Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Thought I Would Update About My Trip To The Usa


Dellers

Recommended Posts

Dellers Apprentice

Some of you might have seen before I went on my holidays that I was in a panic about things eg food and getting to toilets. I am very happy to say everything went perfect on holidays. I only touched the Imodium once !

I never thought of checking the bottle of drink that I get here in the UK as it is gluten-free here so I had a reaction to it in the USA and sure enough it had malt in it! I felt terrible but I promised the kids we would go to Disney World,I got as far as the car park and spend and hour and a half in the bathrooms before we turned around and went back to the villa.

The restaurants over there were fantastic !!!! outback steak house the best.We brought a lot of food things home with us. I found some cookies that I love !!!! I saw my dietitian today but he could not interpret my DNA results but it looks like I have one gene but not the other ...?? if anyone could shed any light on this it would be great.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Some of you might have seen before I went on my holidays that I was in a panic about things eg food and getting to toilets. I am very happy to say everything went perfect on holidays. I only touched the Imodium once !

I never thought of checking the bottle of drink that I get here in the UK as it is gluten-free here so I had a reaction to it in the USA and sure enough it had malt in it!

What was the drink?

Dellers Apprentice

What was the drink?

Hi it was smirnoff ice the mixed drink. In the UK it is ok but not in the USA. I found online it said it contained malt the bottle in tiny white text had "malted beverage drink " so tiny didnt even notice it on the label .

kareng Grand Master

Hi it was smirnoff ice the mixed drink. In the UK it is ok but not in the USA. I found online it said it contained malt the bottle in tiny white text had "malted beverage drink " so tiny didnt even notice it on the label .

Thanks for the warning. A lot of these flavored alcohol drinks have malt.

Jestgar Rising Star

Some of you might have seen before I went on my holidays that I was in a panic about things eg food and getting to toilets. I am very happy to say everything went perfect on holidays. I only touched the Imodium once !

Glad to know we aren't so scary after all :)

lovegrov Collaborator

In the U.S. pretty much all of those type drinks are malted. Same with wine coolers. You have to assume they have barley.

richard

Takala Enthusiast

Congrats on surviving the United States ! B)

What does it say on the gene test ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



catsmeow Contributor

I know nothing about the gene testing...sorry.

I'm so glad you had a good time in the USA with only one gluten incident! I have not eaten at Outback steakhouse since I was diagnosed. I might have to try them sometime since you liked it so much.

What were these outstanding cookies you spoke of??? Inquiring minds want to know and buy/try them.

Were Americans nice and friendly towards you and your family?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Charlotta Herte
    Newest Member
    Charlotta Herte
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.