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Rumbly Grumbly


Greentealady

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Greentealady Rookie

Hi, do any of you still get the grumbly rumbly noise after you eat? I still do almost every single time after I eat. I can't figure it out. Is one month enough time to be gluten-free and see results? I def. feel better but I still get occasional "C" and this annoying intestinal noise :-(


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proud-armywife Rookie

I just wanted to add that I have this issue as well. It is very loud grumbling and sometimes it is so loud it wakes me up......it doesn't hurt it is just annoying.. Oh the joys of celiac...LOL

mushroom Proficient

Yes, I still have it because I am still a bit gassy. :D

Greentealady Rookie

That is annoying!!! Mine rarely hurts, it has at times though but that was mostly pro to gluten-free Diet. Now it happens almost every time after I eat but doesn't last long but geesh why does it happen?

Greentealady Rookie

How long have you been gluten-free? I am trying not to get frustrated but I am :-( I have been doing this for a month and felt some relief for sure but I keep waiting for that burst of energy and non constipated/bloaty days. I never got officially tested because I went gluten-free before (had I seen this board first I would not have made that dingy move) BUT I did do my research and I know my history and it seems like a dead ringer. I still second guess myself all the time.

ked85 Newbie

I just started the diet about a week and a half ago and second guess that it's actually working. What I've started to do is create a Google document table (like Excel) and keep track of what I eat every day. I highlight foods that give me moderate stomach issues in yellow and then scale up to orange and red (I was having "red" at least 2-3 times a week). The first 3 days I had a "yellow" or mild issue each day, but after that I've had nothing for about 5 days. I've eliminated all gluten and also milk (I switched to soy but I might some other alternative as I hate the taste and hear conflicting things about it).

I'm still gassy though, and when I lay on my back my stomach makes LOUD noises, like my hubby will glance over at me and give me a "what the heck" face. I can feel it when it happens, and it can be very uncomfortable, especially when I sleep (I can only sleep on my side due to this). Also coffee in the morning really makes me uncomfortable I'm realizing, so I've considered switching to herbal coffee (Teeccino).

My celiac test came back negative but I have a very close family history of it, so I thought gluten intolerance might be an issue (so I know what you're saying about second guessing not having a doctor reaffirm that this is actually what you have).

Mari Contributor

Imbalances and overgrowths of microorganisms in the intestine feed on the food eaten and produce the gas. This is referred to as Dysbiosis and can be caused by bacteria, yeasts and even parasites. Some celiacs seem to be able to normalize the bowel flora and this gets better over time. But many of us need to either work with Drs to correct this problem or use self treatment with supplements and cleanses. A normal person will have no bacteria or yeasts in the stomach or upper small intestine because their strong stomach acids kill them off as does the bile and some of the digestive enzymes in saliva or from the pancreatic secretions. Having volumes of gas soon after eating means that these organisms are living in the upper intestine. Choosing foods that do not encourage the growth of these organisms helps a lot. I use the legal food list from a gluten free diet, take stomach acids in the form of Betaine-HCl and use probiotic, capsules and sheeps milk yogurt. Kefir is good and for people with milk allergies can be made with water.


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rgarton Contributor

I get a hugely loud grumbly rumbly tummy, rarely aches, just occasionally. I've found it's when i eat vegetables in the evening and if i go to bed shortly after or if im sprawled out on the sofa relaxing my tummy is often as loud as the t.v. My partner thinks its hilarious. My mum has the same reaction to eating veggies in the evening. (shes coeliac too)

  • 2 weeks later...
Kim69 Apprentice

I am gluten-free Coeliac for 1 year. I still have lots of gas and pain. I am on a limited diet - gluten-free and FODMAP - it's really annoying! I just had my blood work done and it's all normal so at least I am avoiding gluten well.

Greentealady Rookie

It is so frustrating isn't it? Do you ever think it is something else and that you are barking up the wrong tree? I am trying to stay positive but sometimes I want to give in. I know I feel better on the diet but yet when I have bouts of constipation and rumbles still I go crazy. It isn't controlling my life like before but I guess I just was hopeful it would cease. Prob stupid on my part.

