Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need To Rant

basslady

Recommended Posts

basslady Newbie
basslady
Posted

A few weeks ago I bought a medical I.D. bracelet saying that I have celiac along with other medical issues. A week ago in orchestra a guy in my section saw me take it off. He said "Is that a gluten free bracelet?" I had no problem with him asking me. At that time it was more of a question and I have no problem educating people about celiac. But then yesterday he said very loudly "Is that your gluten free bracelet?" Everyone turned and looked at me. AHHHH Why did he have to draw attention to a bracelet that I have been wearing for weeks and draw attention to me being "different" from everyone. And the way he said it was worse. It was like he was mocking me for wearing it. I don't chose to have celiac. I need to wear it so that if something happens they wont give me glutenised medication. If i am exposed to it I have major asthma problems. The next time he does this I am going to flip.

Thank you for letting me rant.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Monklady123 Collaborator
Monklady123
Posted

What kind is it? I mean, what style. I have one (not for celiac) that's made for women, and it's got beads and sparkly things on it. lol.. So if you had one like that the next time this guy -- or anyone -- says anything you could say "yes it is, I just got this new style, thank you for noticing! Isn't it pretty?" Kill 'em with kindness, as my mother used to say.

And who knows, you might help someone else. I actually had a woman notice mine once at our local pool. She said that her 7-year-old daughter had just been diagnosed with diabetes and she needed a bracelet but didn't like the chunky ordinary ones. (why her doctor didn't tell her about another style I don't know, but that would be another post...the doctor rant one.) So I told her where I'd gotten mine. :)

But, I totally understand what you're saying. I still hate the "standing out" part of this gluten free thing. Having to always talk to waiters, and trying to figure out how to do communion in church, and in general always being different. When I get to thinking too much like that I remind myself that at least our illness is 100% treatable, and without medication too!

Diane-in-FL Explorer
Diane-in-FL
Posted

Where do you get the bracelets? :)

Monklady123 Collaborator
Monklady123
Posted

Where do you get the bracelets? :)

I got mine at Lauren's Hope (laurenshope.com) :)

Diane-in-FL Explorer
Diane-in-FL
Posted

I got mine at Lauren's Hope (laurenshope.com) :)

Thank you!

collgwg Contributor
collgwg
Posted

omg thats awful people just do not understand at all

my hubby said oh you still can eat that fish we have with the batter on it just wipe off the batter

like that would help they just dont understand that gluten is quite dangerous and some times worse in others i have found

now for this asthma symptoms ever since i got sick feb 23 i have realy bad asthma symptoms and needing puffers now the dr said its because i smoke,

is it because of being glutenated?

i have been gluten free for about 4 days and i am finding that this cough is starting to break up some i can tell its not a cold and i can tell if i consume gluten cause the cough and of course insides go right into spasums

Jestgar Rising Star
Jestgar
Posted

my hubby said oh you still can eat that fish we have with the batter on it just wipe off the batter

Dip his in the kitty litter box and tell him he can just wipe of the coating. :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bigbird16 Apprentice
bigbird16
Posted

Dip his in the kitty litter box and tell him he can just wipe of the coating. :P

Love it! LOL

K8ling Enthusiast
K8ling
Posted

I have two bracelets from Laurens Hope and I LOVE mine. I wear mine for Asthma and had celiac put on it too... It's barely noticeable.

collgwg Contributor
collgwg
Posted

lol kitty litter

basslady Newbie
basslady
Posted
  • Author

Thank you all. Consuming gluten does make my asthma worse. I can still have a problem without gluten but gluten triggers it when I am exposed. I have a pretty bracelet. The chain is made from heart rings. I like it. I bought it of off Amazon. I love the idea of thanking him for noticing. Haha I will do that the next time he brings it up.

Darn210 Enthusiast
Darn210
Posted

Well, my friends here will tell you that I'm a smart...ummmm...alec (yeah, that's it) and I would probably have to say something like . . . "You've already asked about my bracelet twice. What's up with the memory issue?"

LOL on the kitty litter.

Takala Enthusiast
Takala
Posted

Those are very attractive bracelets !

You could get one of those inexpensive colored silicone rubbery "livestrong" bracelets and have it handy in your pocket for the next time Mr. Inept makes a comment. (if you wanted to take the joke even further, get one of the "power balance" holograph knockoffs that is supposed to have magical powers for athletes). Whip it out and hand it to him with a big flourish, and announce that This Protective Power Band Will Make the Sound Waves Keep HIM from Getting Celiac from sitting near you. ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley...
    2. MogwaiStripe
      - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease. Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/
    3. Scott Adams
      0

      Tahini Swirl Fudgy Brownies (Gluten-Free)

    4. Butch68
      - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too. is this everyone’s experience? Can I drink it? I get dermatitis herpetiformis and don’t get instant react...
    5. trents
      - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748
    Athenablue
    Newest Member
    Athenablue
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Gluten Issues and Vitamin D

      By MogwaiStripe · Posted

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Guinness, can you drink it?

      By Butch68 · Posted

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.