor!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748
    Charlotta Herte
    Newest Member
    Charlotta Herte
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • xxnonamexx
      What's your daily meals? Protein bars?

      By xxnonamexx · Posted

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Labs ? Awaiting in person follow up with my GI

      By trents · Posted

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Yeast extract

      By JoJo0611 · Posted

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.