Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting To Eat Gluten Free Today

goodnews

Recommended Posts

goodnews Apprentice
goodnews
Posted

So I just had my endoscopy yesterday and am waiting for the results from the biopsy. In the meantime I am starting to eat gluten free to see if I have some relief. I have been researching and excited about starting on this only because I want to feel better! Although I am anxious that I won't feel better for a while because I still have gallbladder problems and lately have been having acid reflux and my esophagus is hurting today (probably from the endoscopy yesterday). So today is my first day gluten free....but I totally forgot to buy gluten free things yet...that was a big mistake. so I have a whole lot of fruit/vegetable/nut snack like items today for lunch (cashews and cranberries with corn chex, cheese stick, banana with peanutbutter, popcorn, and fruit snacks). Will have to grab something at the store for dinner I guess. Hoping to feel better soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


goodnews Apprentice
goodnews
Posted
  • Author

Well so far (only day 3) I am definitely irritable, with a little more energy but stomach has been the same and a little worse last night and this morning. Dull headache (nothing major) and I have been going to the bathroom more regularly (was constipated before so this is kind of a good thing).

Had some brown rice pasta last night and it was actually quite good! I was pleasantly surprised. Should hear back from the dr. about possible Celiac on Monday but in the meantime hoping to feel better soon.

cahill Collaborator
cahill
Posted

Well so far (only day 3) I am definitely irritable, with a little more energy but stomach has been the same and a little worse last night and this morning. Dull headache (nothing major) and I have been going to the bathroom more regularly (was constipated before so this is kind of a good thing).

Had some brown rice pasta last night and it was actually quite good! I was pleasantly surprised. Should hear back from the dr. about possible Celiac on Monday but in the meantime hoping to feel better soon.

are you planing on staying gluten free even if your biopsy is negative??

MsCurious Enthusiast
MsCurious
Posted

Well so far (only day 3)

Had some brown rice pasta last night and it was actually quite good! I was pleasantly surprised. Should hear back from the dr. about possible Celiac on Monday but in the meantime hoping to feel better soon.

Glad to hear the rice pasta was good. I'm a little worried about the new taste of things to come! :o Monday is a big day for both of us...hope you have good news, goodnews! ;) I'm going out of state for 3 weeks, about a week after my biopsy... sure hope I don't go through the irritability thing... that would not be fun, when I'm FINALLY visiting family 2000 miles away! Yikes! :blink:

Let us know how you do on Monday... I'm eager to hear how your test went.

goodnews Apprentice
goodnews
Posted
  • Author

are you planing on staying gluten free even if your biopsy is negative??

Yes, for a while at least. I am still feeling sick and want to know if it will help. Plus according to my genes I am at high risk of developing it and am going to have a gallbladder surgery coming up.....so with my luck even if I don't have it now it will kick in then :huh: I am thinking that other things are bothering me too because I had some icecream today and that made me feel more sick. If the biopsy is negative I will probably reintroduce gluten later in a few months. But if I start feeling great and eating gluten makes me feel sick again...well then it's a no brainer and I will stay off it.

goodnews Apprentice
goodnews
Posted
  • Author

Glad to hear the rice pasta was good. I'm a little worried about the new taste of things to come! :o Monday is a big day for both of us...hope you have good news, goodnews! ;) I'm going out of state for 3 weeks, about a week after my biopsy... sure hope I don't go through the irritability thing... that would not be fun, when I'm FINALLY visiting family 2000 miles away! Yikes! :blink:

Let us know how you do on Monday... I'm eager to hear how your test went.

Yes, it was Tinkyada brown rice pasta. Quite good actually. I am baking some bread now from a mix so I can use it for sandwiches this next week. I haven't been eating a lot of the other flours and stuff and trying to eat more basic things....but I would just love a piece of toast in the morning. I tried Grits and I liked those. Of course I am a cereal or toast girl in the morning and I can't find a great cereal yet.

Hope Monday goes well for you! I am less irritable this afternoon. It is a beautiful day and I got out in the sun and made me feel better. I live in the northeast and we have been cooped up for like 6 months. Today is high 50's and it's T-shirt weather!!

Have fun visiting your family! Will let you know what my results are. I am kind of hoping it is negative for Celiac in all honesty. I would rather have some gluten sensitivity and maybe be able to reintroduce it...but whatever happens happens. It will work out. :)

cahill Collaborator
cahill
Posted

It is a beautiful day and I got out in the sun and made me feel better. I live in the northeast and we have been cooped up for like 6 months. Today is high 50's and it's T-shirt weather!!

sounds like you live in my neighborhood :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

If dairy is bothering you or you think it may be bothering you, there is no reason not to try stopping it for a while. It shouldn't affect the celiac testing if you are planning an endoscopy and biopsy.

goodnews Apprentice
goodnews
Posted
  • Author

If dairy is bothering you or you think it may be bothering you, there is no reason not to try stopping it for a while. It shouldn't affect the celiac testing if you are planning an endoscopy and biopsy.

I may consider it. I shouldn't be getting any more endoscopies...have had 2 within a 30 day period since they didn't do enough biopsies the first time. Hopefully I am done with that for a while. I am not at all feeling any better yet...but today is only day 4. Of course I am confused though because maybe I shouldn't have started it yet since my gallbladder is all screwed up. I am not sure if it is possible for my stomach to feel better because maybe it is the gallbladder causing those problems. It's hard to tell.

mushroom Proficient
mushroom
Posted

Now that you are done with testing there is no reason to keep eating anything that is bothering you. Anything further that they do will not require the consumption of gluten (or dairy). By getting rid of those you may actually help your gallbladder pain (if that's what it is). The first way to start defining your pain is to get rid of the foods that are bothering you. You may not notice any difference at all for a couple of weeks, or you may experience some withdrawal from gluten that could make you feel even worse (if that is possible) for a week or two (being a little joy germ here :D ) before you actually start feeling the benefits of your dietary change.

goodnews Apprentice
goodnews
Posted
  • Author

Now that you are done with testing there is no reason to keep eating anything that is bothering you. Anything further that they do will not require the consumption of gluten (or dairy). By getting rid of those you may actually help your gallbladder pain (if that's what it is). The first way to start defining your pain is to get rid of the foods that are bothering you. You may not notice any difference at all for a couple of weeks, or you may experience some withdrawal from gluten that could make you feel even worse (if that is possible) for a week or two (being a little joy germ here :D ) before you actually start feeling the benefits of your dietary change.

The problem at this point is that I am not aware of which foods bother me. I have constant stomach pain and constant pain/pressure under my right rib (that part is definitely my gallbladder because it hurt in the same spot and way when they did the scan). But also when they did the scan my whole stomach hurts like it does now too. So I am just not sure if it is gallbladder and gluten...or just gallbladder. I am still determined to try gluten free for a month or 2 though. Just not sure if I can try all the other stuff now too. I work full time, married, have 2 younger kids that I cook for. I have been cooking mainly gluten free dinners the last couple days....but don't know if I can handle making them dairy free and everything else free too. It is just SOOOOO time consuming, energy draining, and expensive. Like I said, I can do the one for a while...but when I am grasping at straws I am just not sure. Of course, who knows. I will get my results tomorrow and maybe they will tell me that I have to go on that diet forever. Only time will tell I guess. I do want to feel better but there only so many hours in the day!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.