Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fatigue..really?

staci002

Recommended Posts

staci002 Rookie
staci002
Posted

From the moment I stopped putting gluten filled foods in my mouth my stomach stopped bloating. Could this be? After 2 years of suffering and feeling horrible. After many tests with many different doctors looking at me like I had two heads. Of course though I thought maybe it was just a fluke. Since I had negative blood test and negative biopsy. So..my daughter and I went to the Olive Garden and I ordered pasta(not gluten free). (I had been gluten free for 9 days at this point and had no stomach issues) This was going to be my life changing moment. If it doesn't make me sick then I will belive the doctors, if it does well then I guess I know my own body better than the doctors. As soon as I finished my last bite my stomach was already starting to swell. By the time I walked out I looked 6 months pregnant. The following morning it took all I had to get myself out of bed and drag myself to work. Besides the array of stomach issues, I get headaches and EXTREME fatigue. I was sick for the next 5 days straight. I missed two days of work and when Friday finally rolled around I hit my couch right after work and never moved until Monday morning. This was my ah hah moment!!!

Is this really what could be causing my fatigue, muscle aches, and pain? I have not had energy to do much of anything for the past 2 years. I have missed so many days of work that everyday I crossed my fingers that it would't be my last. I feel like I have slept the past 2 years of my life away. Any free time I had was spent sleeping, praying that I finally would have some energy again one day.

My question for you all is (even though I know everybody is different)...Was fatigue a major issue for you guys? If you get glutened how many of you suffer with fatigue as a side effect?

Thanks so much, Staci

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eatmeat4good Enthusiast
eatmeat4good
Posted

I literally slept for 7 years....I could not think at all...I was tired, asleep, or in the bathroom. That's it.

Yes, fatigue can go away.

Before that I functioned all day every day...then I became the patient with "two heads" as you say. No one knew what was wrong. 7 months "clear of gluten" and I have no more fatigue.

You know your body best. I think you conducted the perfect test...and your results sound very reliable in terms of Gluten Intolerance/Celiac. :)

Here's to being able to stay awake for life! ;)

staci002 Rookie
staci002
Posted
  • Author

I literally slept for 7 years....I could not think at all...I was tired, asleep, or in the bathroom. That's it.

Yes, fatigue can go away.

Before that I functioned all day every day...then I became the patient with "two heads" as you say. No one knew what was wrong. 7 months "clear of gluten" and I have no more fatigue.

You know your body best. I think you conducted the perfect test...and your results sound very reliable in terms of Gluten Intolerance/Celiac. :)

Here's to being able to stay awake for life! ;)

Eatmeat4good,

You really just made my day! It's so helpful to know that I'm not alone. I'm looking forward to hopefully more energy, less fatigue, and making memories with my family instead of sleeping my life away :)

Ramos1985 Newbie
Ramos1985
Posted

So I was just diagnosed several hours ago with celiac and as my Doctor and I went through the symptoms it became pretty apparent that my chronic fatigue was caused by my body's reaction to gluten. While he said celiac impacts people differently, I would have to say that now that I look back at times when I became extremely fatigued after eating or drinking something high in gluten that the signs were definitely there before I decided to go to the doctors.

Now that I am going to have to change my diet I am interested to see if I will have more energy as I begin cutting glutens out of my food and drink.

eatmeat4good Enthusiast
eatmeat4good
Posted

You will definitely have more energy as the months go by. I'm still getting better. To both of you: Take your vitamins. Malabsorption is hard on the body and you should have vitamin levels checked. I didn't at first. Then after 6 months of taking 5000 mg D a day, checked my blood and I was just inside the range or normal. Wonder what it was before? :blink: The AEDK and the B vitamins are very important in addition to B12 and iron and folic acid. I think that is the Celiac list. Anyway, the more consistent I am about vitamins, the better energy I have. Just another thought for you as I am still in recovery myself.

Staci002- I'm glad I was able to give you hope. Every little bit I can give helps to erase all those senseless years of misery and loss. You kinda made my day too! ;)

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I was so fatigued and in pain I spent several months bed-bound. Drs. tested me for everything under the sun (except celiac) and wanted to diagnose me with either fibromalysia or chronic fatigue syndrome. Now over a year off of gluten I am able to do things again instead of wasting my days in bed barely aware of what day it is or what is going on around me.

