Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Got Positive Wheat Allergy Test!

GlutenFreeManna

Recommended Posts

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

It's a small victory but I am really, really happy to at least have gotten a positive wheat allergy test. Finally, I have medical docuamentation to validate the last 15 months I have eaten gluten free and explain why I feel so much better gluten free. The dr did say that the result was a "low positive". He was sort of skeptical that I could have the range of symptoms I had prior to going gluten free with just a "mild" wheat allergy. Well I don't care if he calls it mild. It at least proves I was on the right track by eliminating it. I'm still going to operate as if I have Celiac disease-- since my symptoms when I get just a little wheat are severe (not throat closing severe, but extreme D, fatigue, brain fog, memory problems, hair lose, etc). But now it is certain I can't have wheat (I was already pretty sure but this will convince skeptical family at least) and I can get a dr's note if I ever need it for anything.

Unfortuantely, all my other suspected allergies came back negative. The dr did admit that false negatives were possible. He said the false negative rate for the allergy blood tests is 3%. Does anyone know if that is true for allergy tests or if it is higher like the celiac panel test? I have not gotten a copy yet so I don't know the name of the test they did but I will be getting one to check out the numbers for sure (I might just frame the positive wheat result, LOL).

Okay now here is the somewhat bizarre part: Since my other allergies came back negative the dr offered to do "further testing" if I wanted to still find out if I was allergic. What was the further testing? An eating challenge. He wants me to make an appointment to come into the lab and eat the food I suspect I'm allergic to until I have a reaction or until it's clear I don't have a serious reaction....Umm...I can do that on my own without having to pay anyone. I have an epipen and lots of benedryl. He did say I could also just test by eating something I think I'm allergic to at home and to be sure I had my epipen and someone to take me to the ER. I might test some of the foods I have not eaten for years (Shellfish, pork, mushrooms) but I'm not going to test milk anytime soon I don't think. My husband had ice cream last night and then kissed me. I was congested, coughing and blowing my nose for the rest of the night form the moment he kissed me (I had been breathing fine before that).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Looking for answers Contributor
Looking for answers
Posted

The blood tests won't be accurate if you've given up the foods, as your antibodies will subside.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted
  • Author

The blood tests won't be accurate if you've given up the foods, as your antibodies will subside.

I know that is the case for the Celiac panel test but is that true for allergy testing as well? I even asked my Allergist this question on the phone since I have not eaten shellfish for over a decade. He was pretty adamant that a food allergy would show up even if I had not eaten those foods for a very long time.

sb2178 Enthusiast
sb2178
Posted

IgE-based allergies will show up even if you haven't eaten it for a long time (or ever, if you're talking about babies/kids). IgG/IgA-based reactions will not show up if you aren't exposed.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted
  • Author

IgE-based allergies will show up even if you haven't eaten it for a long time (or ever, if you're talking about babies/kids). IgG/IgA-based reactions will not show up if you aren't exposed.

Thank you for the clarification. I am pretty sure my allergy tests were for IgE reactions.

salexander421 Enthusiast
salexander421
Posted

Sorry to sound dumb here but, they can test for IgE mediated allergies through blood test? I was thinking that IgG were the only ones that were tested through blood test. I'm new to the idea of actual food allergies and trying to figure it all out!

GlutenFreeManna Rising Star
GlutenFreeManna
Posted
  • Author

Sorry to sound dumb here but, they can test for IgE mediated allergies through blood test? I was thinking that IgG were the only ones that were tested through blood test. I'm new to the idea of actual food allergies and trying to figure it all out!

Yes. I did the skin prick tests too, however my dr said the blood tests are more accurate and he always does both types. All my skin tests were "negative" --no little circles popped up as big enough to be conclusive-- but they itched like crazy for days afterward. I'm sort of new to the food allergies thing too so I don't know much about the tests. I asked if there were any other allergy tests they could do (since milk makes my throat close up) and the dr only offered an eating challenge.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,027
    • Most Online (within 30 mins)
      7,748
    EmmaGraceeee
    Newest Member
    EmmaGraceeee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.