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Risking It

Googles

By Googles
in Coping with Celiac Disease

Recommended Posts

Googles Community Regular
Googles
Posted

I was in a car accident today. I went to the ER and they said I had a mild concussion but otherwise fine. However, I needed to be monitored by someone for the next 24 hours. So I am staying at my friends house. However, that means I am limited in my gluten free food access, and unless I wanted to bring my kitchen with me, am using her dishes and hoping not to get sick. Wish me luck.

The one interesting point was that when the paramedics asked me about allergies and I told them about the celiac they knew what it was and what I couldn't have. That was a pleasant surprise.

Thanks.

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tictax707 Apprentice
tictax707
Posted

oh my goodness!!! I hope you are ok!! Hopefully you can get everything well washed - or maybe do they have plastic plates & silverware? Could you just have a frozen dinner that you could eat straight from the container? Just to get you through the night? Glad the paramedics were in the know. ;)

eatmeat4good Enthusiast
eatmeat4good
Posted

I am so glad you are OK and you have a friend to stay with.

Hopefully you will be OK eating from dishes...they can be washed and are not the problem.

Hopefully your food will be safe and you won't have any issues from this.

Glad the paramedics knew what Celiac was...maybe the word is getting around.

Hope you are all fine well and good tomorrow and that you get some rest tonight.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Hope you are okay! You could just eat some Lara bars or other safe prepackaged food to get you through the 24 hours if you don't want to risk cooking in someone elses kitchen. I keep a little emergency food bag on hand for things like that. It's stocked wiht Lara bars, banana chips, dried cherries, almonds, Enjoy Life bars, etc. Peanut butter and jellly on a rice cake will also do in a pinch.

mamaw Community Regular
mamaw
Posted

I hope your recovery is quick. Sorry to hear of your accident... Glad you have a friend to help out....

blessings

mamaw

Fire Fairy Enthusiast
Fire Fairy
Posted

Hope you are feeling well today. Sorry to read about your wreck.

Googles Community Regular
Googles
Posted
  • Author

I seem to have made it through without getting sick. Yay. I am feeling a little better from the crash.

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Igg postive Rookie
Igg postive
Posted

Sorry to hear about your accident. Hope you do not have any after effects from the crash. Maybe you could have food that comes in their own wrappers like bananas and avocados. I had a similar experience in the hospital recently. A nurse taking care of me saw me reading a book on celiac d. She said she had been gluten free for a number of years and was familiar with the local gluten intolerance group. So we talk symptoms for a while. It made me feel better for sure.

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      High DGP-A with normal IGA

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      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      High DGP-A with normal IGA

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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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