Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting To Eat Gluten Free Today

goodnews

Recommended Posts

goodnews Apprentice
goodnews
Posted

So I just had my endoscopy yesterday and am waiting for the results from the biopsy. In the meantime I am starting to eat gluten free to see if I have some relief. I have been researching and excited about starting on this only because I want to feel better! Although I am anxious that I won't feel better for a while because I still have gallbladder problems and lately have been having acid reflux and my esophagus is hurting today (probably from the endoscopy yesterday). So today is my first day gluten free....but I totally forgot to buy gluten free things yet...that was a big mistake. so I have a whole lot of fruit/vegetable/nut snack like items today for lunch (cashews and cranberries with corn chex, cheese stick, banana with peanutbutter, popcorn, and fruit snacks). Will have to grab something at the store for dinner I guess. Hoping to feel better soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


goodnews Apprentice
goodnews
Posted
  • Author

Well so far (only day 3) I am definitely irritable, with a little more energy but stomach has been the same and a little worse last night and this morning. Dull headache (nothing major) and I have been going to the bathroom more regularly (was constipated before so this is kind of a good thing).

Had some brown rice pasta last night and it was actually quite good! I was pleasantly surprised. Should hear back from the dr. about possible Celiac on Monday but in the meantime hoping to feel better soon.

cahill Collaborator
cahill
Posted

Well so far (only day 3) I am definitely irritable, with a little more energy but stomach has been the same and a little worse last night and this morning. Dull headache (nothing major) and I have been going to the bathroom more regularly (was constipated before so this is kind of a good thing).

Had some brown rice pasta last night and it was actually quite good! I was pleasantly surprised. Should hear back from the dr. about possible Celiac on Monday but in the meantime hoping to feel better soon.

are you planing on staying gluten free even if your biopsy is negative??

MsCurious Enthusiast
MsCurious
Posted

Well so far (only day 3)

Had some brown rice pasta last night and it was actually quite good! I was pleasantly surprised. Should hear back from the dr. about possible Celiac on Monday but in the meantime hoping to feel better soon.

Glad to hear the rice pasta was good. I'm a little worried about the new taste of things to come! :o Monday is a big day for both of us...hope you have good news, goodnews! ;) I'm going out of state for 3 weeks, about a week after my biopsy... sure hope I don't go through the irritability thing... that would not be fun, when I'm FINALLY visiting family 2000 miles away! Yikes! :blink:

Let us know how you do on Monday... I'm eager to hear how your test went.

goodnews Apprentice
goodnews
Posted
  • Author

are you planing on staying gluten free even if your biopsy is negative??

Yes, for a while at least. I am still feeling sick and want to know if it will help. Plus according to my genes I am at high risk of developing it and am going to have a gallbladder surgery coming up.....so with my luck even if I don't have it now it will kick in then :huh: I am thinking that other things are bothering me too because I had some icecream today and that made me feel more sick. If the biopsy is negative I will probably reintroduce gluten later in a few months. But if I start feeling great and eating gluten makes me feel sick again...well then it's a no brainer and I will stay off it.

goodnews Apprentice
goodnews
Posted
  • Author

Glad to hear the rice pasta was good. I'm a little worried about the new taste of things to come! :o Monday is a big day for both of us...hope you have good news, goodnews! ;) I'm going out of state for 3 weeks, about a week after my biopsy... sure hope I don't go through the irritability thing... that would not be fun, when I'm FINALLY visiting family 2000 miles away! Yikes! :blink:

Let us know how you do on Monday... I'm eager to hear how your test went.

Yes, it was Tinkyada brown rice pasta. Quite good actually. I am baking some bread now from a mix so I can use it for sandwiches this next week. I haven't been eating a lot of the other flours and stuff and trying to eat more basic things....but I would just love a piece of toast in the morning. I tried Grits and I liked those. Of course I am a cereal or toast girl in the morning and I can't find a great cereal yet.

