Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support Groups In The Inland Empire


Caliceliac

Recommended Posts

Caliceliac Newbie

Hello. My name is Tamara. I am looking for a support group in the Inland Empire or surrounding area of Riverside, San Bernardino in California. Any suggestion?

  • 1 month later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bethwelsh Newbie

Hello. My name is Tamara. I am looking for a support group in the Inland Empire or surrounding area of Riverside, San Bernardino in California. Any suggestion?

Tamara, a search didn't find a group, but maybe we could sort of do it online for now. In the interest of full disclosure, there's no certainty of celiac here. My youngest stopped spitting up/throwing up every day when I removed wheat from his diet, something I wouldn't have thought of if I hadn't already done it for the older boy for behavior. But my baby cannot have testing done yet as he's not two. However, the treatment needed is still the same. I've gotten pretty good at baking gluten free in just a few short months, only to realize I get to start over because the same baby has trouble with almonds and the doctor recommended we avoid all tree nuts.

I live in San Bernardino where we have no Henry's nearby and where the best store for gluten free products is Clark's (OMG expensive). It would be great to have someone to share recipes with and to share finds with. Also, when it's kids that suffer, it seems so much harder to make them understand why they can't eat what everyone else is. It's hard to even get the folks outside the immediate family to understand or even accomodate our needs, which is so frustrating.

I'd really like to see if more Inland Empire folks will come out of the woodwork if we start having an active thread, or even if we put together a yahoo group.

-Beth

  • 1 month later...
cap6 Enthusiast

Hope you are still checking this thread because we have a new support group in Hemet that just started a few months ago & we're growing. We meet the second Saturday of every month at 9:30 a.m. at the Red Robin in Hemet (entrance to the side door). You can contact Jenny at 951-288-5999 for more info.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,236
    • Most Online (within 30 mins)
      7,748

    Elaine Brostrom
    Newest Member
    Elaine Brostrom
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zuma888
      I just got my test results after a less than 2-week gluten challenge consuming about 5 g of gluten per day on average.  Anti tTG-IgA: <0.2 AU/ml (<8 is negative) IgA: 180 mg/dl (Reference range is 70-400) I previously had been on a gluten-free diet for around 3 years or so, with occasional cheating and not being strict about cross-contamination. I am however still suffering from the effects of the gluten challenge (food sensitivities, slight brain fog, weird stool, fatigue, swollen thyroid, bodyaches). Is this likely to be NCGS rather than celiac disease given the test results and my history? Note: I have one copy of HLA-DQ8.
    • trents
      How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time. 
    • nataliallano
      Thanks Trents I'm strict with my gluten-free diet now. I just don't feel any better. I'm going to get tested for vitamins and minerals to see if I need some supplements. For sure I got some damage that doctors call Menier's and the only way they treat it is with medicine that does damage my body more than it helps.   
    • Zuma888
      Thank you Scott for your helpful response! Based on this, would you say someone who is on a gluten-free diet - but not strict about cross-contamination and occasional cheating - and tests negative for tTg-IgA while having normal total IgA is not likely to have celiac, even if they have been 'gluten-free' for years?
    • Scott Adams
      That’s a really insightful observation about antibody testing and the gluten challenge! You’re absolutely right that antibody levels can remain elevated for months or even years after going gluten-free, especially if there’s ongoing cross-contamination or occasional slip-ups. The immune system doesn’t reset overnight—it can take time for antibodies like tTG-IgA to normalize, which is why many doctors recommend waiting at least 6–12 months of strict gluten-free eating before retesting. For someone who’s been gluten-free for less than two years or hasn’t been meticulous about avoiding cross-contact, there’s absolutely a chance they’d still test positive, since even small amounts of gluten can keep antibodies elevated. This is partly why the gluten challenge (where you eat gluten before testing) exists—it’s designed to provoke a measurable immune response in people who’ve been gluten-free long enough for antibodies to drop. But you raise a great point: the challenge isn’t perfect, and false negatives can happen if the timing or amount of gluten isn’t sufficient to trigger a strong antibody response. This is why diagnosis often combines antibody tests with other tools like genetic testing or endoscopy. Your question highlights just how nuanced celiac testing can be! For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
×
×
  • Create New...