Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

2.5 Year Old Is "spaced Out"


MadScientistSA

Recommended Posts

MadScientistSA Newbie

My 2.5 year old (well, 2.75 years, I suppose) was diagnosed with Celiac in January. I completely removed gluten from my home a week before his diagnosis just to see if that's what was bothering him (I didn't expect to get a test done the next week), and he hasn't had it since. I send all his food to daycare every day and they know not to give him anything. We rarely eat out, and when we do, I typically bring his food with me. I'm almost certain he's not getting gluten on a regular basis... he's been glutened twice since January, and I knew it immediately. He's also been dairy free since February, save a couple of weeks ago when I reintroduced it and he turned into devil boy, when I took it away again.

However, he still gets this "spaced out" thing going on 3-4 times a week. He will sit/stand there for a minute with a vacant expression and won't respond to anything. After a minute or so, as quick as he started, he'll act like normal again.

Almost all of his symptoms have completely gone away since we removed gluten, except for this one. How long will this last? I'm not usually a worrier, but this one has me a little concerned.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

That's normal for a teenager, but not a toddler.

I would tell the doctor. I don't want to alarm you but they could be seizures. Not all seizures are the scary shaking kind. My oldest was in grade school with a kid who did this. He got it controlled with medication.

I hate even saying this on a Saturday.

See if you can think of any triggers. Watching cartoons, playing with a flashing toy, time of day. Do they observe this at school? Write down everything you can think of to tell the doctor.

On further thought: I looked next door and remembered one of those kids. If she didn't like what you were saying or want to hear you, she would just look at you blankly. At a very young age. Maybe he's being a bit " difficult"?

txplowgirl Enthusiast

That is what is known as a gluten siezure, aka gluten ataxia. I have had those since I was 8. My parents always accused me of daydreaming or not paying attention. It was really hard sometimes in school. They finally went away after I was gluten free for 6 months but I had to totally remove not only gluten but dairy and soy too.

Darn210 Enthusiast

My first thought was also seizures . . . and if it is related to gluten, I would suspect that as a nuerological symptom, it would be one of the last to resolve. Have you noticed if they are fewer or don't last as long since going gluten-free? I think it is something to talk to the doc about. ETA . . . I don't think you should wait to see if it resolves on its own.

sandsurfgirl Collaborator

Those definitely sound like seizures. Not to alarm you but you need to get him to doctor and get a referral to a neurologist. It doesn't sound like a gluten thing to me at all.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.