Hope Monday goes well for you! I am less irritable this afternoon. It is a beautiful day and I got out in the sun and made me feel better. I live in the northeast and we have been cooped up for like 6 months. Today is high 50's and it's T-shirt weather!!

Have fun visiting your family! Will let you know what my results are. I am kind of hoping it is negative for Celiac in all honesty. I would rather have some gluten sensitivity and maybe be able to reintroduce it...but whatever happens happens. It will work out. :)

cahill Collaborator
cahill
Posted

It is a beautiful day and I got out in the sun and made me feel better. I live in the northeast and we have been cooped up for like 6 months. Today is high 50's and it's T-shirt weather!!

sounds like you live in my neighborhood :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

If dairy is bothering you or you think it may be bothering you, there is no reason not to try stopping it for a while. It shouldn't affect the celiac testing if you are planning an endoscopy and biopsy.

goodnews Apprentice
goodnews
Posted
  • Author

If dairy is bothering you or you think it may be bothering you, there is no reason not to try stopping it for a while. It shouldn't affect the celiac testing if you are planning an endoscopy and biopsy.

I may consider it. I shouldn't be getting any more endoscopies...have had 2 within a 30 day period since they didn't do enough biopsies the first time. Hopefully I am done with that for a while. I am not at all feeling any better yet...but today is only day 4. Of course I am confused though because maybe I shouldn't have started it yet since my gallbladder is all screwed up. I am not sure if it is possible for my stomach to feel better because maybe it is the gallbladder causing those problems. It's hard to tell.

mushroom Proficient
mushroom
Posted

Now that you are done with testing there is no reason to keep eating anything that is bothering you. Anything further that they do will not require the consumption of gluten (or dairy). By getting rid of those you may actually help your gallbladder pain (if that's what it is). The first way to start defining your pain is to get rid of the foods that are bothering you. You may not notice any difference at all for a couple of weeks, or you may experience some withdrawal from gluten that could make you feel even worse (if that is possible) for a week or two (being a little joy germ here :D ) before you actually start feeling the benefits of your dietary change.

goodnews Apprentice
goodnews
Posted
  • Author

Now that you are done with testing there is no reason to keep eating anything that is bothering you. Anything further that they do will not require the consumption of gluten (or dairy). By getting rid of those you may actually help your gallbladder pain (if that's what it is). The first way to start defining your pain is to get rid of the foods that are bothering you. You may not notice any difference at all for a couple of weeks, or you may experience some withdrawal from gluten that could make you feel even worse (if that is possible) for a week or two (being a little joy germ here :D ) before you actually start feeling the benefits of your dietary change.

The problem at this point is that I am not aware of which foods bother me. I have constant stomach pain and constant pain/pressure under my right rib (that part is definitely my gallbladder because it hurt in the same spot and way when they did the scan). But also when they did the scan my whole stomach hurts like it does now too. So I am just not sure if it is gallbladder and gluten...or just gallbladder. I am still determined to try gluten free for a month or 2 though. Just not sure if I can try all the other stuff now too. I work full time, married, have 2 younger kids that I cook for. I have been cooking mainly gluten free dinners the last couple days....but don't know if I can handle making them dairy free and everything else free too. It is just SOOOOO time consuming, energy draining, and expensive. Like I said, I can do the one for a while...but when I am grasping at straws I am just not sure. Of course, who knows. I will get my results tomorrow and maybe they will tell me that I have to go on that diet forever. Only time will tell I guess. I do want to feel better but there only so many hours in the day!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,877
    • Most Online (within 30 mins)
      7,748
    West Ga
    Newest Member
    West Ga
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By trents · Posted

      As I suspected, xanthan gum is one of the ingredients. It is a polysaccharide used as a texturing agent in many gluten-free products. It's hard to digest and causes distress for many celiacs. I can't say for sure if that was the problem but you might be on the lookout for it in the future. Muscle spasms can be caused by magnesium deficiency. Are you taking any vitamin and mineral supplements? I mean some things more potent than a multivitamin?
    • Wheatwacked
      Gluten-Free Newbie

