Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Else Experienced This?

happytobeGF

Recommended Posts

happytobeGF Newbie
happytobeGF
Posted

Ok, I'm feeling like nothing I'm reading about gluten intolerance really fits. All I know is that going gluten-free helped me so much that I felt seriously HAPPY to be gluten-free, and don't miss bread at all. Can any of you identify with these symptoms?

--I had surgery and a miscarriage last summer. After this, I started having more serious stomach cramping and gas than normal. I've always been a fairly "gaseous" person, but it got worse. After Christmas, the stomach cramping got so bad that I started suspecting gluten intolerance, and went into get tested. Negative. Everything was negative. On the very, very low side of negative.

--a year ago, as a 30-year old woman, I got diagnosed with ADHD. It was like a revelation. I got medicated, and it helped. But the meds always seemed to wear off much more quickly than the docs said they should.

--I've always had weird skin problems--allergic to latex, random weird itchiness that I couldn't identify, but that didn't stay around. After I started having kids, the skin on my right hand got such bad eczema that it would crack and bleed. Steroid creams + constant lotion application helped, but was really freaking annoying.

--I've always had tons of mouth blisters "due to stress." So did my mother and grandmother.

--I've tested borderline anemic w/ every pregnancy, and iron supplements didn't seem to help that.

--The worst part was my weight. I've always had a voracious appetite. I could eat 2x as much in volume as my high-metabolism husband, and maybe ate half the fat. I could diet and exercise for months at a time and maybe lose a pound. It was so discouraging.

Well, after my blood was drawn for my test, I went gluten-free without waiting for the results to come back. (And, at the advice of a gluten-free/CF friend, stayed that way even after the tests came back negative) It only took a few days, but the stomach cramping stopped. Less than two weeks later, my hands started healing, and I'd forgotten to apply *any* creams at all. Within a month, my hand was smooth like a baby's. I started taking pictures, lol.

My ADD got easier to manage. My brain fog cleared considerably. I had more energy. My blood pressure dropped.

The BEST part was my appetite. I was suddenly eating half of what my husband was eating. All my life, I've had such crazy blood-sugar drops that my parents kept getting me tested for diabetes. It kept coming back as, "Almost, but not quite." Those *stopped.*

I've lost 10 lbs in three months. I have about 25 more to go, LOL!

I can't find anything on the internet about a gluten-intolerant person having a drop in appetite after going gluten-free---and having that be such a good thing. I've met one woman on one forum who said her *grandkids* experienced this, but that just isn't quite authoritative enough for me, lol. :) Has anyone heard of this type of result before?

Thanks so much,

HappytobeGF

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

What's that old saying? "If it walks like gluten intolerance and it poops like gluten intolerance, then its probably gluten intolerance (or Celiac)"

The eating less thing: When you guts are damaged and unable to take in the nutrients your body craves, it might trigger you to eat more.

Welcome!

ravenwoodglass Mentor
ravenwoodglass
Posted

Since celiac can impact nutrient absorption our bodies can signal us that we are constantly hungry because it wants more nutrients.

It sounds like you have seen a great deal of improvement on the diet. I would stick with the diet.

etta694 Explorer
etta694
Posted

The eating less thing: When you guts are damaged and unable to take in the nutrients your body craves, it might trigger you to eat more.

Welcome!

Since celiac can impact nutrient absorption our bodies can signal us that we are constantly hungry because it wants more nutrients.

Yes, this has been my experience... before I couldn't stop eating and I was always craving food. Now I am satisfied - and less interested in food.. which has led to some unhealthy eating habits too, thus I haven't lost any weight.

txplowgirl Enthusiast
txplowgirl
Posted

Hi Happytobegf,

I've always been heavy even as a kid, I had so many issues like yours plus a lot more. I was always hungry but couldn't eat lot, Everybody said I ate like a bird.

But since i've been gluten-free I eat way more than I use to but i've lost 45 lbs and I very rarely get hungry now, isn't that backwards or what? Lol

happytobeGF Newbie
happytobeGF
Posted
  • Author

Thank you, thank you, thank you. It's so good knowing that I'm not making this up. And also, thank you for posting the little "stories" of your diagnoses and mis-diagnoses at the bottom. It just makes us newbies feel a ton better to know you've walked this road before us. :)

mushroom Proficient
mushroom
Posted

As I read through your initial post, I couldn't find a single thing in there that I would not possibly attribute to gluten intolerance.

Pregnancy often triggers.

ADHD is a common symptom to clear up gluten free

Celiac is notorious for skin problems - eczema, psoriasis, dermatitis herpetiformis, dry flaky skin, keratosis pilaris, etc., etc.

Apthous ulcers in the mouth

Anemia

Inability to lose weight...

Have I missed anything? Oh yes, the gaastrointestinal symptoms. :D

I would call you a pretty classic case. There's nothing in there that DOESN"T fit.:rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


UpbeatPete Explorer
UpbeatPete
Posted

So the Keratosis on my arms can be from Celiac Disease? What if I've had the keratosis my entire life, or as long as I can remember?

ravenwoodglass Mentor
ravenwoodglass
Posted

So the Keratosis on my arms can be from Celiac Disease? What if I've had the keratosis my entire life, or as long as I can remember?

Some of us can have skin issues for a very long time before other celiac symptoms show up. Once you have been gluten free for a while if the KP disappears you will know it is gluten related.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,647
    • Most Online (within 30 mins)
      7,748
    Julie 911
    Newest Member
    Julie 911
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Buckwheat

      By Scott Adams · Posted

      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Buckwheat

      By trents · Posted

      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Buckwheat

      By Inkie · Posted

      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Frequent nausea after gluten-free diet

      By Wheatwacked · Posted

      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.