Bottom line--Yes the fatigue is caused by gluten. You're symptoms are real. It's not all in your head.

BTW, next time you go to Olive Garden you can get gluten free pasta you know?

staci002 Rookie
staci002
Posted
  • Author

Bottom line--Yes the fatigue is caused by gluten. You're symptoms are real. It's not all in your head.

Thanks so much for your reply. It's great to know there is hope!! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kim69 Apprentice
Kim69
Posted

Yes fatigue was incredible! I felt like just dropping to the floor in a heap and not moving!

Gluten poisoning affects me for about a week. I get ab pain, swelling, gas, diarrhea but worst of all is the tiredness. It is a year since going gluten-free. I am still either getting cross contaminated, gluten poisoning or have a reaction to some other food. You may need to be patient! I still haven't gone back to running or cycling. 

anabananakins Explorer
anabananakins
Posted

Is this really what could be causing my fatigue, muscle aches, and pain? I have not had energy to do much of anything for the past 2 years. I have missed so many days of work that everyday I crossed my fingers that it would't be my last. I feel like I have slept the past 2 years of my life away. Any free time I had was spent sleeping, praying that I finally would have some energy again one day.

My question for you all is (even though I know everybody is different)...Was fatigue a major issue for you guys? If you get glutened how many of you suffer with fatigue as a side effect?

Thanks so much, Staci

Yep. Day three of being gluten free I had an amazing surge of energy. It's awesome. I used to go to bed at 8pm most nights, waking up at 7am still feeling exhausted. Suddenly it was 11pm and I was still wide awake :-) Even if I have a late night I now wake up feeling good, not like the old, familiar 'so exhausted I could die' feeling.

My whole life I was flattened by exhaustion. As a small child I was the one who had to go to bed earliest, even though my siblings are younger. My mum used to pick me up from school early because I couldn't always handle a full day. Everything was such a struggle. Now I feel great.

I did have a minor set back a few weeks after going gluten free, and we discovered my vitamin D levels were really low. Getting onto the Vit D helped even more.

sherrylynn Contributor
sherrylynn
Posted

Now I have to wonder. They say you get Chronic Fatique Syndrom from a major illness or surgery. Maybe what people who have that actually have Celiac. Starting to think people on this forum are smarter than the "Doctors" that we keep going to.

eatmeat4good Enthusiast
eatmeat4good
Posted

Yeah, they diagnosed me with Fibromyalgia and left me to rot on my couch without ever testing anything else. I was so neuro-brain fogged I couldn't think what tests to ask for. It is supposed to be the LAST diagnosis not the first. These people on Celiac.com saved my life.

staci002 Rookie
staci002
Posted
  • Author

Yeah, they diagnosed me with Fibromyalgia and left me to rot on my couch without ever testing anything else. I was so neuro-brain fogged I couldn't think what tests to ask for. It is supposed to be the LAST diagnosis not the first. These people on Celiac.com saved my life.

I couldn't agree more! I was also diagnosed with Fibromyalgia and Chronic Fatigue Syndrome. My family doctor sent me to a Fibro specialist three hours from where I live. The information that I got from the specialist shocked me...her exact words.."Fibromyalgia is something you will have for the rest of your life so you are just going to have to learn to deal with it". I couldn't believe my ears, I left there in tears. But now there is hope and I'm beginning to doubt my Fibro diagnosis. Maybe all my symptoms are coming from the gluten. I feel renewed again with hope!

mushroom Proficient
mushroom
Posted

Now I have to wonder. They say you get Chronic Fatique Syndrom from a major illness or surgery. Maybe what people who have that actually have Celiac. Starting to think people on this forum are smarter than the "Doctors" that we keep going to.

Actually, my niece has never overcome her chronic fatigue despite being on strict gluten free diet. They can go together, unfortunately, as well as being a symptom of the other. (Not wishing to be a bucket of cold water :( )

krystynycole Contributor
krystynycole
Posted

I almost quit my job because of the fatigue, but going gluten-free has saved my job and has made me much happier as I'm not so exhausted all the time.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,539
    • Most Online (within 30 mins)
      7,748
    Josiemc
    Newest Member
    Josiemc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.