      By Wheatwacked · Posted

      Hello @Suze046 In the western world 40 to 60 percent are low or deficient in Vitamin D.  Malabsorption from Celiac Disease, avoidance of UV from the sun and seasonal variations can result in low vitamin D.  A simple 25(OH)D test will tell you your status.  Low vitamin D affects immune system, bone health, mental health.  I keep mine around 80 ng/ml (200 nmol/L). Choline has many functions in our body.  From the neurotransmitter Acetylcholine to fat digestion.  It is made by our bodies but in insufficient amount.  The major dietary source is from beef and eggs.  The RDA is 500 mg a day.  That would be equivelant to 3 eggs or 10 cups of cooked brocolli a day.  Choline is a significant portion of biliary phospholipids and is a crucial element for bile function.n.  I found taking Phosphatidly Choline capsules helps.  A homocysteine test can be indicative of choline deficiency.  Could we be overlooking a potential choline crisis in the United Kingdom? NIH Choline Fact Sheet Vitamin D Is Not as Toxic as Was Once Thought
    • annamarie6655
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By annamarie6655 · Posted

      @trents thank you so much for your response!  When i was diagnosed, I was exhibiting mainly joint pain, hair loss, bloating, and allodynia (painful feeling from non painful stimuli). The muscle spasms only started after diagnosis, and it seems to only happen when I am severely glutened. It’s only happened twice, but it definitely makes me nervous when it happens.    In regard to the pizza, thats what i saw after i got sick from it. I’m still trying to figure out how to switch to ALL certified gluten-free goods.    for the dressing, here is the ingredient list:  WATER, VEGETABLE OIL, VINEGAR, SUGAR, GARLIC, SALT, RED BELL PEPPER, ONION, CONCENTRATED LEMON JUICE, XANTHAN GUM, POTASSIUM SORBATE, HERBS, CALCIUM DISODIUM EDTA, MONOACETIN, SPICES. and the link: https://www.kraftheinz.com/en-CA/kraft/products/00068100903577-zesty-italian-salad-dressing  
    • trents
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By trents · Posted

      Welcome to the forum, @annamarie6655! Are the muscle spasms and joint aches a new pattern of reaction to gluten or have you experienced these in the past? Concerning DeGiorno's "gluten-free" pizza, we have had many reports from celiac.com members of gluten reactions from consuming this product. I believe it is one of those "gluten-free" products that is made from wheat (speaking of the crust component) that has been processed in such a way as to remove most of the gluten. The FDA regs allow food companies to use the claim "gluten-free" as long as the product contains no more than 20ppm of gluten. This works for most celiacs but not for those on the more sensitive end of the spectrum. There is another industry standard known as "Certified Gluten-Free" that is stricter, requiring no more than 10ppm of gluten. Certified Gluten-Free products use the "GFCO" logo. Concerning the salad dressing, could you list the ingredients in another post or link it? There are certain other ingredients besides gluten commonly used in gluten-free manufactured food items to give them acceptable textures that give a lot of celiacs problems. 
    • annamarie6655
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By annamarie6655 · Posted

      Hello, so I was diagnosed with Celiacs about 8 months ago. After being diagnosed, I have been trying very hard to maintain a completely gluten-free (and celiac safe) diet.  Two of the main times I had a huge reaction, it was from: - gluten-free Digiorno Pizza w Pepperoni - Kraft Zesty Italian Dressing (this was in canada if that changes anything) Both are marked as gluten-free. Following eating these items, I had a severe bout of diarrhea, uncontrollable and heavy muscle spasms throughout my whole body, and aching throughout every joint.   If these are both gluten-free, why would I be reacting to them? Should I be worried about a separate allergy?  In regards to the muscle spasms, should I follow up with someone about that?
×
×
  • Create New...