mushroom Proficient

Frustrating? Yes. Stupid to be hopeful? No. I still have hopes my rumbles will stop grumbling. :D

kltyler57 Newbie

Hi, I'm new to the group. I found out 1 1/2 years ago that I have Celiac with a biopsy. My blood test didn't show anything, but I had already stopped eating gluten a month before because I suspected that I may have it. I'm 53 years old, and feel very alone most of the time! My husband, and two adult kids have not been tested yet. I think my husband may have it too, and possibly our 33 year old son, but they are in denial! I have fibromyalgia, numbness & tingling in my arms, hands, legs and feet. I also have bad night sweats, depression, anxiety, and even though I have been gluten free for over a year I still feel crappy most days. I'm also lactose intolerant. It seems like after I eat my first meal of the day about an hour later I get a lower belly ache, feel kinda nauseous until after I have a few bowel movements! I feel like a prisoner in my body and my home! Most days I don't feel like going anywhere because I feel so yucky, and I don't want to have to run to the bathroom some where, and have an "attack" out in public some where! Does anyone else experience this, or am I alone? :( Sometimes I'll start sweating really bad before an "attack", and during my bathroom visit. Oh and I forgot to say, I'm also morbidly obese, and have been most of my life. I have tried several diets only to lose weight and gain it back. I wanted to try gastric bypass until I found out that I can't because I have Celiac! :( I feel so hopeless, and misunderstood, and like NO one knows what it feels like to be me. Oh, I also get fluid retention in my inside upper thighs, and feet if I stand for very long. Does anybody else get this? Thanks for listening.....

rgarton Contributor

Hi, I'm new to the group. I found out 1 1/2 years ago that I have Celiac with a biopsy. My blood test didn't show anything, but I had already stopped eating gluten a month before because I suspected that I may have it. I'm 53 years old, and feel very alone most of the time! My husband, and two adult kids have not been tested yet. I think my husband may have it too, and possibly our 33 year old son, but they are in denial! I have fibromyalgia, numbness & tingling in my arms, hands, legs and feet. I also have bad night sweats, depression, anxiety, and even though I have been gluten free for over a year I still feel crappy most days. I'm also lactose intolerant. It seems like after I eat my first meal of the day about an hour later I get a lower belly ache, feel kinda nauseous until after I have a few bowel movements! I feel like a prisoner in my body and my home! Most days I don't feel like going anywhere because I feel so yucky, and I don't want to have to run to the bathroom some where, and have an "attack" out in public some where! Does anyone else experience this, or am I alone? :( Sometimes I'll start sweating really bad before an "attack", and during my bathroom visit. Oh and I forgot to say, I'm also morbidly obese, and have been most of my life. I have tried several diets only to lose weight and gain it back. I wanted to try gastric bypass until I found out that I can't because I have Celiac! :( I feel so hopeless, and misunderstood, and like NO one knows what it feels like to be me. Oh, I also get fluid retention in my inside upper thighs, and feet if I stand for very long. Does anybody else get this? Thanks for listening.....

Aw i feel for you i really do. It will take a while and you do have to be super careful (cross contamination is hell!), i do get the sweats before needing a bathroom visit, also feeling faint! I'm underweight so i don't think its to do with your size. I also don't go anywhere at the moment because i feel so 'yucky'. You may find going for a short walk around the block helps, i know i do, and i know how much energy it takes! I think you need to focus on yourself mainly at the moment, if your husband and son are in denial leave them to it, im sure you've said all you can! I went right back to basics and thats how i ended up losing weight but it was the only way i could eat at the time. I ate plain boiled rice and veg, bananas and sipped plain black tea to stop any nausea. Maybe try it for a while i know its bland but it helps stop the emergency runs! (literally!) good luck

Judy3 Contributor

I've been gluten free for 6 months now and I'm feeling better than ever BUT I still get the rumbly grumbly stomach noise after I eat sometime. No pain just a lot of noise...

kltyler57 Newbie

Aw i feel for you i really do. It will take a while and you do have to be super careful (cross contamination is hell!), i do get the sweats before needing a bathroom visit, also feeling faint! I'm underweight so i don't think its to do with your size. I also don't go anywhere at the moment because i feel so 'yucky'. You may find going for a short walk around the block helps, i know i do, and i know how much energy it takes! I think you need to focus on yourself mainly at the moment, if your husband and son are in denial leave them to it, im sure you've said all you can! I went right back to basics and thats how i ended up losing weight but it was the only way i could eat at the time. I ate plain boiled rice and veg, bananas and sipped plain black tea to stop any nausea. Maybe try it for a while i know its bland but it helps stop the emergency runs! (literally!) good luck

Thank you for answering my post. I don't feel so alone now. :) It's nice to know that someone cares. :wub:

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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