Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Withdrawl?


zoogirl

Recommended Posts

zoogirl Rookie

Hi, all! I'm really new to the gluten-free life. Started the diet about 10 days ago. I feel a lot better which is wonderful! :rolleyes: But I'm having a lot of headaches and also feel extremely hungry - 'shaky' even - a lot of the time even though I'm eating a lot better than I used to. :huh: I'm trying to be careful about having enough protien througout the day to keep my blood sugar up (I've had trouble with low blood sugar in the past). Is any of this normal when first going gluten-free? If so, any suggestions for how to get through it?

zoogirl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Most people go through a withdrawal from gluten, just like from nicotine. Gluten is like an opioid to the brain and it will take two or three weeks to come down from it. But keep an eye on your blood sugar if you are shaky. The hunger is normal, because once the gluten is withdrawn the body's call for nutrients sends the appetite up.

P.S. Sorry, I forgot my manners; welcome to the board. :D

MichaelJacksons#1Fan Newbie

Hello zoogirl,

Yes, what you are feeling is normal. Before I went gluten free, my body was actually craving carbs for quick energy because I was so fatigued. :blink: Your body is trying to clean itself out, as well as heal itself, so the shakyness and the headaches are the result. Right now, your body is weak, but in a few more weeks you will feel better than you ever have in your life. :D The first few weeks are the hardest. Congratulations on your diagnosis!!

MichaelJacksons#1Fan =D

sandsurfgirl Collaborator

Use the search function on here to search for withdrawals and you'll get lots and lots of threads with info. It helps to know all the weird stuff your body does is normal!

I'm gluten free about a year and 3 months. That's all a distant memory for me, but when it was happening it felt like it would never end. I got better and better all the time, but it was a full 6 months before I had ONE single symptom free day. And another few weeks before the healthy days became the norm.

I had shakes and dizziness for several months and it was due to electrolyte imbalance. The doc suggested that even though my tests for electrolytes were normal that it was still off. There are many electrolyte supplements although at that time all of them made me sick. For me good old Gatorade fixed all of my shakes and dizziness but I had to drink it faithfully every single morning and at times in the afternoon. I also had to really keep up with my water during the day and never let it slip.

Hang in there! Be diligent. Eventually gluten free and healthy will become your norm.

zoogirl Rookie

Thanks, everyone! Glad to know it's mostly normal and will go away. I hadn't thought of Gatorade - that's a good idea. I drink a lot of it in the summer to stay hydrated, but it hadn't occured to me that it could help with electrolytes any time. Mine do get out of whack from time to time.

zoogirl

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    2. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    3. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    4. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

    5. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,349
    • Most Online (within 30 mins)
      7,748

    Lulu530
    Newest Member
    Lulu530
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.