Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Withdrawl?


zoogirl

Recommended Posts

zoogirl Rookie

Hi, all! I'm really new to the gluten-free life. Started the diet about 10 days ago. I feel a lot better which is wonderful! :rolleyes: But I'm having a lot of headaches and also feel extremely hungry - 'shaky' even - a lot of the time even though I'm eating a lot better than I used to. :huh: I'm trying to be careful about having enough protien througout the day to keep my blood sugar up (I've had trouble with low blood sugar in the past). Is any of this normal when first going gluten-free? If so, any suggestions for how to get through it?

zoogirl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Most people go through a withdrawal from gluten, just like from nicotine. Gluten is like an opioid to the brain and it will take two or three weeks to come down from it. But keep an eye on your blood sugar if you are shaky. The hunger is normal, because once the gluten is withdrawn the body's call for nutrients sends the appetite up.

P.S. Sorry, I forgot my manners; welcome to the board. :D

MichaelJacksons#1Fan Newbie

Hello zoogirl,

Yes, what you are feeling is normal. Before I went gluten free, my body was actually craving carbs for quick energy because I was so fatigued. :blink: Your body is trying to clean itself out, as well as heal itself, so the shakyness and the headaches are the result. Right now, your body is weak, but in a few more weeks you will feel better than you ever have in your life. :D The first few weeks are the hardest. Congratulations on your diagnosis!!

MichaelJacksons#1Fan =D

sandsurfgirl Collaborator

Use the search function on here to search for withdrawals and you'll get lots and lots of threads with info. It helps to know all the weird stuff your body does is normal!

I'm gluten free about a year and 3 months. That's all a distant memory for me, but when it was happening it felt like it would never end. I got better and better all the time, but it was a full 6 months before I had ONE single symptom free day. And another few weeks before the healthy days became the norm.

I had shakes and dizziness for several months and it was due to electrolyte imbalance. The doc suggested that even though my tests for electrolytes were normal that it was still off. There are many electrolyte supplements although at that time all of them made me sick. For me good old Gatorade fixed all of my shakes and dizziness but I had to drink it faithfully every single morning and at times in the afternoon. I also had to really keep up with my water during the day and never let it slip.

Hang in there! Be diligent. Eventually gluten free and healthy will become your norm.

zoogirl Rookie

Thanks, everyone! Glad to know it's mostly normal and will go away. I hadn't thought of Gatorade - that's a good idea. I drink a lot of it in the summer to stay hydrated, but it hadn't occured to me that it could help with electrolytes any time. Mine do get out of whack from time to time.

zoogirl

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.